I am hypo with a high TSH of 3.74 and over range TGO of 274 <115, Vitamin D 69 (50-120)
My main problem is muscle aches, especially of the vastus medialis - I am a keen cyclist.
I have been on NDT for sometime now, which does not seem to help with the aches.
So, 5 months ago, on the advice of many on this forum who said that my Vit D was not 'optimal', (some said to aim for as high as 150!) I tried 1000iu D for a week starting on a monday.
However, my usual 60m sunday ride was the worst for a very long time.
So, thinking it was the extra D that I had taken, I stopped them.
However, again! following the advice of many on here, I decided to try D agan.
So, I looked on amazon for the best D to try.
And came up with Nutri D3/K2, especially after being intrgued by a review by someone who said, that, initially, his muscle and joint pains got worse.
However, instead of stopping the D, he researched some more. And found this!
VIt D supplementation can do this, because it's a sign that the body is trying to heal itself!?
So, he persisted,and his symptoms resolved!!!
So, I took 1000iu Nutri D3/K2 this morning (monday) after my so-so ride yesterday, and again this evening.
However, again, as 5 months ago, I can honestly say that now at 2330, my muscle aches are the worst they have ever been.
So, I am definitely minded (again!) to stop the D.
What does anyone think about this please?
I also read somewhere that some people do better on D2?
you ll probably need to give it more than one day before you know anything. it frustrating when your quality of life and things you like to do are affected, but you need to take some time.
as its ridiculous o clock, i havent looked back on previous posts or meds history, or why your tsh is high, but could not, not say this.
The re are many people who will say that you also need vitamin K2 with D3. Well magnesium is essential too, I think the best thing for you to do is research - there are a few books on vitamin d. It is VITAL for good health.
I would look into all of your vitamins and minerals. Have you been tested? How is your b12? Do you take vitamin c?
Hi Meme, how much D do you take and is it D3 please because I am getting most of the symptoms you listed. I have taken Vit D3 for 30 years but only 1000iu. Been Hypo for 30yrs, type 1 for25yrs and
Polymyalgia for2yrs. My head is floaty, arthritis has flared up in left wrist, hips and knees I’m really struggling this week. I also take 250 Magnesium, 200 selenium and lutein.
Hi I thought I sent a reply earlier from my phone but see it didn't get posted so here goes again. Vitamin D depletes magnesium - so every 1,000 IU's D causes an issue. Try get some Better You Magnesium oil - which will help - as a cyclist this will help with muscle tiredness after exercise - it is used by marathon runners etc. - the D is drawing in calcium so you will need the magnesium to balance the 'bad' effects that calcium can cause in some people. Every time I give my other half D - which he needs - where he broke his arm he gets terrible bone pain. I believe D is good for you and needed if you are low - but make sure you dissolve the calcium with Mg. Would pleased to hear if this helps.
Most of us get sufficient calcium from our diets, even if we are not milk drinkers. You may be overdosing by taking a Calcium supplement along with the vitamin D. Vitamin D helps to route dietary calcium to your bones and teeth -- provided you are also taking some vitamin K2, and--if you have muscle problems--magnesium. If your Calcium blood levels were tested and found to be low, that's another story.
Why do you think the Vitamin D has made your muscles worse? Check this out.
"High levels of vitamin D may improve muscle strength. ... A new study suggests that vitamin D may also improve muscle strength. New research suggests that active levels of vitamin D may improve muscle function. Vitamin D is key for the development and maintenance of healthy bones.Feb 16, 2017"
High levels of vitamin D may improve muscle strength
Just a thought, as you have high antibodies and thus Hashimoto's you may have low stomach acid which may make it difficult for you to absorb nutrients like Vitamin D even when you are taking supplements.
I found that I could only raise my vitamin D when I started using Better You Vitamin D + K2 mouth spray. the vitamin is absorbed through the oral mucosa rather than via the stomach and intestines.
I took 3000iu daily for 3 months and I raised my D to 90 from 50 ish.
I still need 3000iu daily to maintain that level as when I reduced it to 2000iu it fell to around 65.
Sorry I'm not sure why it might make your muscles ache, however when I first started taking vitamin D my legs and arms ached but it was the bones that hurt, when I looked that up it was suggested the as bones improved it could cause aches and pains, I no longer get those types of pains, so is it possible that it could be your bones the are hurting?
Hi All
RoukounasGK posted a very interesting take on Vitamin D supplementation
He researched and found an article by a Dr Coimbra that found that Hashis and D don't mix!
First of all, dr Coimbra didn't say that the hashimoto and vitamin D doesn't match with each other. In fact he says the exact opposite, that you should get tons of vitamin D for any autoimmune (more than 10,000 IU per day). But that doesn't seem so good to me, and im having a hard time believing it. He is a single guy that seems to be profiting from our misery and all other scientists are against him. But i really don't know.
What i posted was a research from a non profit medical organisation, which states that vitamin D indeed helps the body immune system. But in hashimoto this means that the autoimmune response will also be increased and thus will cause serious flare ups and make the situation worse.
Though this seems legit, please remember that it is only one study, which was published back in 2006. No other study has suggested any of this, and there are a ton of other research which states how good vitamin D is. So it is not a given that this holds true.
That being said, this seems true to me personally. I am with hashimoto for at least 15 years and i almost never had any symptoms from it. But it was making me furious that so early in my life (back when i was 14) I had to take a pill for the rest of my life. So i tried some supplementation in case I could cut down the pill. I tried cod liver oil and some seeweed. On both of them symptoms have appeared so i stopped them in about a month of using them. The only link i found is that both of them contain vitamin D. Fast forward today, i was prescribed vitamin D supplement due to my great deficiency. So i took them for about 3 months. And then all hell broke loose. Now i have many symptoms to the point where I can't go on with my daily tasks and people. But again this may be a coincidence since as i said many many research states the opposite. Though these months have increased my vitamin D, i am still deficient. And it may be that vitamin D worsens hashimoto at the beginning where the body is not used to so much vitamin D. Please remember that the key to hashimoto is consistency and avoiding any fluctuations. So increasing the vitamin D may be beneficial in the long run but may cause symptoms at start where levels are not yet stable
So i am currently trying to get in range, no matter the symptoms and see where it goes. Based on my endo, in about a month I will most probably be in range and all of my symptoms will be gone. So i am doing a last effort these days. After this month i will give my body another month to get "stabilised" with the new vitamin D levels and try to keep them stable as much as possible. If this doesn't reduce the symptoms at all then i will know for sure that D is not good for hashimoto (at least my hashimoto) and i will cut it down completely.
So, i just posted a research which though is scientific, has many grey areas and noone knows for sure. If you want some more definite feedback please come back to me in about 2 months.
No unfortunately no new feedback on this. However another member of this community did a survey on it in this forum members some time ago. This survey is a small and not from an official Medical staff, so it was deleted from this forum, and is somewhat controversial. But if you are curious on the results, I got them myself you can pm me for more details (since I am not sure if it is allowed to mention them here).
regarding the kelp yeah i pretty much think the same. I just stated that these supplements caused me issues.
Regarding the vitamin D, there aren't any definite guidelines. Each Dr has different opinion and no-one knows for sure. For example, you say up to 200 while on my country 100 is the maximum. The optimal here is around 50.
i am not sure is if it has a negative effect on my hashimoto. Once i started supplement many symptoms started. It may be a coincidence, but not sure. I also posted a research which suggests that vitamin D increases the autoimmune response and thus has negative impact on hashimoto. But more research is required.
What i do know for sure is that vitamin D has no positive effect on my hashimoto. I was deficient for years on end and I had no issues whatsoever with my thyroid prior to starting supplements.
That's why if my symptoms don't reduce, i will try to cut off vitamin D supplements.
From your comments though i assume that you take vitamin D supplements. For how long? What are your current levels? Have you noticed any change of symptoms once you started whether good or bad?
I had lots of odd symptoms and asked for D blood test, it came back 61. It had been 123 a year or so earlier. I joined a Facebook vitamin D group and started supplementing 9000 D a day along with K2 ,boron and Magnesium . That was 4 months ago. My D is now 206 there is no upper range in my area and 50 is considered very low. I have dropped to 6000D and will test again next year. I am symptom free now .
I think as you age your body starts to struggle to maintain it’s self and the problems start to show.
Regarding the vitamin D, there aren't any definite guidelines. Each Dr has different opinion and no-one knows for sure. For example, you say up to 200 while on my country 100 is the maximum. The optimal here is around 50.
It would seem that 2 different units of measurement are being discussed here - ng/ml and nmol/L.
I always refer to the Vit D Council, the Vit D Society and Grassroots Health.
Between them they recommend the following levels
40-60 ng/ml or
100-150 nmol/L
depending on what unit of measurement a person's lab/country uses.
What do scientists say is the target amount? 48 world-wide vitamin D researchers agree it is 40-60 ng/ml (100-150 nmol/L).
So Hidden when you said above
Previously, everybody said that D should be supplemented till it is superhigh such as 150 or even 200!
You can see that 150nmol/L is not superhigh, it is within the range recommended by those 3 respected authorities on Vit D, and yours is 69 nmol/L or 27.6 ng/ml.
Some people cannot tolerate VitD supplements, there is no way I could ever get my level up to 200, my levels are very low and that is where my body seems to be happiest, if I supplement I become very unwell.
My wife developed muscle pain about 18 months after taking a statin for cholesterol. It works by lowering the liver's output of CoQ-a which is the precursor to CoQ-10. CoQ-10 is integral to repairing muscle. She started taking 300mg of CoQ-10 twice a day and her muscles recovered. She cut back to 300mg once a day. I hope this helps.
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