Further update after GP appointment

[Pumpkin04]

So I posted a couple of weeks ago following another round of blood tests today. I've been back to the GP - he still won't prescribe me thyroxine however agreed I should be on it, so he has referred me to an endo. He said with my family history PCOS infertility issues hypertension it's all potentially linked and needs investigating. He said that he believes the endo will definitely advise the GP to prescribe Thyroxine and potentially a higher dose.

[Pumpkin04]

I know its disgusting really - we live in a claim culture so GP's are scared to actually treat symptoms anymore. He is sure that the Endo will advise prescribing Levo fingers crossed as I really cant afford to keep paying privately for the prescription!

[Pumpkin04]

Its not what you know its who you know!!!

[Pumpkin04]

Really? Thanks I'll defo have a look into that x

[SlowDragon Administrator]

Your antibodies test confirms you have Hashimoto's

healthunlocked.com/thyroidu...

See different GP and push for 25mcg dose increase in Levothyroxine

The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range

NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.

nhs.uk/medicines/levothyrox...

NICE guidelines

cks.nice.org.uk/hypothyroid...

The initial recommended dose is:

For most people: 50–100 micrograms once daily, preferably taken at least 30 minutes before breakfast, caffeine-containing liquids (such as coffee or tea), or other drugs.

This should be adjusted in increments of 25–50 micrograms every 3–4 weeks according to response. The usual maintenance dose is 100–200 micrograms once daily.

Vitamin D was far too low

No folate test results

Are you on strictly gluten free diet?

Or tried it yet?

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet




(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)




Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

[SlowDragon Administrator in reply to SlowDragon]

Just saw your post re referral to endocrinologist

Have you had coeliac blood test yet (or bought one online)

Trying strictly gluten free diet and Getting vitamins tested and supplement to optimal ....BEFORE seeing endocrinologist ideally

[Pumpkin04 in reply to SlowDragon]

Great will do thanks!