Nicole1027 in reply to Schristie19925 years ago

Hello

I was reading your post and wanted say that my doctor started me on 25mcg of Synthroid and kept me on that dosage for way too long!!! I started having bad side effects until I reached out to someone on this website who let me know what to do. I was on 25mcg for 3 months when my dosage was supposed to be increased in 6 wks.

When I finally went back to the doctor he only increased my by 1/2 tablet for a total of 37 mcg!! Which still wasn't helping!! I am done with traditional doctors! I am now in the beginning stages of treating myself and this will also help me to save money that I have thrown away on doctors. I just recently ordered NDT from thailand and waiting for it to arrive. We all have to take charge of our health!

shawsAdministrator in reply to Nicole10275 years ago

I much prefer self-medicating due to the fact that I have become well again.

Also on the forum when we learn that there are options of thyroid hormone replacements instead of the 'one size fits all' (i.e. levo) comes as a surprise. Of course many do recover their health on levo which relieves their symptoms (I have met people who have had no problems with levo) but for those who remain unwell and have a life of difficulties because doctors hands are tied as they've had to do as they're directed. Also there is the danger that these patients might develop other more serious conditions due to not being on an optimum dose being restricted due to the TSH being in range.

Reply (0)Report

SlowDragonAdministrator in reply to Schristie19925 years ago

I suggest you ask about this on PAS healthunlocked- they are the experts on PA

I would agree with SaggyUk, and thought testing for PA more likely if young, not less

healthunlocked.com/pasoc

b12deficiency.info/signs-an...

Clutter in reply to Schristie19925 years ago

Schristie1992,

Being more common in people over 60 doesn't preclude younger people having PA. Your GP should do the requisite tests to check. The PAS forum can help you with what you need to say to your GP.

Schristie1992 in reply to Clutter5 years ago

Thank you. I’ve put a post up, no replies yet 🙂

Reply (0)Report

shawsAdministrator in reply to Schristie19925 years ago

Your doctor like many other doctors who are treating patients seem not to have a clue about the seriousness of below range Vit D and Vit B12 - these are not strictly hormones but pro-hormones and for B12 in particular (I was diagnosed in my 40's by a good doctor who wondered why my blood looked a bit strange). I then said my mother had P.A. and I was promptly sent for a test which came back positive. So I was fortunate to have no clinical symptoms at all as I had seen the doctor for other reasons. Very low B12 can lead to dementia as well as lots of other things. This is an excerpt. We have to read, learn and ask questions if we want a healthy life, free of clinical symptoms where possible:-

There is a growing relationship between multiple sclerosis, which involves the disintegration of myelin and brain white matter and vitamin B12 deficiency. Finally, B12 is involved in approximately 100 functions including DNA, RNA, hormone, lipid and protein synthesis.22 Aug 2013

Are You Vitamin B12 Deficient?- Hormones Matter

hormonesmatter.com/are-you-...

Saggyuk in reply to Schristie19925 years ago

I know and I wish I could say it was true but many of us here on the site are here because their docs left them ill and in an awful condition.

Anyway - here's a link to the NICE guidelines which are the ones they are supposed to follow and it quite categorically states to determine the cause of Low B12. If your diet if varied and not starving yourself or a vegan, then the cause should be determined including testing for pernicious anaemia. The other likely cause can be stomach conditions which prevent you absorbing all nutrients such as Coeliacs and other inflammatory bowel conditions in which case you should be referred to a gastroenterologist.

cks.nice.org.uk/anaemia-b12...

You can show him this if necessary to ensure you get the testing. It also explains how you should be treated - which is not as simple as just two weeks so have a read.

Here's some info on the condition.

pernicious-anaemia-society....

Here's a video of some of the worst case scenarios - this isn't to scare you as is worst case scenario (and contains of lot of info you need to know whether PA or not) but it's so you realise that it's really important to push the doc to get to the bottom of it if no obvious cause as you may be relying on the doc for those injections.

youtube.com/watch?v=QqjyAeO...(Not working as expected?)

In many of us, it is often more likely to be stomach issues which can be resolved if stomach issues are resolved or supplemented but PA needs to be discounted as even supplements for B12 are likely not to be absorbed.