Liothyronine sources

[banjanti]

Hello,

If anybody could pm for reliable sources of t3 I would appreciate it. Impossible to get on NHS 😭😭😭

All the best,

Martin

[shaws Administrator]

Welcome to our forum banjanti but you have given no background to your thyroid health.

We just cannot give out information willy/nilly about prescription medication.

You could join Thyroiduk.org.uk as the more members the better and they are at the forefront of trying to get T3 reinstated in the NHS.

You can also add your history into your Profile and then, if necessary, members can read about your thyroid background without asking the same questions.

thyroiduk.org.uk/tuk/campai...

[banjanti in reply to shaws]

Of course, I understand. Let me get on it, I'll fill my profile just now

[SlowDragon Administrator]

If NHS endocrinologist says you have clinical need you should be prescribed T3

[knitwitty in reply to SlowDragon]

They should, but they don't always.

I went for an endo appointment in December, the consultant I should have seen wasn't in the clinic (one who I checked was T3 friendly.) Subsequently the consultant who eventually spoke to me, after a very long conversation with a registrar who I had been allocated to, said yes, based on my blood test results i most probably would need T3 but that there was a ban on prescribing it in Merseyside, however I could make an appointment with the consultant I should have seen, privately, they could prescribe it privately or I could source it myself from abroad and they would monitor me.

I am still waiting for the follow up letter, detailing what they found at my appointment and the results of my blood tests ( now 5 weeks).

I shall take this up with my MP, it is beyond incompetent, and actually downright cruel. I dread to think how many people are being denied medication that they need, who are just prepared to accept what doctors tell them or who are not bloody minded enough to pursue their case either because they don't know how to go about it or who are too unwell to do anything about it.

Sorry, rant over!

[SlowDragon Administrator in reply to knitwitty]

Current situation is utterly outrageous and downright wrong

Don't give up the fight

NHS prescribes plenty of expensive medication for patients whose "need" is entirely due to lifestyle choice

No one chooses to have thyroid disease and T3 is essential for many thyroid patients

thyroidtrust.org/media-cove...

[knitwitty in reply to SlowDragon]

You are right , of course, it is just so exhausting fighting for what you should automatically get.

I am more annoyed that the NHS as an organisation, with huge purchasing power, cannot seem to get its act together and purchase T3 from abroad at a much cheaper cost.

It also beggars belief that it takes more than 5 weeks to send out a report and blood tests from an appointment. Believe me I have called to find out where they are and I was given the excuse that they were behind because of Christmas!

Meant to add, thanks for all the links.

[Cariad123 in reply to SlowDragon]

My GP tried 3 different Endos for referral to give me back my prescription for T3 had used for years , they would not see me all NHS reply’s total refusal without even seeing me !

Hence use NDT now self medicate with GP finally after

Reading my Medichecks blood tests finally conceded to just observe l am 70 trying to explain very low TSH is okay l feel well it’s irritating patronising and makes me avoid at all costs a visit to gp

[SlowDragon Administrator in reply to Cariad123]

Suggest you write a summary of this and email it to Thyroid UK

write to your MP, Matt Handcock and Lord Hunt of Kings Heath. CCG's continue to bully endocrinologists in to not prescribing, directly against guidelines

british-thyroid-association...

Professor Toft recent article saying, T3 may be necessary for many

rcpe.ac.uk/sites/default/fi...

New NHS England Liothyronine guidelines November 2018

sps.nhs.uk/wp-content/uploa...

Dossier presented to Lord O'Shaughnessy November 26th

drive.google.com/file/d/1c2...

Liothyronine gender inequality

england.nhs.uk/wp-content/u...