Hi everyone found this forum and thought I would come on to see if anyone had similar experience as I have done probly the worst thing I could do and Google this and thinking the worst
Few weeks ago our 3 month old had blood tests which shown a low thyroid level, peaditricitan spoke to endo who said as our baby was sick when born this would be typical and the thyroid could just be recovering, however bloods were re done and the level has gotten lower I think she may have said a low TSH level?
Now we have to go for blood tests tomoro which as far as I understand entail him getting a blood test done then steroid injection then more blood tests 30 minutes later and 60 minutes later
Does anyone have any clue what they may be looking for here? I can't find much information online referring to babies
Thanks
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Moz19
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The BTF have a lot of info on and advice about children with thyroid issues. Have a look at their site and I’d give them a ring in the morning.
If your baby does have a thyroid issue, they will be treated with thyroxine and should be able to live a full and healthy life.
There have been many stories in their magazine about adults who’ve had thyroid issues since babyhood and they offer a really good range of advice and support to help
Your child understand the importance of managing their health as they grow up.
First of all I'm sorry your little baby has hypothyroidism and trust he/she gets the best treatment. I'd ask to referred to a Children's Hospital, enquiring first of all if they have knowledge of children who have dysfunctional thyroid gland.
If baby is due a blood test it should be a 'fasting' one so am not sure how that can be achieved, but would guess before next feed is due and before hormones are given.
Moz19 The test you have described sounds like an adrenal function test known as a short synacthen test. It is a test of adrenal insufficiency which can be used as a screening procedure based on the measurement of serum cortisol before and after an injection of synthetic ACTH (also known as tetracosactrin). Your baby's health is being given prime importance right now and there is no need to worry about going to a Children's Hospital at present if your local hospital has paediatric Drs and/or Unit. My youngest son was born very very seriously ill with an X-chromosome related disorder, and he (and we) received excellent care at our local hospital who gave us open access, which meant that any time "we" decided he needed to be admitted to the ward we simply presented ourselves and that is what happened. He also was taken by ambulance as required, to a hospital a little further away to have different tests in their specialist neurology dept, so he was given all the investigations he needed. Subsequently he also was overseen by GOSH too but that's because conditions such as his are potentially life limiting, but the majority of his care was local and excellent. He is now 28 and very healthy, and ironically it his elder brother who has severe Crohns and has been through the mill. So don't worry, let your baby have the test, listen to what the staff tell you, and ask all the questions you need to ask. Someone here posted the other day that they had congenital hypothyroidism so perhaps they will see your post and reassure you that they are doing well nevertheless.
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