Vit D 52 (reference range unknown) but I’ve been told it needs supplementing
TSH0.41 (0.2 - 4.2)
Im on 112.5/125 for the last 8 weeks. I feel no improvements but my TSH has come down from 2.8 I think. I feel dead to be honest. I’m reluctantly on antidepressants but they have taken away my anger but I’m now a zombie. I’m paranoid, reclusive, I sit and stare for hours. I can’t do this. I cry all the time nearly every day. My friends have began to drop off and I don’t blame them. What can I do? My jaw is clenched, I can’t remember anything, I just don’t care about anything enough anymore. It’s horrible. What’s worse is I’m still pretending to people that I’m fine. I don’t currently have money to do medichecks. It’s my time of the month and I become such a mess. Does anyone have any advice to cope with my time of the month because I can’t cope with this anymore, I think it’s all related.
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Purpledreamer
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Purple dreamer. I’m really sorry you feel this way. I can relate as that’s exactly how I used to feel all the time. I’m used to it now, four years on. Others will post with advice I’m sure, but from me, I wish you all the best. Know you are not alone. Big hug.
Do ring up GP re eption and ask for a print out of your results that include the lab ranges. Post the results here for best advice on vitamin D and all the other vitamin s. You'll get great help. It's very likely low vitamin levels causing problems. If vitamin D is low then others are likely to be too so you must get a copy of results and don't just take GPs word for it.
Lots of us have got better by optimising vitamin levels and making other small changes.
My last D2 was at 91... Ranges 30 - 100 ng/mL Doc said he didn't want me to get over 100... having no thyroid gland.. it's kind of a trip to know the "axis" between the Hypothalamus the Pituitary & the Thyroid, the all have to work in concert... TSH was low, but endo said if he lowers my dosage again, my TSH will come up.. Could be interesting! ♥
I will do that Thankyou so much for responding to me. I’m going to begin with vit d and maybe after a few weeks try adding some magnesium at night as I’ve read that can help with depression and sleep. I’m hoping to get more bits done through gp but if not I will go the private testing route. It really is time I take control of my health. You have all helped me see I’m not alone and we can work together. X
Magnesium helps vitamin D absorption as well as helping with sleep. I also take K2-MK7 from natto. It prevents calcium from lining arteries and strengthens bone apparently.
Ps. Trust us, you will have more good days, if we marked each day out of ten it would remind us and we all have bad patches
I'm going to try cbd what's the harm
Vts so important for sure. And as they say everywhere now, mindfulness. If we keep to one day at a time and mindfulness I feel more control. Pls don't forget magnesium too xx
Firstly, Biggg Hugs to you!!~ I Completely understand!.. If ya catch up with a couple of my posts you may see this... Firstly, I am congenital/central hypothyroid, meaning I was born w/out the gland..and have NEVER known what "Normal" is, In my almost 58 years. I have been on, Armor.. first, then Synthroid. Now Levothyroxin.. I have ranged in those meds between .112 - .150mcg...I am also a cancer patient...waiting to be told If I'm in remission.. + a Hormone blocker, because my breast cancer was estrogen receptor positive 95%... not quite a year outta chemo and radiation, so Still have "chemo brain/fog" Now my endocrinologist tells me he has to lower my thyroid dose because I am over medicated..(This was on Sept 10, 2019 honestly, my whole life this has been confusing to me, seems things work in reverse of what you'd think... So.. my endo lowered me to .137 mcg.. I told him that I had quite the surplus of .150mcg, as I had just had two pharmacies send refills... so the endo, says ok.. so take the .150 mcg 5 days a week til you run out...which put me at .107mcg.. Biggest drop ever, at first this dosage really brought me down.. depression, immobility, just flat didn't care that my house needs a DEEP clean.. that my dog needs to be walked... sitting here on my couch with a "1000 yard stare".. but then all the sudden, last week mid week today being Nov 1, 2019.. I started feelin a bit better...workin on the whole body/liver detox.. brain has good days n bad..
People have been tellin me since I was diagnosed with cancer to "be positive" .. "you're strong, you can do this" etc.. I am not dissin my loved ones for saying these things as they don't know what else to say.. and I am strong.. but being strong for everyone around you can be exhausting.. when you couple your usual.. thyroid issues or any other things goin on, with cancer our support folks feel helpless, especially if there are miles between.. & Personally, I SUCK at askin for help from Anyone!!!
I guess what I am saying, is when you open your eyes in the morning.. I think you have a choice... Life is miserable sometimes, but do NOT embrace the misery.. Embrace that you have another day on the right side of the dirt... Be grateful for what you have!.. I am NOT trying to diminish your pain so much at ALL, as maybe give you another way to go and what I've learned...
I will be 58 years old on the 10th of this month.. and I do NOT look at the year to come, because I could step off a curb and get hit by a bus tomorrow.. I embrace the year that I just made it Through!!!, Cancer, thyroid etc and other chronic pain... Spike the football.. do an end zone dance.. snoopy dance and roll on.. I KNOW it sucks.. trust me I totally get how you are feeling right now.. I hate taking drugs.. I take a few supplements and my thyroid.. and Cannabis for pain... I hate opiates with a passion.. I'm not here to blow sunshine up your bum.. I am here to tell you that being miserable is a choice.. at least emotionally!.. You choose to have a Great day.. embrace it. or to say Screw everything I'm goin back to bed.. Been here.. Know this.. and I bet, there are a LOT of folks here, if they admit it, have gone through some of this themselves! ♥
I guess what I am saying, is when you open your eyes in the morning.. I think you have a choice... Life is miserable sometimes, but do NOT embrace the misery.. Embrace that you have another day on the right side of the dirt... Be grateful for what you have!.. I am NOT trying to diminish your pain so much at ALL, as maybe give you another way to go and what I've learned...
I will be 58 years old on the 10th of this month.. and I do NOT look at the year to come, because I could step off a curb and get hit by a bus tomorrow.. I embrace the year that I just made it Through!!!, Cancer, thyroid etc and other chronic pain... Spike the football.. do an end zone dance.. snoopy dance and roll on.. I KNOW it sucks.. trust me I totally get how you are feeling right now.. I hate taking drugs.. I take a few supplements and my thyroid.. and Cannabis for pain... I hate opiates with a passion.. I'm not here to blow sunshine up your bum.. I am here to tell you that being miserable is a choice.. at least emotionally!.. You choose to have a Great day.. embrace it. or to say Screw everything I'm goin back to bed.. Been here.. Know this.. and I bet, there are a LOT of folks here, if they admit it, have gone through some of this themselves! ♥
Love your positive attitude to life - I’ve got a friend who takes a hormone blocker following breast cancer - she hasn’t got half your other problems - well she hasn’t got any but boy is her glass half empty. I’d love to let her read the above but she still wouldn’t get it.
I agree horrible things can happen in one’s life but it’s up to you how you choose to react - unfortunately she has chosen to be miserable about everything and can’t actually see that she may have had cancer five years ago but she is in remission and compared to a lot of people she has a very good life - I feel like the person trying to ‘blow sunshine up her bum’, I know now it’s just a waste of time.
All the best to you for the future, I love your spirit ☀️
I also understand how your friend is feeling, it's kinda hard sometimes to see the good through the bad... the stuff I'm taking as a hormone blocker is called (generic name I think) Anastrozole... and it has a LOT of the same symptoms of menopause.. headaches & bone pain are the worst... there are times when I am sick n tired of bein sick n tired... just gotta keep pluggin along, the only way to get through the darkness is to Go Through it to the other end of the tunnel... and sometimes that's easier said than done.. My sanity requires that I keep my head up!.. it would be easy to slip into that darkness...
My family, when they heard I had cancer, they couldn't believe that I wasn't freaking out... I'd just tell them "to what end" freakin out on top of all else could be detrimental.. my hubby used to tell me, (lost him in 2015) to "Suck it up buttercup" also easier said than done at times!! Hang in there, you have friends here!.. it's nice to be able to come in here feelin what I do, and not being alone through it!
My only concern is the hormone blocker perhaps messin with my thyroid meds... hard to say sometimes where the one ends and the other picks up.. it is what it is I guess... soo.. keep on smilin, it's half the battle!.. smiles!! ♥
Wow, just hearing that is very validating. I want to take the time to respond back but can’t at the moment I literally posted that off before crashing out last night, I had regretted it this morning until I read the supportive comments. Thankyou x
Hey Larai, the funny thing is I keep reading this post and it is helping me more than any tablet. I always knew it was about perspective. I often loose that perspective though and you and a few events over the past few days have helped me find it again. My mum has just been through a year of breast cancer and like you had chemo which..... well.....huge love direct from me to you xxxx hers wasn’t eastrogen related though so she didn’t have hormone blockers. She was so positive to me but I know that was to protect me. There was one day where I strongly felt my grandpa (her dad who’s dead) telling me just to go and give her a hug. I did and she was in the bathroom with no hair (she’d never let me see this before) and we hugged and cried and that moment I loved her more than I have ever loved her she was so vulnerable and scared bless her. I don’t know why I’m saying this but the Truth feels very loving and connection literally feeds the heart. I so hope that you are ok and can find the truth. My problem is often I don’t know what’s me, what’s the medication, what’s just my hormones so I very easily come off kilter and then my natural current takes me away. But I’m back to swimming now and not allowing myself to drift away again. Even if I stay at the same point the swimming will make me stronger and you and everyone genuinely helped me with this. You a stranger at a keyboard. Pretty magic really xxxxx
Hi hon.. I am glad my post helped...My first taste of breast cancer came with my mom... in 1992, her cancer was also estrogen fed... every time I saw her, I'd break down in tears.. She was stronger than I, She is still alive, and will be 79 in January!! ... Flash forward to 2018, I guess for me, I always knew it was more a matter of when than If I got breast cancer!.. Currently, the issues are some depression that I Fight EVERYDAY!.. telling myself I can do this just before my feet hit the ground, and I take my thyroid dose for the day, then grab my coffee, and attempt to wake up while reading my mail.. I woke up to yours this fine morning.. and I am so happy to hear that it helps.. Thank you.. I find myself even re-reading it this past couple weeks.. Yes!~It's a choice.. but sometimes.. it's just easier to stay in bed.. also something I struggle with, But I keep telling myself, I'll meet some new and different thing, or person!! Who am I going to meet today.. Be it online or off...
It's fall in northern Nevada.. Beautiful blue skies and sun.. but cool and crisp at the same time... Halloween has always been my fave holiday, and fall my fave season.. Did you know, the colors symbolizing fall are orange and black? The orange signifies harvest or birth.. and the Black signifies death.. it doesn't mean literal death but spiritual, as in, out with the old and in with the new!.. and that is what life is... We toss out the old.. mode, feeling, etc.. and we wake up to the new... a rebirth of sorts... Thank you so much for letting me know my post has helped even in some small way!.. Biggest of hugs to you! ♥
Hi there. If I’m honest you sound like you’re suffering from depression. Before I was diagnosed I had depression and bad anxiety - I’m fine now by the way. After diagnosis I was told that about half of patients with thyroid conditions have experienced depression/stress/anxiety before or after diagnosis. So what you are feeling is exceptionally common. Take the anti-depression meds - they help your levels restore themselves by blocking wholes in your brain where the good hormones leak out. But primarily work on your thyroid condition and get the right treatment for it so that you can suffer less, and your depression will lift. There are biological reasons why thyroid patients have depression as well as the normal “for goodness sakes my life sucks” thing. I feel every inch of your pain. But it will get better believe me, I’m proof of that. Keep posting and sharing your difficult feelings on this forum because we will be there everyday to support you. X
Thankyou, sharing really does help and reading your experiences is interesting too. I’ve had two major episodes of depression in my life, one at university about 20 years ago and one after I had my child (this was prob due to them lowering my dosage back after I gave birth) any change up or down is always very difficult to manage. It’s such a weird thing because of you can’t trust your own mind then it all gets very shaken. I do know diet/sleep/gentle exercise are massive in keeping me on the right path. That and talking to people who feel or have felt similar.
Agreed. Anyone can suffer mental health problems. Anyone and everyone. Don’t be hard on yourself. Especially because of our thyroid problems, it makes it much more likely too. Ride it out. You’ll be ok. Be patient.
My vit D was the same as yours, and I can confirm that until I got that up much higher as well as having my TSH under 1, I felt terrible, my moods were a disaster.
If your problem is low vitamin levels then anti-ds won't help. If you're now supplementing vitamin D you'll likely get better as low vitamin D coupled with thyroid disease can cause depression.
Anti-ds can have side effects which can be confusing so be vigilant and report any changes to your doctor. It can be difficult to identify side effects as people can think they are thyroid symptoms and doctors are often reluctant to attribute them to the drugs.
Until you can get your low vitamins and thyroid hormone levels sorted out, you need a more effective antidepressant. Call your doctor and tell him how you are feeling and what you are feeling. You are not supposed to have memory problems. You are not supposed to feel like a zombie. You are not supposed to feel like crying all the time.
Ask him to switch you to a different medication. He will resist. He will tell you that you have to give it a full 6 weeks before it's working in your body. Push back. Tell him life isn't worth living like this. Tell him, "I need a change of medication and I need it NOW."
a long time ago now i felt v low, and GPs had me on 50mg of whatever anti d it was, and didnt know what to so they referred me to a psychiatrist. i was desperate and would try anything. the psychiatrist wrote and put up to 200 mg. By the time i got to see him , i was fine again. He discharged me and said that the GPs needed to be more confident in dosing. i know its common to think of anti -d s as bad. but sometimes you need the leg up outta the hole.
Very true. I was a basket case when the first psychiatrist I saw put me on amitriptyline (one of the tricyclics antidepressants.) They are cheap but have huge anticholenergic effects. Not good for hypothyroid patients. I left his office in tears when he told.me I had to stay on that one for 5 more weeks. I got home and got angry. Called the.office and insisted on an immediate appointment with any other doctor. The woman i saw the next day did something the 1st doctot did not bother to do. She took my pulse and then agreed with me that 120 was not a healthy number. She switched me to Prozac. Big improvement. Back to normal.
Get your T3 test results for us to see! I know that keeping positive helps etc but I defy anyone not to get depressed feeling the way we do. Anti depressants may help but they are not the ultimate answer so tell yourself you are going to get help from this forum and get yourself better with all the tips and advice. Normal health will smooth out the depression. I’m just coming off my anti d’s. Took the just to shut the Drs up and ended up on them for years. Dulls the anger and made me not care I was sick. You are a sick person who needs treatment. No amount of positive thinking will change that, get busy getting determined to get well. I wish you well purple dreamer! You can do this!!
So true it does dull the anger. But another side effect which comes a bit later is just not caring and that’s not right either. I really like the sound of cracking down on health and hopefully the need for the antidepressants will lift. I hate the idea of blocking any true feeling, I know some people wouldn’t agree and I know they are very helpful to a lot of people and are no doubt helping me too but it’s just a personal thing how comfortable you are with being on them I suppose. I can do this!!! You are right!!! Xx
I think they definitely helped me at a point to a degree and perhaps they help you too and you may have been worse without them. But I know generally outside of this forum, I kinda feel like the message has always been that you can conquer this with a certain type of attitude which I feel minimises you’re experience and invalidates how dreadful you say you feel! I truly hope you regain your health. It’s easy to be happy when you don’t feel like death!!
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Endo wants to remove all drugs to see how sick I get
ITS ALL BACK AND I AND SO VERY SAD
So we're all fine then! Maybe a poem for Edinburgh!
advice please - not so optimal after all 😳
