I have been very unwell the past year and trying to work out what´s wrong. I changed doctors a few times as I never felt confident in the ones I had been seeing and had begun to suffer from seizures and odd episodes where I was not in control of myself and could never recall the day after the "episode" had occurred.
I eventually found an endocrinologist here on the island ( I am on Fuerteventura) and thought that would solve everything, however all he did was look at my TSH saw that I was taking NDT and that my TSH was suppressed and change me over to Levothyroxine and then after 2 weeks reduce the amount from 150mcg to 125mcg.
My last blood results are as follows
03/05/2019
TSH 0.03 μU/mL range 0.35 - 4.94 μU/mL
He changed me from 3 NDT to 150 Levo
07/06/2019
T3 LIBRE
2.3 pg/ml range 1.4 - 3.5 pg/ml
T4 LIBRE
1.2 ng/dl range 0.71 - 1.85 ng/dl
TSH
0.09 μU/mL range 0.35 - 4.94 μU/mL
I was then changed from 150 Levo to 125 Levo
The worse thing is that I have gone from being able to cycle and walk to not being able to do anything at all.
My body feels so heavy and difficult to use , even typing this is difficult and tiring. My arms are as if they belong to someone else and are so heavy to lift.
My memory is almost non existent too and all I want to do is sleep and I could easily sleep all day long. I have been going to bed at 9pm and then not getting up until at least 11am and then falling asleep if I lay down and would only awaken if someone woke me..... I am so tired!
Any advice would be gratefully received. Just to mention that he had changed me from the NDT because of the seizures etc but after lots of reading over the past 2 days I believe I might have something called Hashimotos encephalitis
encephalitis.info/Default.aspx
we had called them today and gone through all my problems with them on the phone and they think it could be too so going to go see a specialist they have recommended, once I gathered all the data of everything that has happened so far.
Would really appreciate some feedback on my results if you don´t mind though
My auto immune antibodies are
AUTOINMUNIDAD
range
Ac. anti-Microsomales 13.1 UI/mL * 0 - 10
En blanco
Ac. anti-Tiroglobulina 163.2 UI/mL ** 0 - 4
Thank you for your time and help.
Best wishes,
Tina