Please HELP!!!

[KittyKat00]

Hi!

Please have a look at my recent results attached. I have Hashimotos. What do you think? PLEASE, please, please help me interpreting these!!!

My current vit.D is 81 nmol/L (50-150)

Anti-Thyroid Peroxidase Ab 102 U/ml (<60)

Anti-Thyroglobulin Ab <15 U/ml (<60)

Free T3 4.7 pmol/L (2.8-6.8)

Free T4 19 pmol/L (10-20)

TSH 4.3 mU/L (0.40-4.00)

The rest of results is attached as a file.

At the moment I am on Levothyroxine 100mcg and T3 10mcg x 2 a day (compounded by local pharmacy). Week ago I have started taking double dose of T3 as I could not keep my head up anymore.

I experience debilitating shooting body pains, persistent brain fog and exhaustion 😭 Doctor says my results are not that bad and is puzzled why all the symptoms are present 😭😭😭

[greygoose]

Your TSH is much too high. Your FT3 is just over mid-range - most hypos need it higher. But, doubling your dose of T3 was a bad idea, increments should be 5 mcg every two weeks.

Your FT4, on the other hand, is rather high considering your take T3. Usually, taking T3 lowers the FT4. So, I'm wondering how you take your T3. Do you take it on an empty stomach, etc, just like levo?

I don't know anything about iron, but your vit d is a little on the low side. Your B12 is a little strange. Normally one has an upper and lower level to a range. Just saying >150 is incredibly vague. But, I would say that yours is on the low side, and you probably need more. Not being able to hold your head up is not a normal symptom of low T3, but I did suffer from that when my B12 was low. So, perhaps you could try supplementing that?

[KittyKat00 in reply to greygoose]

Thank you so much for your reply. It means to me a lot 🤗

Regarding T3 I have doubled the dose one week before seeing the doctor as it was impossible for me to half the capsule 🤦🏼‍♀️

I take T3 always first thing in the morning which is 1-2 hours before breakfast. Second dose of T3 I take right before the bed (roughly 3-4 hours after dinner) without any other supplements.

Also after reading your post I have got B12 1000mcg in co-methylcobalamin form.

I am astonished that this lab is so vogue about ranges 🤬

I am quite shocked at my vit.D level as I live in very sunny Queensland in Australia 😱

Anyone would like to help with interpretation of Iron studies? My ferritin has fallen within last month from 91 to 78 (the most recent result) 😱. Also had iron infusion done half year ago as ferritin back then was only 30 😱

[greygoose in reply to KittyKat00]

Ah, your T3 is in a capsule, I see. Is it time-released?

[KittyKat00 in reply to greygoose]

Hi yes it a capsule with slow release. Is that good? They will be changing filler of the capsule from Microcrystalline Cellulose to Magnesium Glycinate or Ginger Root Extract. I have read here on forum that cellulose might cause problems for some so thought I would bypass it if I can 🤷‍♀️

[greygoose in reply to KittyKat00]

In my opinion, time-released is bad. You have no guarantee how much is going to get absorbed. It might pass through your gut so quickly one day that none gets absorbed! And on another day, you might absorbe the lot. Also, it's more likely than a normal pill to come into contact with things like calcium and iron in the gut, which will affect absorption. And the important thing with T3 is to get a constant, steady dose to encourage the body to heal.

The concept is good, but in practice, it rarely seems to work very well. But, if that is all that is available, it's better than nothing, I suppose.

[KittyKat00 in reply to greygoose]

Now you have made me thinking greygoose ! I am seriously reconsider slow release to not be added in my upcomming script! Can it be why my T3 is not high enough? Messed up absorbtion? I am desperate (like all of us here) to find a protocol for myself that works. Had to stop working for now as I just cannot keep up with life 😧

[greygoose in reply to KittyKat00]

It could very well be, yes. We have seen people here with similar problems on SL T3. Is it possible for you to get normal T3 tablets?

[KittyKat00 in reply to greygoose]

greygoose I have even found posts now from long time ago where you were saying that you are not a fan of SR T3.

I have 2 options regarding T3: stick to compounding pharmacy but not adding slow realease or to buy T3 in a tablet for that I have to cut on half (no 10mcg is sold in Australia; the lowest is 20mcg). For over half a year I had been cutting the pills but many of them did not come out equal. That was the reason why compounding pharmacy came to play.

[greygoose in reply to KittyKat00]

Even if you managed to cut the tablet squarely down the middle, there's no guarantee that the hormone content of each half would be equal. But, that's a risk many, many people take every day, and it would appear to be preferable to SL T3 capsules. The difference would be so slight. Whereas with SL capsules, you could miss a whole day's hormone on occasions, which is definitely the worst of the two evils.

[KittyKat00 in reply to greygoose]

Never thought about this that the compound of the pill might not be equally mixed. Just been unhappy with the actual outcome of cutting. No matter what I used to cut it it would always look slightly different. Hence me taking capsule.

greygoose shall I just ask compounding pharmacy to make it without SR?

[greygoose in reply to KittyKat00]

Well, you could try, but I'm not sure how it works. What is it that makes it SR? Is it perhaps the capsule itself? I don't know.

[KittyKat00 in reply to greygoose]

Accept the filler they use they also put hypermalo (sorry but dont really know how to spell it 🙈) which turns apparently into gel in stomach. They offered to take it out and just put more filler in place.

[greygoose in reply to KittyKat00]

OK, I see, well you could try that, see if it gives you better results.

[NWA6 in reply to KittyKat00]

With regards to Vit D and living in Australia. How dark is your skin? Do you wear sun cream? How much of your body is actually exposed to the sun? You lot have got a slip, slap,slop ongoing campaign haven’t you? All very well but even here in the UK Rickets is on the rise in children as parents have been panicked into thinking the sun is evil 😩

[KittyKat00 in reply to NWA6]

Could not agree more with you NWA6 Always been religious with my sunscream exept this year. I have started ducking out in the arvos for a quick sunlight without any protection. Yet again dont know if that is enough 🤷‍♀️ I have read somewhere that 15 minutes should be adequate. I have light olive skin. Does it mean that my vit. D is low?

[NWA6 in reply to KittyKat00]

That’s great KittyKat00 😀 Morning or evening sun when it’s not at its strongest. And yes I also read an article about 20mins being the average daily exposure but I’m guessing that that would need to be a fair bit of skin on show, not just face and arms (so get that bikini on! 😂)

The reason I mention skin tone is that those with darker skin tones need longer exposure because they have more melanin. For example my ginger girls only need 5mins exposure to reach their target (and the gingers have also mutated to make more of their own Vit D than us non mutatants 😂) whereas as a darker skin tone would need 20mins. And of course where my girls have a lack of melanin they will never develop the tan that blocks Vit D absorption. So the more tan you get the more exposure you need. My timings aren’t an exact science as I’m going from memory but you get the jist I hope 😬

But in saying all this I’ve seen it said a few times on this forum that Hypo and Hashi’s seem to go hand in hand so we may always need the back up of supplements.

As always everything in moderation should be the way to go 😀

[KittyKat00 in reply to NWA6]

I have Hashimotos NWA6 😭

„Mutatants” 😂

I have also started B12 1000mcg today and been having coming and going headache 🤦🏼‍♀️ So strong when it hits though 🤯

[NWA6 in reply to KittyKat00]

Now are ye laughing at me calling my girls Mutants? Or the fact that my fat thumbs can’t spell? 😂😂

[KittyKat00 in reply to NWA6]

NWA6 I actually belived it was some sort of variation of mutants 🤗 I found it actually adorable you call them like that. As a kid I was called myself mutant by my older sister 🙈😂 I am so hoping I did not offended you as that was not intend at all 🤗 Thank you for all your advice 🙌🏻

[NWA6 in reply to KittyKat00]

Isn’t reading on line terrible! We just can’t convey our expression!! I was not at all offended! I thought it was funny 😁

[KittyKat00 in reply to NWA6]

🤗