Advice re vitamin D supplementation: Hi, I have a... - Thyroid UK

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Advice re vitamin D supplementation

waveylines profile image
10 Replies

Hi,

I have a skin condition which means I dont tolerate any sun so all my vit D is obtained via supplmentation. For the last two years Ive stopped my supplementation of vit D but kept with what Im prescribed on the NHS -Adcal. Last year my level was 125nmol/L but this year it is 85.5 nmol/L reference range is 50-125 nmol.

Im think of starting some additional D3 supplementation. However am not sure how much to take and for how long. Be grateful for any of you knowledgeable souls advice. Many thanks

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waveylines
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SeasideSusie profile image
SeasideSusieRemembering

waveylines

Is there a particular reason that you are taking Adcal? It contains a lot of calcium and a little bit of D3. Calcium should only be supplemented when deficient, so has your GP tested your calcium level.

As for the amount of D3 you need to take, according to the Vit D Council, for your current level of 85.5nmol/L (34.2ng/ml), to reach their recommended level of 125nmol/L (50ng/ml) they suggest taking 2,500iu D3 daily. Retest in 3 months and adjust to a maintenance dose when the recommended level has been reached.

Are you also taking the important cofactors needed when taking D3 as recommended by the Vit D Council -

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray

Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.

naturalnews.com/046401_magn...

Check out the other cofactors too (some of which can be obtained from food).

waveylines profile image
waveylines in reply toSeasideSusie

Thanks Seaside Suzie. Ok will purchase some D3 in oil and with k2.

Yes there is a reason why Im on Adcal. It via a bone consultant due to meds that I have to be on which are stripping my bones causing significant early bone Deterioation. I have to be on the meds for 10yrs......4 yrs so far.

Yes I take k2.

My bloods went over 125 a couple of years ago and my GP threatened to stop my vit d3 meds if I didnt stop my own supplementation. Without the Adcal I get bone aches/pains. I therefore know for a fact I cant go higher than 125 but getting over a hundred they would be ok with.

Magnesium supplements doesnt work great for me makes me ill. Im pretty intolerant of it so I try to get mine from nuts. I did try a body spray too but it makes you very sticky!! Yuck!

Seeing as someone died in the uk not long ago from over prescribed vit D -albeit at a ridiculously high daily dose, am a little more wary.

Thank you for your help.

SeasideSusie profile image
SeasideSusieRemembering in reply towaveylines

I did try a body spray too but it makes you very sticky!! Yuck!

I tried that, and a gel, couldn't bear the feel of either of them on my skin. You could try epsom salts foot soaks or baths.

waveylines profile image
waveylines in reply toSeasideSusie

Thanks Susie great idea 🤗🤗.....how much in the footbath & how long shall I soak for?

SeasideSusie profile image
SeasideSusieRemembering in reply towaveylines

I've not done it myself but I've read for a footsoak use enough warm water to cover your feet, add half a cupful of epsom salts and soak for 1/2 to 1 hour. Apparently it can dry the skin so it's suggested to moisturise feet afterwards.

fibrolinda profile image
fibrolinda in reply towaveylines

Sorry to butt in but what dose was this person who died from taking too much vit d on?

penny profile image
penny in reply tofibrolinda

I’ve just looked at the story of the elderly woman who died from too much calcium after taking Vit D3 - she was taking 40,000iu per day of Vit D3. This in itself is not a particularly high dose as Dr Coimbra’s protocol regularly includes 250,000iu of Vit D3 per day but this dosage is based on body weight and there is a strict protocol for preventing hypercalcaemia, including water intake. I’ve not read of any problems with the Coimbra Protocol and he has been treating people with autoimmune diseases successfully for over 20 years.

waveylines profile image
waveylines in reply topenny

It is a high dose in the uk. She was on this daily high dose for a year -it was prescribed but if I remember correctly it was meant to have been a short course but was mistakenly prescribed long term.

When I was prescribed high dose vit D3 of 100,000 iu I had to go to the hospital to be given it. That was a monthly dose. It was prescribed at that level because my vit D level was 3 nmol.

The issue is you cant excrete excessive vit D & it can interfere with your calcium levels......that is what I was told. The bone consultant did a lot of tests when it was discovered mine was so low. This made my body release huge amounts of calcium in compensation.

penny profile image
penny in reply towaveylines

Dr Coimbra thinks that we should all be taking 10,000iu D3 per day, regardless. However, his protocol for MS and other autoimmune conditions (he treats fibromyalgia as well as RA, vitiligo and psoriasis) using very high doses of Vit D is strict and includes regular monitoring via blood tests, he also advocates drinking a lot of water to keep the kidneys flushed. There is much more about this on the internet under The Coimbra Protocol.

Kelly2 profile image
Kelly2 in reply toSeasideSusie

My you are so knowledgeable! I am taking vitD and K2 in the morning and recently (I am dieting) only after a cup of coffee!! Maybe this is why my TSH is a total mess 8,49 with the upper normal 4,67??? I was taking it too close with my Thyrohormone pill!

I am scared with this and my doctor changed my medicine in case he says I got used to it. He never even asked me when I take the vitD!! Thank you!

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