I'm due to have my 3rd lot of thiyroid bloods tomorrow my 3rd lot since my total TT in May this year..
My last bloods done on the 23rd sep are as follows
FREE T3 A NORMAL.. 3.1 pmol/L ranges 3.10--6.80..pmol/L..
FREE T 4 A NORMAL... 13.3 pmol/L.. Ranges 11.00..22.00pmol/L
TSH..0.05 mU/L... Ranges 0.30-4.50mU/L
Vit B12 A Normal... 254..ng/L..ranges 197.00-771.00ng/L
Serum ferritin 17 ug/L see gp...ranges 23.00-400.00 ug/L... Gp doing this test tomorrow..
Serum total 25-OH vit D level... Range70 nm1/L..
My gp as not requested Folate or thiyroid anti bodies(I have graves).. Only had one anti body test that was before my op.. Was told my anti bodies were attacking my thiyroid.. And were high although I have requested these results I've yet to receive them..also my results for T3 and T4 are normal... But I feel awful as I have posted on here.. I would love to know what my levels were before my diagnosis in sep 2018 and compare them to the ones now... How long do gps keep blood results does anyone know..??
Thanks.., ❤️❤️
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birkie
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Your September results show you are under medicated
Your FT4 and FT3 are definitely NOT normal. They are within range (just) but way off being optimal
The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range
FT4 only 18% through range (should be at least 60-80% through range)
How much Levothyroxine were you taking before this test ?
Did you get dose increase in Levothyroxine after these results?
Ferritin is extremely deficient
GP should have run full iron panel testing for Anaemia.
Presumably you are on ferrous fumerate supplements now? 2 or 3 per day.
Eating liver or liver pate once a week, plus other iron rich foods like black pudding, prawns, spinach, pumpkin seeds and dark chocolate, plus daily vitamin C can help improve iron absorption
B12 very low
No folate test?
Has GP tested for Pernicious Anaemia before you are starting on any B vitamin supplements
Vitamin D may be better higher. GP will only prescribe to bring vitamin D up to 50nmol. Aiming to improve by self supplementing to at least 80nmol and around 100nmol may be better .
Once you Improve level, you may need on going maintenance dose to keep it there.
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
I know you have given me some great advice on here.... My surgeon started me on 125mg after my op this may... Then has reduced it down to 50mg with increments of 100mg 75mg and now 50mg I've done the whole 9 yards no levo before blood test and fasting and early app.. I will post my results on here as soon as I get them... But as I have said I'm bothered about coming off levo for six weeks and don't think it should be my gp who impliments this I've rang my endos secretary to see where I am in the appointment list but she's not got back yet... 😠
His taking bloods tomorrow and says his going to check for iorn levels as for vit D he says it's OK as is B12... I've got my list ready of what I want done full panels of thiyroid all vitamins / folate/ferttine B12 vit D ect I'm also requesting FSH.. And anti bodies if the nurse as a problem with this she can take it up with my gp but I'm getting them done I'm entitled to them... 😠
B vitamins best taken in the morning after breakfast
Igennus Super B complex are nice small tablets. Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks
Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results
Selenium supplements can help improve conversion of FT4 to FT3 as well
Iron .....at least GP is doing full iron panel test
Come back with new post once you get results
You need to push GP for 25mcg dose increase in Levothyroxine ....Point out just how low Ft3 and FT4 are
If you can't get dose increase then you need to go over GP's head and see a recommended thyroid specialist endocrinologist
Getting the list of recommended thyroid specialists from Dionne at Thyroid Uk. See if there's one near you who's on NHS. Ideally have the name ready of who you might want referral to for meeting tomorrow
All medication at least two hours away from Levo. Some like HRT, PPI's, magnesium, iron or vitamin D, at least four hours away
Many people find Levothyroxine brands are not interchangeable.
Once you find a brand that suits you, best to make sure to only get that one at each prescription.
Watch out for brand change when dose is increased or at repeat prescription.
Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients. Teva is the only brand that makes 75mcg tablet.
Yes I agree I need increase but gp is adamant his taking me off for six weeks.... As I say that's what he thinks.... I'm not doing anything until I speak to an endo.. 👍
My surgeon and gp are trying to get my TSH to rise.. But given I've no thiyroid some lovely people on here have said my TSH will always be low or suppressed as the link between the pituitary and thiyroid is broken.. I have graves(hyperthyroidism) they should be concentrating on My T3 level... Which is in the bottom range I will be at war with my gp again trying to get it threw his thick skull it's T3 you need to look at... 😠
Birkie, it's not because you have had your thyroid removed that your TSH will always be suppressed. TSH is not a thyroid hormone, it's produced by the pituitary.
The reason it will probably never rise is because you had Grave's, with long-term suppressed TSH. The pituitary/thyroid axis has become down-graded, and suppressed is now your new normal, no matter what the level of your thyroid hormones.
Do make sure you get that right when you talk to your doctor, won't you? We don't want both of your talking rubbish! lol (Sorry, joke)
Prob put that wrong on this post but I did mention to my GP about the axis had become down graded and a suppressed TSH is now my new normal..no response from him other than to take me off Levo for six weeks to see if TSH rises..his doing this on my next blood work I'm at docs tomorrow for bloods..so he will take me off Levo then..well that's what he thinks..😡😡
He wants shooting! He's insane! Is he deliberately trying to kill you? Obviously he knows so little about thyroid that your explanation went straight over his head! Doctors like that should be struck off!
I have colitis my gut is always bad and some meds upset it as do some foods I'm seeing my gastro consultant on thur he ad requested to see me after my enderscope results.. So I will mention gluten to him..
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