Hi guys so I decided to post my most recent results done by Nhs endo who has decided no t4 treatment necessary.
Date of tests - 29/10/2019
FT4 - 10.0
FT3 - 4.9
TSH - 0.81
VitD - 49
Any feedback as always is appreciated. I decided to bump my dose of T4 to 37.5mcg and have been on it since last post (sorry brain fog has ruined me)
Kind regards
I'm sorry, but we absolutely need the ranges for those results to be able to give you any feedback. 
Hi greygoose ive put them up as I’ve got them. Why ranges? Sorry for my incompetence
Because ranges vary from lab to lab, and it changes the meanings of the result. An FT4 of 17.5, for example, would be mid-range in a range of 12-22, but over range in a range of 6-17. So, we need the ranges used by the lab that analysed your blood.
If you weren't given the ranges, then you need to contact the person who gave you the results, because they are meaningless without the ranges.
Why are they so useless - it’s such a nightmare
Because we don't know if they're high or low in range, as I explained above. We don't even know if they're in range without the ranges. So, they don't have any meaning.
I get that thanks I just meant the doctors. I’m literally a skeleton zombie the amount of running is debilitating. Constant exhaustion and on top medical incompetence/negligence. God help us!
Oh, sorry! I misunderstood. Well, thing is, the endo that ordered your bloods probably uses the same lab every time, so he knows the ranges by heart. It remains a mystery whether he omitted to tell you the ranges deliberately, so that you couldn't interpret your results - maybe he'd rather you didn't know, that way you can't contradict him - or he thought you wouldn't understand them anyway, or it was a genuine over-sight. Who knows. Or, it might be that his secretary, who typed them up, didn't understand the need for ranges. There are quite a few possibilities. Ring the secretary and ask.
Hi, so the ranges are
FT3 range 3.8-6.8
FT4 range 7.5-21.1
TSH range - 0.34 - 5.6
VitD range - 60-150
FT3 4.9 (3.8-6.8) 36.67%
FT4 10 (7.5-21.1) 18.30%
TSH 0.81 (0.34 - 5.6)
Vit D 49 (60-150)
So, your FT3 is pretty low, and your FT4 is much lower. Neither result corresponds to your TSH result. One would expect the TSH to be much higher with those low levels. Looks like your endo is only looking at the TSH results, which is good, when he says that you don't need treatment. Pretty sure I would need some treatment if they were my levels!
And, what I'm wondering is: are these unequal levels due to a pituitary/hypothalamus problem, rather than a thyroid problem? Doubtful your endo knows anything about Central Hypo, so in your place, I would be researching it, so that I know what I'm talking about, and asking him the question.
Here are a couple of articles to get you started:
endocrinologyadvisor.com/ho...
ec.bioscientifica.com/view/...
But, there's a lot more information out there.
Your vit d is also much too low. Should be around 100.
Hey thanks for ur response
I did have my pituitary looked i to as well as adrenals and cortisol. They have advised no issues found anywhere. The dr I had prior to this lady was quite good and also works private and told me there is no need in booking him privately as he would look into all the things on the NHS. Only problem is that he is extremely difficult to get a hold of.
Just to add I feel a little better only today since I’ve been on 37.5mcg for 6 days. Even though being a slave to a Little pill for the rest of my life is a tough one at 32 years, I’ll be happy if I can get some nice years under my belt before I feel terrible again. Wishful thinking I guess
😞 appreciate all the feedback and I’ll give them a read tonight
I'll tell you, if I could have got diagnosed at 32, I would have been more than willing to take that little pill for the rest of my life. As it was, I had to wait until I was 55 to get diagnosed.
What did the endo do to look into your pituitary? Did he also consider the hypothalamus? It's not always the pituitary at fault. The hypothalamus has to stimulate the pituitary to secrete TSH. If it doesn't do that, then the TSH is going to be low, and so are the thyroid hormones. Something that often gets over-looked.
greygoose I have lost about 15 years of my life because I did not know what to do and was listening to NHS about what was wrong with me ... I know better now and you do as well.
I think I've lost a lot more than that. I think I've been hypo since I was about 8 years old. But, it's not just the NHS. For 45 of those years, I've been in France, and just got the same useless reactions from doctors. I was finally diagnosed by accident!
I have seen what is going on in the US and the UK but I do realise this is world wide.
Hi just wanted to say when these tests were done I was not on treatment.
Do you think I may have a DIO2 gene issues?
And what are your views around that issue
Thanks you 😞 Friday night
Yes, I understood that.
No, I don't think you have a DIO2 issue. That is to say these results give no indication that that is a possibility. You don't appear to have a conversion problem, in any case. But, that only really makes itself apparent when on levo only.
I suggested a pituitary/hypothalamus problem. That's nothing to do with DIO2 issues.
Thank you for responding. I’m going through hell reading through masses of information that I will not ever retain fully for the life of me.
What do I say to these criminals in suits. My endo has signed me off for the second time. I fought off the first attempt.
I just don’t know how to deal with this or these people anymore. I feel like buying some t3 tablets and starting my toad to recovery God willing. I feel by the time they might listen I’ll be a lot worse.
It's not T3 you want at this point, it's T4, levo.
Has anyone ever investigated a pituitary/hypothalamus problem? Because that's what they should be doing now.
By the way, what time of day was the blood taken for these labs?
It was late morning. I hadn’t eaten other than a coffee. And I was not on meds of any sort.
I remember one of the Endos did look in to adrenals and also cortisol. They checked cortisol by injecting my lower back and then blood tests after this.
I don’t feel they actually tested anything regarding the pituitary or hypothalamus. What tests could I request.
And, what was the result of the cortisol testing? That is one of the tests that would be done to investigate pituitary function. But, there are others. Different endos do different tests, so I can't really advise you. But, here are a couple of articles about Central Hypo:
endocrinologyadvisor.com/ho...
ec.bioscientifica.com/view/...
pituitary.org.uk/informatio...
If you have trouble retaining information, take notes. That's what I do.
As your profile says you're based in UK ....your vitamin D is presumably measured in nmol
49nmol vitamin D is too low for anyone on Levothyroxine
GP will only prescribe to bring vitamin D up to 50nmol. Aiming to improve by self supplementing to at least 80nmol and around 100nmol may be better .
Once you Improve level, you may need on going maintenance dose to keep it there.
Test twice yearly via vitamindtest.org.uk
Vitamin D mouth spray by Better You is good as avoids poor gut function.
It's trial and error what dose each person needs.
Local CCG guidelines
clinox.info/clinical-suppor...
Government recommends everyone supplement October to April
gov.uk/government/news/phe-...
Have you had B12, folate and ferritin tested
Do you have Hashimoto's? Diagnosed by high thyroid antibodies
I’m not sure which thyroid issue I do have and then they checked in the past they have said the antibodies are fine. They have put me in euthyroid status. I have recently been diagnosed with blood borne parasites which is something I’m privately trying to battle also. I have had numerous vitamins and everything checked and they’re all fine
Suggest you improve vitamin D by supplementing at minimum of 2000iu day until you get full thyroid and vitamin testing 6-8 weeks after increase in levo
Medichecks thyroid plus ultra vitamin test
Make sure to get blood test as early as possible in morning before eating or drinking any thing apart from water
Last dose levo 24 hours prior to blood test
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