I was diagnosed with Hashimotos on 1989. Levothyroxin never really solved all my symptoms but I managed. About 10 years ago my health began to deteriorate but my GP and my endocrine consultant seemed to have no solution. I made to feel that I was a time waster. I also have psoriasis and I have adrenal deficiency.
My health got so bad I would go for weeks without leaving the house. Sometimes I was bed bound, pain throughout my body, hair falling out etc.
I set myself a task to ‘research’ my symptoms using my phone. Firstly I stopped eating gluten, this helped my gut slightly but no big change in my overall condition. I now eat gluten in moderation. Then I started self injecting B12 and this helps with my eyesight, noise in ears, pins and needles in feet, etc.
During the time I kept my GP fully informed and I asked to try T3 in combination with T4. Nearly a year ago the consultant directed my GP to prescribe for a six month trial but my GP wouldn’t do it.
I have high cholesterol, kidneys and liver are showing problems, gall stones, diverticula, inflammation in the blood. 18 months ago I had emergency surgery for a batholin cyst, also ignored by my GP until it was as big as an egg.
Last week I got enough strength to demand the T3 prescription and to day I took the first 10mgs dose alongside an adjusted T4 dose.
Wow! I felt alive again! It didn’t last all day and I haven’t been prescribed a second dose. I still have a long way to go to get the dose increased and prolonged beyond the 6 months. My GP is so uninterested he hasn’t requested blood tests for thyroid levels so he has no baseline. I asked for other tests such as foliate etc and he added a kidney function test but no thyroid tests. I didn’t request them because I know how I feel and test results may not reflect my condition.
I can’t change my GP because there is a shortage of GP services in our area.
My message to anyone reading this is to keep going, insist on getting the medication you need and most important don’t doubt yourself.
Very good of you to share that, Suncliff, and the fact you have had such horrid treatment and still have this wonderful attitude is amazing. Believe me we share your message. Though I think we would tell anyone with your experience to change doctors pronto if they can but I see you couldn't do that. It's difficult when you are so ill to be your own advocate so it may be advisable to have someone with you but it's great you are finally getting your just dues.
T3 has saved many of us so I'm happy you could finally obtain it.