Help with test results please? Feeling really p... - Thyroid UK

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Help with test results please? Feeling really poorly...

rosserk profile image
6 Replies

Hello all,

I need some help with my test results. I’m taking Thyroid s.

My TSH is 0.01 (0.27-4.20) and my T4 is 14.3 (12.00-22.00)

I don’t know whether to increase or decrease NDT. I was feeling better since starting NDT but now I feel worse than ever.

I would be really grateful for some advice from anyone with knowledge of NDT.

Thank you 😁

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rosserk profile image
rosserk
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6 Replies
fibrolinda profile image
fibrolinda

I take it the second TSH is actually free t4? Both tend to be low on NDT but the result you REALLY need is free t3 when on t3 or NDT.

rosserk profile image
rosserk in reply tofibrolinda

Thank you. I’ve correct the TSH above.

I have also order MediCheck t3 test

MaisieGray profile image
MaisieGray in reply torosserk

If that is just a FT3 test on its own, I'd suggest you change your order to one of their tests that includes at least TSH, FT4, and FT3. Having one result in isolation of the others isn't terribly helpful, and you can't really correlate the new FT3 test in their lab, with the previous TSH and FT4 results in another.

rosserk profile image
rosserk in reply toMaisieGray

Thanks

It’s all three. 😀

silverfox7 profile image
silverfox7

FT3 is the only accurate reading when testing and should be high in its range but never over but you need all the tests to help make sure things are working as they should as well. So FT4 can fall but TSH should be suppressed. I'm taking the same as you and my TSH varies between 0.01 and 0.02.

I found it's not all that easy deciding what to do next. I wasstarted on NDT many years ago then and doctors went by how you felt. When I decided to go back on NDT I followed the Stop Then Thyroid Madness book on how to swap over and dose but I missed my sweet spot of 1.75 as the instructions said to go up to 2 in halves then increase by quarters! I'd timed this to fit with my Endo appointment in case I had any probs so a wise move as it turned out! I'd got up to 3 but realised I wasn't then improving as much as I expected. Endo dropped me down to 1.75 which I thought was a huge drop. It turned out he was spot on!

So I then realised being under medicated felt so similar to being over medicated.

I now, if confused, always drop down first if unsure. That way my body will tell me if I feel worse so if that's the case I go back to my previous dose and give it time to stabilise again then increase by aquarter and retest bloods again to see what is happening. If you decide as you don't feel brilliant so just increase then if you were like me you would be more inclined to keep increasing without realising you were already taking too much.

Hope this helps.

jgelliss profile image
jgelliss in reply tosilverfox7

Your Spot On . Great Advice .

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