Blood test after switching to ndt.: Hi I made the... - Thyroid UK

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Blood test after switching to ndt.

dizzy1979 profile image
16 Replies

Hi I made the switch from thyroxine to ndt thiroyd from Thailand approx 12 weeks ago. I’m going for my first blood test since switching. I asked my gp for the full medichecks list and he has come back with a form for the following only;

Vit b12

Vit d

Ferritin

Folate

Random lipid profile

Thyroid function

Surely this isn’t going to cover everything I need? I feel so fed up and deflated that I’ve waited all this time to get an optimum result and now he hasn’t even given me what I need/asked for.

Blood test is Thursday morning any advice on what else I can get privately/separate most appreciated.

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16 Replies
MaisieGray profile image
MaisieGray

When you asked similarly in your post of about 3 months ago, you were advised by SlowDragon I think, that you needed TSH, FT4 and FT3 plus antibodies tested; and that it was extremely important to also test vitamin D, folate, ferritin and B12. So of that list, the only things not being tested are antibodies, because in theory the TFT 'should' typically include TSH, FT4 & FT3, and may do, if as expected on NDT, your TSH and possibly your FT4 are abnormal. It's not ever guaranteed though, that the lab will test beyond the TSH even if the GP has requested it. Conversely, the Dr has also requested the lipid profile to be carried out for you, presumably to check the various cholesterol and trlycerides levels.

dizzy1979 profile image
dizzy1979 in reply toMaisieGray

Thank you for your reply. I couldn’t see how to find my old post, so I asked the dr for everything in the medichecks list and so felt disappointed when he only requested those I have listed. I wasn’t aware the tft would cover all that you have suggested. I will await the results before proceeding privately with any other tests that may be required.

helvella profile image
helvellaAdministrator in reply todizzy1979

Click on your own name, or icon, which will take you here:

healthunlocked.com/user/diz...

Your profile which includes all the posts and responses you have made.

dizzy1979 profile image
dizzy1979 in reply tohelvella

Thank you so much. I’m useless at this stuff

waveylines profile image
waveylines in reply todizzy1979

I think its more likely that the thyroid panel request will be responded by the lab with a TSH plus Ft4 if your TSH is supressed (usually the case on ndt) -they only do a Ft3 if the GP puts suspected Hyperthyroidism. So doubtful if you will get the full panel. Fingers crossed you do!

dizzy1979 profile image
dizzy1979 in reply towaveylines

That’s what I suspected, I will have to do a private test if I don’t get them all. Thank you.

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Good GP has requested vitamin testing.

You can check your previous blood test results to see if either TPO or TG thyroid antibodies have been tested in the past

NHS only ever tests antibodies once

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results. This gives access to all previous historic blood test results

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If/when also on T3, or NDT make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Medichecks currently have an offer on until end of May - 20% off

thyroiduk.org.uk/index.html

See if you get TSH, FT4 and FT3 tested by this request.

If not order these privately

Come back with new post once you get results and ranges

dizzy1979 profile image
dizzy1979 in reply toSlowDragon

Thank you I requested all of the above and he hasn’t put the tpo or tg and who knows if the thyroid function will cover the rest? My surgery is prehistoric and don’t have test results online but are always happy to print a copy for me when I request it. I’m hopeful that Friday afternoon my results may be in, but I will wait until Monday to call and check. I will order any tests not covered on medichecks. I was feeling good this past few weeks and thought I’d cracked the dosage but I’ve definitely crashed and burned this last week. I think a combination of (work related) stress, over doing it at the weekends, to much drinking and not enough resting has not helped, but am looking forward to seeing what the test results reveal after 18 years in levo!! Thank you for your reply, I will not take my morning dose of ndt neither shall I eat, my bloods are at 8am tomorrow. I stopped my vitamins 3 weeks ago ( because I mixed up my dates of appointment and thought it was two weeks not three!) so hopefully this will all be totally out of my system now.

dizzy1979 profile image
dizzy1979 in reply toSlowDragon

Also I note you say for ndt last dose 8-12 hours before, but I take mine at 6.30am, and have taken today’s dose, I do not usually split, do you think this will cause a problem being nearly 26hours before bloods drawn? Should I take some lasted today?

SlowDragon profile image
SlowDragonAdministrator in reply todizzy1979

Yes, otherwise results will show false low

dizzy1979 profile image
dizzy1979 in reply toSlowDragon

So should I just take 1/2 a grain perhaps at 8pm? Or would you suggest more? I take 2 grains per day at 6.30am for my usual dose

SlowDragon profile image
SlowDragonAdministrator in reply todizzy1979

Perhaps half a grain would be fine

dizzy1979 profile image
dizzy1979 in reply toSlowDragon

Thank you I will take that this evening.

SlowDragon profile image
SlowDragonAdministrator in reply todizzy1979

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

dizzy1979 profile image
dizzy1979 in reply toSlowDragon

I’ve got my results back from my bloods would you possibly be able to have a look at them for me please? I have put them in a separate post, not sure how I can add them to this post, or I can send them To you.

A GP will never test everything you ask for. Most people on here take a private blood test

to determine the answers that we need.

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