Hi
I was sent these results today.
Serum T4 306 nmol/L range (78-157)
Free T4 367 index range (75-170)
Serum T3 10 nmol/L range (1.30-.2.70)
Serum TSH <0.001mlU/L range (0.4-4.0)
TRAB >100 U/L
I’ve been taking 6 tablets of 5mg carbimazole now for 3 weeks. Anybody know when the levels are likely to drop. Dr report want nice. Dismissed symptoms 6 years ago. I’m frustrated and can’t be bothered.
It can take around six weeks. Your levels were incredibly high but they have come down a lot. It's crucial to keep taking the carbimazole.
Carbimazole usually takes 4 to 8 weeks to be effective, although because you have such high hormone levels it is likely to be closer to 8 weeks. See the BNF website for more information: -
Hey there again,
I understand your frustration and the anger is a given with some Grave's people, commonly referred to as Graves Rage :
I'm sorry but you do need to be bothered and you do need to take some time out and get this back on track now.
I know it's difficult - but you need to do a total " U " turn and start allowing yourself to repair yourself.
Thank you for your love. I think you understand me the most. I’m trying. All my love to you
I sincerely hope you are not working in the swimming pool and are signed off from work - though I know a part of you thinks you have to keep going as the main breadwinner.
The reality is, you can't maintain or control any of this, so let go and let the medication do it's job, and stop fighting against yourself.
Walking into a 28 degree maintained swimming pool is bad enough, but to be in this environment all day and working must be like torture and this will be exacerbating your symptoms.
Remember, I've got this T shirt, but only learnt about it all back to front !!!!
I am working. I can’t sit around at home even if I am signed off work. I am taking the 30mg of carbimazole. I have no choice but to surrender. 28 degrees is hard but without working no one will pay the mortgage or bills and we have two university studying children at home to think about too. It’s ok. Everything will work out. Thank you for your love and kindness. So appreciated xo
I knew the answer when I poised the question and could have written your answer myself.
Please take care of yourself :
I suffer with graves' rage and it seem worse at the moment. People seem to annoy me more than usual especially when they are not sticking to the covid rules. Only yesterday some woman walked into a shop without a mask on so I reminded her and she said I don't have to wear one. I then asked to see her exemption letter which she didn't have. I think the shop staff are too frightened to confront people about this and that is why we are getting more outbreaks of the disease.
Yes, I think it currently a ridiculous situation in so many ways for so many people.
My Graves rage - get's internalised - which isn't a good idea - I'm not confrontational and tend to bottle things up - just removing myself from people who cause me upset.
Probably accounts for why I've not many friends !!!! ???
My neighbours avoid me where I live because I always speak my mind. It is as if something pops into my head and I just cannot stop myself from saying it! I never used to be like this before I became ill and the current situation is making me worse I'm afraid.
Be yourself. There is nothing wrong in telling the truth. Live in telling the facts and not fiction. I got a letter from the endocrinologist at the hospital and scribbled all through the letters . She just words like presumed and I think. These are not fact based sentences but rather a persons opinion. My treatment is being based on facts. I always think if you have something negative to say it will not be received well so use a softer approach. Just be you. Never forget how amazing you are.
Thank you for those kind words. When I first became ill I was fobbed off by my GP who presumed I was suffering from the menopause. This was over 10 years ago and he had written "delusional" on my notes which I only found out about last year. This made me very angry because I wasn't being treated at the time. I knew there was something wrong because my hair was dropping off as were my nails. I was also very thin and had heart palpitations and sweating, so according to him I was "delusional". I have asked one of the partners at the practice to remove that remark but because the GP who made it has retired he refuses to do it. I am just reading my hospital notes at the moment and I have words like "anxious and depressed" written on them. Of course I was anxious and depressed because I felt very ill and my ex-endocrinologist suggestion was to have counseling to cope with the symptoms I was getting. Just to add I am feeling ok at the moment but any kind of stress can aggravate my condition so I am trying to keep calm.
I am constantly amazed by my intelligent 19 year old daughter. She points out Rightly that FEELINGS ARE NOT FACTS. If a sentence says I feel this person is depressed, it is not a fact. In order to be diagnosed with any mental illness dilusion or depression that needs a qualified person other than your GP to diagnose it. Your GP could be right in thinking you are depressed (just using this as an example) but a third party formally qualified to diagnose it should be used. I have chronic fatigue written on my notes. I go to the gym 6 days a week. So that’s not true. Getting any opinion changed would be impossible from 10 years ago. I loathe doctors. They do not know how to talk to you as a human being. You are a number. I told my endocrinologist that I was not a number that fitted in a box and that I don’t take the carbimazole because her opinion absolutely frightens the life off me. Once I fit in the box of normal ranges I will be CURED regardless of how I feel. So long as I am in the box she has done her job/. This type of specialist frightens me to death. In 2014 I was 35.5 degrees, TSH 4.0, slow heart, low mood, struggled to move weight despite being trained by a professional coach as an athlete, low blood pressure. I told the endocrinologist on my first appt what had happened in 2014. Her answer is. It wasn’t your thyroid but something else. I have no will nor any want to see this person again. For me she is a dangerous person not invested in my health but rather I need to fit in her box. Sorry I’ve ranted. You know the truth. I could suggest Changing doctors. We have just changed doctors. This has helped. Before we moved doctors surgeries we paid to sit with the potential new dr for 15 minutes to see if we liked him as if he was a fit for our family. It’s just a thought. Never forget how amazing you are and that your family loves you very much. Kindest regards Suzy
TRAB >100 U/L -- so this is the range for TRAb, and your TRAb level is 453 ? Is this correct?
No. I have my actual reading and it came back at >100. The test did not show where above 100 it was. The range is
<0.4 negative
0.4-0.8 normal range
>0.8 is positive.
My TPO test was 492. The range is <10.
I am a few months down the line now and won’t get the next antibody test until I see the endocrinologist next March 2021. I am gluten free now and stopped eating sugary foods like chocolate and Iceblocks. I have been seeing a medical herbalist to address leaky gut. I suffered severe stress and trauma for 6 years so I suspect that is the cause of my Graves. I hope that helps and that the range numbers will help you. It is worth mentioning I live in New Zealand 🇳🇿 I hope this site will help you
Blood Test results for my Mum , your help appreciated
Blood results - advice please
Latest results not good... 
Help with blood results
Blood tests results advice please... 
