Multi pics

[MMAndrea52]

Hi everyone I’d like advice on my latest blood test. It’s on several sheets how do I post multiple pictures on one post? Here’s the first one. I’ll just write the others here in case I can’t upload -

TSH 0.04. (0.35. - 5. 00) mU/L

Free T4 23.6 (11.0 -23.0) pmo1/L

Free T3 4.0 (3.9 -6.78) pmo1/L

Total vitamin D 123 adequate vitamin D status (50 - 150) nmo1/L

Vitamin B12 973 Note ‘high’ is patient on neocytamen treatment? (200 - 900) ng/L

I had a TT November 2017 and it’s been a roller coaster of highs n lows, trying to find my balance. Iv never felt my body suited the levythroxine from the first day I was given 125mcg went into complete anxiety and jittering wreck. Was lowered to eventually 87.5. Seemed stable on that, but then a blood test revealed very high FT4 and low TSH low FT3 was advised to lower to 75. I couldn’t do it as id not gained weight, was hot mostly, never constipated. No hair fall out. Nails not too bad. But having terrible bouts of crazy ass outbursts and anxiety. Energy not too bad, I get about and exercise but can become exhausted and be in bed for days. My mood is generally ok, just the sudden anxiety and crazy moments. My endo insists the only way to higher my FT3 is too lower the FT4 hence to lower my levythroxine. I’m on a site on fb and some say I need additional T3 but how could I possibly manage that on my own, iv no idea about T3 where I’d get it, or how much to take. I just don’t want to go hypo like I did when I came out of hospital. That was scary I never want to go back there again. Yes iv been slightly hyper albeit only ever being on 90mcg or less. But iv never really let myself settle on one dose always terrified so admittedly I have upped and downed my dose a lot in the last year to try find a good balance. Iv never felt as well as I did when the only ever 2 times in my life I went hyper they put me on carbimazole and I felt on top of the world, I felt blissful, I was singing and dancing along the street. Since iv had my precious thyroid removed and put on that Nasty levythroxine I can’t even look ppl in the eye most days. Iv also found since I lowered down into the 80s my bones ache, and can’t lift my arms without them aching. I’m also very sensitive to everything I have allergies to everything, even when I get a slight cold I get all emotional don’t know if it’s all related. Iv discovered one thing tho the endos abs drs are clueless when it comes to the thyroid pathways, and iv had to find a lot out myself reg diet n stuff and self treat myself. But the horrible tablet I have to take every day is out of my hands. I just want some balance to have energy and good mood and defo none of that crazy anxiety outbursts. One kind lady on the fb site advised to take Endos advise and lower to 75mcg then at least iv tried that she said. And they’re more likely to work with me in the future so as from this morning at 6am I took my first ever dose of 75mcg. I’d only been on 81/85mcg anyway but still gtn crazy moments now n again. Please advise I’m feeling hopeless how long will this new dose take affect and what do u guys think of these results thank you 🙏🏽 😩

[greygoose]

It takes at least six weeks for a dose of levo to take full effect in the body. So, part of your problem is that you've never given yourself time to settle into a dose. Continually raising and decreasing your dose is very bad for you. Patience is the key. Nothing happens fast with hormones.

But, you're right that doctors know very, very little about thyroid, or how to treat it. Your endo is a little confused about conversion to T3. It's true that when the FT4 is as high as yours, conversion to T3 is worse, because the T4 is converting to more rT3. But, I doubt you will ever convert enough T4 to T3 even if you do reduce the dose. But, you must wait the full six weeks to find out. Then, if your results still show very poor conversion, with very low FT3, then you can start talking (nagging?) to your endo about adding T3 to your levo. But, you must be patient and stop messing about with your dose during that time.

[MMAndrea52 in reply to greygoose]

I know that grey goose. I’m going to stick to it this time. Thank you

[greygoose in reply to MMAndrea52]

Good.

And, by the way, you can only post one picture on a question, and none in the replies. So, it's just one photo per thread.

[MMAndrea52 in reply to greygoose]

Thank you. I’m feeling very emotional taking 75 today wont have that affect on me will it

[greygoose in reply to MMAndrea52]

It shouldn't have any effect on you for at least 7 days. You won't feel the reduction instantly. It's a storage hormone with a half-life of 7 days.

[MMAndrea52 in reply to greygoose]

Oh btw grey goose the bloods I had before this one showed very similar readings, with high FT4 and same FT3. Iv had all my bloods done before I take my levythroxine on a fasting stomach. But this last one my appt was fur 4.30 so I forgot and took my levythroxine in the morning about 6am then had my bloods took about 4.20 . Don’t know if this will of had any affect?

[greygoose in reply to MMAndrea52]

Ah, ok. So about 10 hours after your levo. That's not so bad. But, of course, your TSH would have been higher at 8 am.

[MMAndrea52 in reply to greygoose]

Also, sorry to be a nuisance. But you say u don’t think the reduction will higher my FT3. Could it lower it? This is what I’m scared of as it’s already v low. And if my FT4 does come down and my FT3 is still low what if they refuse to entertain giving me T3. And say they’ll just up my levythroxine again Surly I’ll just end up in this position again.

[MMAndrea52 in reply to greygoose]

Hi grey goose are you there I’m 2 weeks into my lowered dose of 75mcg levythroxine. But I’m feeling awful really cold, but I have caught a cold of my granddaughter but can usually muddle thro, but I’m cold, very down and emotional. Could this be the lowered dose? I feel I can’t stick it out another 4 weeks but I guess I’ll have too

[greygoose in reply to MMAndrea52]

It could be due to the lowered dose, yes. If it gets too bad, go and see your GP and explain the situation. I don't suppose he'll know much more than the endo, but he might take pity on you and raise your dose. 75 mcg is a very small dose for someone without a thyroid, and you did take your levo before the test. You could at least ask him for a new test.

[MMAndrea52 in reply to greygoose]

Would I be ok to up my dose now, wouldn’t have an adverse affect would it. I’m sure I feel this way cos iv lowered. What if I titre it so just up the dose ever so slightly, Say to just about 81.2 that wouldn’t be messing about too much would it. Ps iv sent you a pm same question just bit more detail