Odd cold sensation on face

[Newmummy82]

Hi everyone,

I'm diagnosed hashi's and on 75mcg of Levo. Taking b12, vit D3, magnesium, selenium, cod liver oil and turmeric, am gluten free. Generally feeling much better since taking the above steps advised by others here.

My question is, does anyone else with hashi's get the occasional cold spot on their skin? I have a patch of skin on my left cheek which randomly feels cold sometimes. I do have tempomadibukar jaw disorder from grinding my teeth which I've treated with a mouth guard and botox in my jaw which has helped relax the muscles. I've read that it can affect the nerves in the face but wondering if it could be my low thyroid?

I've also got a patch of skin in my heel which tingles, started before I got diagnosed and medicated so guessing low thyroid hormone might have caused some mild nerve damage if this is possible?

Thanks!

[BlueMoon65]

I often have cold areas on my face, especially the nose and forehead. I don’t know very much about my condition, as after many years of illness, diagnosis six years ago was, in common with so many in UK, a mandatory Levo 50 mcg, then double it to 100. My GP retiring five years later meant a salaried GP review, my dose reduced to 25 in three stages over eight weeks. Besides mobility, digestion and exhaustion issues, I had the horrible tingling return over shoulders and arms. This site is a godsend, and very reassuring.

[Newmummy82 in reply to BlueMoon65]

Thank you for your reply, it's reassuring to know others with hashi's get this. I've been hyper aware of physical sensations since my diagnosis and think I just need to accept that my new hashi's body is going to feel different!

[Hellonwheels]

OMG, yes! Just to the left of my left eye---I thought it felt more like "wetness". Occasionally on the back of my calf, too. Was strange. It went away with my dose being correct.

[Newmummy82 in reply to Hellonwheels]

Interesting that it disappeared with correct dose. I think I may be slightly under medicated, TSH on last test was 3.64 so on the high side but DR just said it's normal so won't increase my dose.

[Hellonwheels in reply to Newmummy82]

3.64?? yes, that seems under-medicated to me. My doctor upped my dose twice beyond that level TSH. I am now fluctuating between .01 and .05 regularly. I am using Armour with a lower dose of T3, though, so I think my doc expects TSH to be very low/non-existent...

[vocalEK in reply to Newmummy82]

Doctors need to learn that "normal" and "healthy" are not interchangeable words. Patients want to feel healthy, not necessarily normal.

[im2fas4ya in reply to Hellonwheels]

I’m new to this forum, I was dx with ms in 2006. I’ve always had the sensation of a cold or wet section on the front of my thighs that come and go. As I’m getting older I notice this cold or wet feeling on my thighs - only in the front - is appearing more often then not. It can be embarrassing sometimes because I’ll immediately grab my thighs because I think it’s wet! I know it sounds dumb. My ms specialist says it is definitely a symptom but I wasn’t aware that there could be a drug that could ease this annoying symptom.

[im2fas4ya in reply to im2fas4ya]

Ok in response to myself I see Levo is a treatment only in the uk for hashi. I apologize, I’m in the us with ms but I still have the wet/cold sensation in the front of both of my thighs that comes and goes - only one of many “weird” sensations that I get with ms - just feels weird😳

[vocalEK]

I have had TMJ, and it was quite painful. I finally discovered that it was caused by a dentist having installed two crowns too high, throwing off my bite. I was grinding my teeth in the night, unconsciously trying to correct the imbalance. Once I saw a specialist and he ground down the tops of the crowns to correct my bite, the pain disappeared. You might want to consult a prosthodontist (a specialist who treats TMJ among other things) to find out if your bite needs to be corrected. gotoapro.org/why-see-a-pros...

The dentist who caused the problem was the one who first diagnosed me with TMJ and offered to correct my problem (which he claimed was caused by arthritis in my jaw) for a mere $10,000. (Mind you, this was 30 years ago. Imagine how much he might want to charge these days.) Are you familiar with the phrase "bite me" in the UK?

[Newmummy82 in reply to vocalEK]

Haha! Yes we are! Very appropriate. My bite was off as my upper wisdom teeth had grown longer than my other teeth, my dentist took them out and I think that has helped too. Luckily I was still within my NHS maternity exemption so the extractions and the mouth guard were free. Dread to think how much it would have cost otherwise! Dentistry is nice work if you can get it!