Thyroid UK

Extreme sadness - is it real or this damned Hashimoto’s ?!!

I’m going down down down this last 2 weeks. I was just hanging in there when my appointment with my endo was put back 2 weeks. Now it’s tomorrow, Finally! at 7AM FFS! Sigh.. that’s the problem with “top of their field” specialists... always travelling and in demand. I know I usually sound pretty positive; I Try to Stay Positive while I’m “on the journey “ to being well again... I’m heartbroken though. All the Time it’s taking. All the time being sick and thinking it must be me, finding life so hard. And then all the doctors! about 18 different specialists in 18 months trying to work out why I wasn’t getting better... ooh I know I’m in good company here, and I’m on the right track — surely!! I mean I think I Finally have a good endo who prescribes NDT and T3 for me, based on my Symptoms... and I’m Gluten Free, Alcohol Free, unhealthy processed food free, home-made yogurt coming out the wazoo, and a ton of daily supplements as recommended taken hours apart on a full / empty stomach As recommended for almost 6 months now... I thought the introduction of T3 7 months ago finally kicked the fog and depression but Lordy me, I don’t know. I just feel sooo sad. I’m worried the endo won’t have any answers tomorrow— don’t worry, I’ll post my latest bloods as soon as I get them! I’ve now tried (over the last nearly 2 years) T4, T3+T4, T3, and now just T3 and NDT. Still can’t get better that about 40-45% on a rare good day. Today I feel about 30% well... Sorry, this isn’t a very positive post. I don’t know what to do anymore. I need help.

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Sorry your feeling down. Have you had full blood test recently to see if levels needs adjustment

Low vitamins too, especially vitamin D in winter

Post results and ranges and members can advise

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Thanks SlowDragon, I will when I get them, at least the TSH, FT4 and FT3. I’ll look up my latest D too. I do remember it’s in range, not at the low end but not optimal yet either. And... I’m in the sunny Southern Hemisphere, in the middle of Summer. Thing is... given I’ve conversion issues and I do... what do the bloods matter? Isn’t it what actually gets into the cells and how you feel? Ceasing of symptoms?

Anyway, I get the results tomorrow. I Feel radically Under-medicated today, still. A list of symptoms top of which are hair falling out, utter exhaustion, depression, tinnitus and agony-tight calves ankles and feet - one of which is going numb. On the plus side, now I’ve given up sugar my overall all-over body aches have stopped, miraculously! ... I just have a few vert specific Pain areas.

I’ve never felt noticeably improved for any more than a week or nearly two at a time, after each increase/change. And then down I go again. The most marked positive changes have been following the introductions of T3 in May last year, then NDT in November.

Well, I shall get some more facts tomorrow, then see where we go from there. Thank you for your reply SD. I don’t want to be alone with this; it’s bleak. Even in the middle of Summer.

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Tinnitus is linked to low B12. Get B12, folate, ferritin and vitamin D tested

Vitamin D, with thyroid problems we need more than Sun can give us, unless correctly treated

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I will post what I have on the weekend, then see what you think. Would appreciate your thoughts SD.

I’ve been taking 5,000 mcg sublingual Methyl B12 for about 4 months too. And easy absob iron, and magnets, and calcium, and vit C and k2 and zinc and selenium — conscientiously for 4-6 months... Feels like I’m not absorbing or able to metabolise anything.

I just hold onto the hope that if I can get my Hashimoto’s meds right then the rest of my efforts will start bearing fruit.

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He he magnets??!! Magnesium!

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Hi SlowDragon , I’m going to post my results on a new thread now, and would really appreciate our thoughts. Thanks, BBX

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Do you thnk you might suffer from SAD. I know I do and I hate the winter especially when skies are grey. Not so bad when we have blue skies and sun, not bothered so much about the cold. i always take D3 as low levels under 70 are no good to me. Hope things feel better soon. I totally empathise with the long, long journey and waiting for appointments etc only to be disappointed again.

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Thanks for being there Crimple, and your kind empathy. Yes, seems like I have SAD even in the middle of a sunny Sydney Summer. I’ve been taking 3-5,000 IUwhatevers of D for 6 months now. I’m very conscientious on all the supplements recommended here... After all the struggle and effort and doctoring... I feel powerless in terms of my health — which is everything, isn’t it. Still. More results, consultation and guidance, a plan, tomorrow. I shuffle on. Good night, sweet dreams. Or happy Friday where you are. BBx

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Let us know how you get on. Lotika x

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