4 months on wockhart 75 mg: Happy New Year, Was... - Thyroid UK

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4 months on wockhart 75 mg

Bunty0604 profile image
8 Replies

Happy New Year,

Was looking once again for help with blood results

Latest batch TSH 2.35 ( 0.01 - 5.0 ) risen from 0.86 at last test

T4 18 ( 12.0-23.0 ) stayed the same

Reused to test my T3 but nothing new there

GP Says stable yet I don't feel it !

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Bunty0604 profile image
Bunty0604
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8 Replies
SeasideSusie profile image
SeasideSusieRemembering

Bunty

You are undermedicated, the aim of a treated hypo patient generally is for TSH to be 1 or lower with FT4 and FT3 in the upper part of their ranges if that is where you feel well. You need an increase in your dose of Levo.

Ask for 100mcg or alternate 75mcg /100mcg.

Or ask for a referal to an Endocrinologist. Take a written list of your symptoms to GP and say that as you still have symptoms you would like to see the Specialist. Your TSH is too high anyway - it's above the Therapeutic level maximum for Hypothyroid patients, not being a specialist your GP may just be looking at the 'normal' range. Hopefully the Endocrinologist will also test FreeT3.

Where I am, even if a GP orders FreeT3 the lab just don't do it. Only do it for Consultants now.

Bunty0604 profile image
Bunty0604

Thanks ladies will ask for a referral I have no faith in my doctor ! My anxiety has been through the roof for no reason maybe the teva worked better but didn't suit me at all !

SeasideSusie profile image
SeasideSusieRemembering

Bunty

Anxiety is listed as one of the signs/symptoms of hypothyroidism, so that fits with the fact that you are undermedicated or maybe you have low T3 due to poor conversion.

Many members have been very disappointed, to say the least, with their referal to an endocrinologist, so in the first instance I would push for an increase in dose. Use the following information to back up your request.

Dr Toft, past president of the British Thyroid Association and leading endicrinologist, states in Pulse Magazine (the magazine for doctors):

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance.

But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

He recently confirmed, during a public meeting, that this applies to Free T3 as well as Total T3.

You can obtain a copy of the article by emailing Dionne at tukadmin@thyroiduk.org print it and highlight question 6 to show your doctor.

It's also important to get full testing of thyroid and nutrient levels. You can do what hundreds of us here do and that is a private thyroid function test with one of our recommended labs. If you've not had vitamins and minerals tested - Vit D, B12, Folate and Ferritin - it's important to test these as well because we need optimal nutrient levels for thyroid hormone to work properly.

Medichecks Thyroid Check UltraVit medichecks.com/thyroid-func... Code THYROIDUK gives 10% discount on any test not on special offer

or

Blue Horizon Thyroid Check Plus Eleven bluehorizonmedicals.co.uk/t...

SlowDragon profile image
SlowDragonAdministrator

New NHS England Liothyronine guidelines November 2018 clearly state on pages 8 & 12 that TSH should be between 0.4-1.5 on just Levothyroxine to be adequately treated

sps.nhs.uk/wp-content/uploa...

Bunty0604 profile image
Bunty0604 in reply to SlowDragon

Just spoke to a GP she said my thyroid completely normal and I'm on the right dose. End of conversation

SlowDragon profile image
SlowDragonAdministrator in reply to Bunty0604

sps.nhs.uk/wp-content/uploa...

Print out page 12 and 13

Highlight section 1

TSH should be between 0.4 - 1.5

Plus page 13

Box 1 - column 4 - nutritional

Request testing of vitamin D, folate, ferritin and B12

Make sure to get actual results and ranges

Ask for 25mcg dose increase in Levothyroxine

Or

You will be requesting referral to endocrinologist for consideration of treatment with Liothyronine

Bunty0604 profile image
Bunty0604

Thanks slow dragon I think what I'm going to do is get the private blood test done when I'm paid next week ! No appointments available to book till 5th Feb so go armed with all the information and then ask for a referral if I'm still getting nowhere.

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