Hi everyone. I'm in so much pain I no longer have a thyroid as it was removed on the 29th November. The bottom of back feels heavy and it hurts. Also the top part of my ribs on the right side at the front hurts, also bottom of my ribs, right side at the back. I'm getting shoulder pain too. Something so simple such as brushing my hair or changing my sons nappy getting him dressed ect hurts my shoulders and the bottom of my back. The pain in my ribs isnt constant but when the pain flares up I cant move. It's like a really painful cramping feeling. It really does hurt. I find I cant even lay with my hands behind my head because it sets the pain off. Sometimes I get the pain on my left side but it's mainly my right side.
At 7 am I take levothyroxine 125mg. At 8am I take adcal-d3 chewable tablets (calcium carbonate and vitamin d3) each chewable tablet contains 1500mg calcium carbonate equivalent to 600mg calcium. At 9am I take my fostair inhaler. 3pm calcium again 9pm fostair again 2 puffs. Then at 19 pm I take calcium again. I recently got given clarithromycin 500mg tablets to be taken every 12 hours so I take this at home am and 7pm. I've also been given prednisone 5mg so I take this with my fostair at 9pm.
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Kirstylstocks
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Have you got any recent blood results to share with us? They must include TSH, T4 and T3 and also vitamin levels which must include B12, vitamin D, Iron and Ferritin and Folate. Vitamin levels need to be up especially that you no longer have a thyroid. Also a lot of people without a thyroid need T3 as well as T4 so can do well on NDT which contains both and is very natural. Someone will be along to give you more advice about this.
Ask for a print out and then post them on here for us to look at. You are entitled to see your blood results because it is the law. I just hope your Doctor is an expert on how to treat people without a thyroid and doesn't keep you unwell like others I know who are in the same situation as you.
Me too because last thing I want is to feel unwell for even longer I'd like to return to work but way things are at the moment I'm unsure its going to happen yet. My surgeon is a very good doctor and i see him soon so hopefully he can shed some light on how I'm feeling. I was worrying about my concoction of medication could it be those causing me pain
Adical is the only one I'm taking for my calcium when I wrote the post I wrote everything it said on box. I'm unsure if they were damaged or not all I know is my calcium levels were slightly low. I also get pins and needles in feet hands tingling in my lips once I take my adical it seems to go away
If calcium only slightly low you should get it from food alone. It can go to the bloodstream and soft tissues. The vitamin d in the adcal is a baby dose as well.
You are only leaving one hour between your levo and your calcium/vit D. It is recommended to leave four hours. So, my guess is you aren't absorbing much of your thyroid hormone and are now very hypothyroid. How long have you been doing that? When did you last have thyroid blood tests?
You say your calcium was slightly low, but did you also have your vit d tested? If your vit D was also slightly low, it might be a better idea to take a larger dose of vit D only, than adcal. Taking vit d will increase your absorption of calcium from food, which is a much, much better way of getting it. Calcium supplements are very badly absorbed, and can build up in the soft tissues causing problems. In any case, when taking vit D/calcium we should also take vit K2-MK7 to make sure that this extra calcium goes into the teeth and bones, and doesn't build up in the tissues. You also need to take magnesium, because vit D and magnesium work together.
But, I wouldn't expect a doctor to know any of that, because they don't learn much about nutrients in med school.
Hi I'm still chasing up blood results from the hospital. My gp just called me and as asked me to go for a furthur blood test Monday because my calcium levels are quite low at 1.8 so now I've to take adcal 4 times a day
Oh 4 hours I was never told this. I've been doing it about a week. Prior to that I was taking it same time as thyroxine as I was unaware that you couldn't take them at the sane time so was then told b1 hour should be fine so this 8s what I did because I couldn't work out any other way to take 3 lots of calcium leaving the correct gap. I'm unsure on my last test but I know I'm due one end of this month but I will find out these facts today. The other vitamins your talking about can you get that in a multi vitamin form? I am going to get my blood results today too
Likely your calcium is badly affecting Levothyroxine absorption
Levothyroxine is very fussy medication. Do NOT take any medication within two hours of taking Levothyroxine. Leave minimum of FOUR HOURS for calcium, vitamin D, magnesium, HRT or ppi
As you were taking Levothyroxine incorrectly you will need bloods retested again 6-8 weeks after taking Levothyroxine ON ITS OWN
Always get same brand of Levothyroxine at each prescription
For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.
Is 125mcg roughly equal to 1.6mcg per kilo of your weight?
Unless your parathyroid were damaged you are unlikely to need such high dose calcium
Vitamin D however is often low on Levothyroxine. Important to regularly retest
GP will only prescribe to bring vitamin D up to 50nmol. Aiming to improve by self supplementing to at least 80nmol and around 100nmol may be better .
Once you Improve level, you may need on going maintenance dose to keep it there.
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Is this Gallbladder problems? Dizziness, Nausea, and pain in right leg, and stomach?
Confused about Calcium
