Hypo symptoms back : Symptoms came back after... - Thyroid UK

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Hypo symptoms back

Krisinua profile image
42 Replies

Symptoms came back after doing ok on wp thyroid fir a few months. The pills changed how they look and smell my group said the same happened with np thyroid so I switched to armour last week and my symptoms are still here very hoarse voice very bad pain mainly feet, hair starting to fall out still , eyebrows becoming sparse again after growing back on wp and t3 lionthyronine. Should I up the dose or change to the synthetic t4? I was taking 1 and a half pills of the wp thyroid 65 mg and now an on armour 60mg 1 and a half a day. And been on the t3 med the whole time 5mg twice a day . Last labs right before the wp stopped working showed my reverse t3 went down to 8 which is good I guess, but my free t3 and free t4 were a little low as they were before thyroid meds. Do I need higher dose or should I switch to the synthetic and the t3?

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Krisinua profile image
Krisinua
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42 Replies
cyntexas profile image
cyntexas

Krisinua, I understand your struggle! I take Armour Thyroid 90 mg x twice a day PLUS Levothyroxine 50 mcg twice a day. I have found that I need both meds for different reasons! I cannot take them all at once, so it works for me to take them morning and night! I suggest you be patient and go slow to find what works for you. I have taken years to come to this knowledge of what works for me. Give the Armour Thyroid time (at least 3 months) to see if it helps you. Then if you need the synthetic take time to add it slowly to see what works for you. Prayers for you to be able to figure out what works for YOU! Don't give up, it is a process not an instant finding.

Krisinua profile image
Krisinua in reply tocyntexas

I never heard of taking levo which is t4 and then armor which is t3 and t4 together?

cyntexas profile image
cyntexas in reply toKrisinua

Levo is T4 and Armour is T3. You are right, it is different but taking T3 and T4 together works for me!

waveylines profile image
waveylines in reply tocyntexas

Thats a little misleading cyntexas. Armour has all the thyroid hormones in it of which there are four!!

Krisinua profile image
Krisinua in reply tocyntexas

Armor is t3 t4 and other hormones

Krisinua profile image
Krisinua in reply tocyntexas

I really meant so I switch from armor to levothyroxine? I felt and saw a difference with just a few weeks of the wp thyroid until they changed their pills and they stopped working and look and smell completely different than the prior month. Yet they said they did not change anything.

cyntexas profile image
cyntexas in reply toKrisinua

Having T4 and adding T3 together works so well for me!! Be aware that wp Thyroid can change. It is very frustrating that these meds are not stable! Be aware that this happens and also take into consideration that you might need both T3 and T4! Most Doctors need to be helped to understand this. So do not "switch from Armour to Levothyroxine" but consider that both might be beneficial for you?

Krisinua profile image
Krisinua in reply tocyntexas

But armor HAS t3 and t4 in it already. I am confused by your post

jamesal0 profile image
jamesal0 in reply toKrisinua

Hi Krisinua, the change to some Desicated thyroid's (WP etc), was to add a tiny tiny bit of Synthetic T4 Levothyroxin and Synthetic T3 Liothyronine. My understanding is this was done to counter the argument from industry, that desicated thyroid is actively inconsistent (and should be banned). So they can guarantee 65mg (1 grain) has exactly 65mg of active ingredient. Not 63 or 66 etc, they added a tiny tiny bit of synthetic to each batch.

I take about 30-66mg WP Thyroid and 50mcg Levothyroxin daily. And you are right the new WP tastes different. But I feel it's still sort of works the same.

You may want to think about optimizing your NDT dosage. This basically means increasing your dose by 30mg and seeing if you get any side effects/feel better. Run like that for a few months and then increase again. At some point you will get heart palps or the tingles and you will know what your current upper limit is. Drop back by 30mg and this will give you a TSH of 4ish. You repeat this process every time you feel bla. Most people (and I'll get spammed here) need around 2 to 5 grains per day when optimal. It changes Summer to winter, need less in summer and more in winter, need more on days you jog 10km etc.

Also make sure you are upper range B12 and hormones. You can't processes T4 without them.

James

Krisinua profile image
Krisinua in reply tojamesal0

Tsh to 4? My tsh at last lab was .68 I was told it goes down on ndt and I asked rlc labs what they did to change it and they said nothing. I also asked the pharamcist as they are required to report changes to drugs and they said they were not notified of any changes if what your saying is true how do u know this? That is not legal of them to do that.

jamesal0 profile image
jamesal0 in reply toKrisinua

if you have .68 I would be optimizing down not up (take less). Thyroid is funny. Low thyroid you feel bla, then you get optimal you feel ok (not perfect) then high thyroid you feel many of the same things you felt with low thyroid. So it can be a little deceiving. But I'd be going down and only doing NDT, dumping the "5mcg Synthetic T3 Liothyronine". Pig thyroid has more T3 in it than humans need.

Krisinua profile image
Krisinua in reply tojamesal0

Really? But I felt more energy after starting the t3. My reverse t3 is good at 8 its the bottom number of range. My free t3 and free t4 are slightly low that's why he raised my ndt by half a grain but I still am feeling bad and my hoarse voice came back why does this happen and does it happen to anyone else?

waveylines profile image
waveylines in reply tojamesal0

Jamesal10 its well known that ndt supresses TSH. TReating by the TSH is known to lead to under treatment. What is more relevant id the actual thyroid hormone level: ft4 & ft3 - they should be in the upper third of the range, some people heed thrm at the top of the range to feel well.

Donna5658 profile image
Donna5658

If you go to a website in the US called Stop The Thyroid Madness (STTM) you will see that hundreds of people are having similiar problems with NP Thyroid. They are experiencing a dramatic return of hypo symptoms and their lab tests bear this out. They also say the pills have a really strong, chemical smell and taste.

Sorry to be ignorant but what is WP?

SeasideSusie profile image
SeasideSusieRemembering in reply to

Another brand of NDT - WP Thyroid made by RLC labs

in reply toSeasideSusie

Thank you x

Sweetpea1157 profile image
Sweetpea1157 in reply toSeasideSusie

Thanks SeasideSusie ☺

Angel_of_the_North profile image
Angel_of_the_North in reply to

It's a make of NDT.

Sweetpea1157 profile image
Sweetpea1157 in reply toAngel_of_the_North

Thank you Angel_of_the_North ☺

Sweetpea1157 profile image
Sweetpea1157 in reply to

Snap !

Sweetpea1157 profile image
Sweetpea1157

Snap! I was ignorant aswell Jnetti

Sylvia22 profile image
Sylvia22

Dr skinner put me on T4 and T3 years ago and Iwent overactive. do keep a close eye on how you feel. It was quite bad for me..

Krisinua profile image
Krisinua in reply toSylvia22

What happened to you when you went overactive? I felt better after adding the t3 and then the pill change and everything is bad again. Although only the first 3 weeks of taking wp thyroid did I feel better and start to lose weight had energy like never before but then it wore off even my feet pain of 14 years that's ruined my life felt better for those 2 or 3 weeks but everything came back even before the pill change that's why he added the t3

Sylvia22 profile image
Sylvia22 in reply toKrisinua

Well I became very thin couldn’t sit

Still couldn’t sleep and thought I was going mad. My GO said it was nothing to do with Thyroid mess. Eventually went private and was told I had been overdosed. Took me good couple of months to return stable. Just keep an eye on how you feel

Krisinua profile image
Krisinua in reply toSylvia22

I've never felt close to that way I'm only taking 60mg and a half of the armor and 5mg twice a day if the t3 I wish I could lose weight I've been gaining like crazy and am not close to 300 pounds it's awful never been this big in my life I thought getting on thyroid meds made u lose weight

waveylines profile image
waveylines in reply toKrisinua

Sadly thyroid treatment is not a weight loss treatment. In the past some people took it as they thought theyd loose weight......nit a great idea as if you dont need it will cause other problems!!

HypoZona profile image
HypoZona

WP and other NDT do very from time to time, so that may be an issue. But, finding your dose is a process and can take years as the body adjusts. If you have been feeling bad for a few weeks but have been taking the same dose for several months then most likely you will need a dose adjustment. In general the best results eventually come from NDT like the WP, and adding t3 if necessary. Since your t3 is lower then you can adjust that by increasing the WP or by increasing t3. But i wouldn’t increase both at the same time. Blood work is important, but go off or your symptoms. so take it slow with dose adjustment. Reminder: if you increase WP the benefits will take longer to show up than increasing T3.

farm_girl profile image
farm_girl

Sorry to say this, but your info is not correct. The problems have been with Naturethroid, also made by RLC, NOT NP whichis made by Acella. Please go back to STTM and re read. I had problems with the new formulation of Naturethroid. Switched to NP and no problems, like many many others.

Krisinua profile image
Krisinua in reply tofarm_girl

I was in a group who was for np w 60k members tons have been reporting that np changed recently and no longer works.

Krisinua profile image
Krisinua in reply tofarm_girl

This was the last few weeks the complaints about NP no longer working and smelling and looking different.

waveylines profile image
waveylines in reply tofarm_girl

Actually farm _ girl there is now a load of people reporting problems with Acella's NP in the last month. I switched to NP after WP stopped being made. Am gutted by the reports on stopthethyroidmadness. Apparrantly Acella say they have extended their facilities due to demand. All sounds horribly familiar. The tablet now are described as grey with a vile chemical taste and no longer dissolve under the tongue...... Ive still got the old batches so ok at present but watch out......sigh. No idea what to move to next!! ☹️😩

farm_girl profile image
farm_girl

Krisinua, I am so sorry. I just went on STTM and saw Janie's video. This is unbelievable. Janie has been raving about NP ever since Naturethroid went south. I've been on it for months with no probs after crashing on Naturethroid. Thank goodness I have a stash for now, but this is so depressing. Thanks for the heads up. Fingers crossed they sort it. X

Krisinua profile image
Krisinua in reply tofarm_girl

People need to be reporting them to the fda so they get investigated but Jamie got mad at me for mentioning that he is very very strange

Krisinua profile image
Krisinua in reply tofarm_girl

Wait what video??I thought u were talking about Jamie who runs the Facebook group sorry.

farm_girl profile image
farm_girl in reply toKrisinua

Sorry, just found this. Facebook STTM. JANIE. She wrote the book, and runs the site. She did a video blog (you can find it on the facebook page)on the new problems with NP. Problem with going to the FDA is they are worried it will give them cause to ban NDT..it does seem main stream medicine is doing everything to discourage it's use.....hopefully they will sort this latest problem with NP. I am doing great on it!!

Krisinua profile image
Krisinua in reply tofarm_girl

Ues I know they want to keep people sick so they have a group to run DUH. Report it to the FDA inmediately.

Ossuryak profile image
Ossuryak

Natural thyroid has T3,T4, T2, T1, in it . For some people the ratio of T3 to T4 in Natural thyroid is too high for them so they take a little less Natural thyroid hormone and add a little bit of T4 only (levothyroxine) to daily dose ,that brings the T4 up to where they like it with out increasing the T3. . We seem to be all effected differently so it's adjust it in small amounts slowly until you feel right.

Krisinua profile image
Krisinua in reply toOssuryak

Where did you hear this from?

Ossuryak profile image
Ossuryak

It comes from years of research reading many books on thyroid by so called experts and from people reporting what they are doing with their own thyroid medication,I have also experimented with my thyroid medication and now take Natural thyroid 32mg 8.00am , 37mg levothyroxine 3.30pm, and 32mg Natural thyroid10.30pm.If i make changes I do it in small doses gradually and go by how I feel plus test results. What works for me may not work for you, we are all very individual.

Krisinua profile image
Krisinua in reply toOssuryak

My dr said this us not true where proof

Ossuryak profile image
Ossuryak

I think it best you do your own research , we are all effected differently by medication , what works for one does not work for all.

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