I've just been trying to make my profile on here a bit clearer, and was checking a few details on Patient Access, only to find that ALL my thyroid blood tests have been removed (thats 2 per year for 8 years, I think).
Now then, what do we think of that?
Written by
Wetsuiter
To view profiles and participate in discussions please or .
That is interesting do you know how long records are kept? Just a foot note my father died of lung and throat cancer his gp kept telling him it was laryngitis until my father had enough he couldn't do his job because he lost his voice. He eventually got an appointment for the camera down his throat then he had a biopsy which showed a malignant tumor he died 4 years later. Of course we were greaving,, then about a year later I requested to see his medical records ect but was told they'd been destroyed I was under the impression they kept them for 10 years after death I got nowhere.. I'm currently in the process of attaining my blood results from Nov 2017 to sep 2018 I had been very ill for 3 years but gp insisted it was the menupause I fought for bloods to be done as I told him several times it was my thiyroid going overactive he did about 3 bloods from the Nov 2017 till Aug 2018 each time they were with in range but I felt awful.. He was very rude and on the last bloods in Aug 2018 he told me to stop bothering him he as other patients!! Then in sep 2018 I was so ill I made an emergency app with another gp she immediately diagnosed me as hyperthiyroid took bloods they came back the next day my TSH was not detectable my T3 was 24.2 but other gp in Aug said I was in range I'm curious to see what those results were as I've never saw them.. Just wondering what will happen when I do request them now you've posted this... π€π€π€π€
I thought that medical records for patients would be kept indefinitely. Once dead I would expect them to be kept by the General Medical Council or some other authority because there would be valuable research information contained within them that could prove useful.
Are you on the road to recovery now that your hyperthyroidism has been diagnosed?
Oh dear, I'm really sorry you're going through this. GP's and most of the medical profession just don't know about thyroid conditions. They assume you just need a little pill and then you're better, this does not work for many people. Looking at your blood results it looks like you now have hypothyroidism not hyperthyroidism. Your TSH is near the top of the range but your T3 is too low and your T4 is low too. You probably need an increase in your Levothyroxine or a trial on Liiothyronine but this has been red listed by most CCG's because of the cost. If you are going to see a different GP at your surgery I suggest you go armed with some ammo. Keep a diary of your symptoms and fully explain everything to the GP. Don't say you feel awful because they'll brush this off and try to tell you it's in your head and you need antidepressants.
Also, ask for full blood profiles to be undertaken because you might have a Vitamin D and/or Vitamin 12 deficiency which is contributing to your illness.
The difference between Levothyroxine (T4) and Liiothyronine (T3) is that Levothyroxine is converted to Liiothyroxine in the body, Liiothyronine is the active thyroid hormone that you need to survive. It's used by all the cells in the body and is also converted to T2 and T1. T2 helps your metabolism, the same as T3, and T1 is used by the brain and helps with mood. I suggest you read Dr Durrant-Peatfield's book Your Thyroid and how to keep it healthy. It is very informative and easy to read with support for diet and supplements.
That is strange because I can look back over 10 years with my online records. I would query that because you should be able to see them. Medical records are kept until death and then they are archived and I know this because I worked in the department part time after I had my children.
I could see all mine through Patient Access, then the Practise merged with another and now I can see nothing. I had to start using myGP app on the phone which isn't set up for displaying results and when I tried going back onto Patient Access I've been removed because of the merger. It may be something as innocuous as that, but when I'm there for a blood test on Tuesday I'll be asking to be put back on. Last time I looked (July last year?) I could see my results all the way back to 2005.
They've tried to set up myGP so I could see my results when I've asked but they say they don't know how to.
Your records will be somewhere so ring them and ask. I remember searching for some records for days and eventually they turned up in some Consultants car boot he had forgot he had them. I could tell you other horror stories regarding medical records but I won't.
I am registered. I can see stuff going right back to when i was a premature baby. My thyroid blood tests were also all on last time i was on there, but now they ve gone
I was messaging Archilles not you .... I would ring them and ask about it if I was you because your records will be somewhere they do not destroy them until 10 years after you have died or even later. I used to archive the deceased files when I worked in medical records.
I feel like getting a job back at medical records again and deleting "delusional" which was written on my records when I was suffering with undiagnosed Graves' disease!! Doctors can write what they like about you even if it is incorrect.
I was just thinking how boring it was working in medical records pulling them for clinics etc. I loved doing the microfilming but I don't think they do that now because technology has moved on.
Look at this for a storage facility and I though the one I worked in was big!
Follow up to the fact that my Thyroid Blood Tests results 'disappeared'. They're, once again, visible, but the reference interval has changed. Not by much, but it's enough, when they're micromanaging dose by TSH. It was (0.27-4.2) but someone's gone in and changed historical records to (0.3 -4.50).
I'm not going to ask them about it, as they can't even reply, when I ask for a consultation about debilitating symptoms.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.