Naturethroid new batch - dreadful: Hello everyone... - Thyroid UK

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Naturethroid new batch - dreadful

Ihave3kids profile image
60 Replies

Hello everyone, I hope today finds you well and that you were all able to enjoy Christmas.

I was recently doing well on 1 grain Naturethroid at 8.15am and 0.5 grain at 1.15pm. Plus 12.5mcg T3 at 3.30am, as per the circadian protocol to raise morning cortisol.

My Dec 18 labs are included in the attached photo.

I feel there was still an increase to be had but considering my diagnosis was originally of M.E. I felt my energy was the best it had been in 11 years of illness.

That is until my newest lot of Naturethroid was started just over a week ago. My M.E. doctor in Wales had a stash of it (presumably older stuff) and was prescribing that for me but has now swapped to Metavive. I refused to swap and so she wrote a private prescription and I obtained my new lot of Naturethroid from a U.K. pharmacy.

I think I’ve been on it for about 8/9 days now (maybe 10) and I felt I was sliding after about 3 days but thought it was being busy at Christmas time. Well yesterday and today have been horrendous. Fatigue from hell, puffy face, eyelids and fingers, slow brain.

I do have a pot of Metavive Pro - porcine 60mg tablets in my cupboard. Tempted to try that instead now. Can’t go on like this. Alternative is to source NDT myself. Maybe Thyroid S or Thiroyd?!?

Or ask for another private prescription and buy another NDT through the UK pharmacist. I just don’t know what to do. I was so pleased to have made progress on Naturethroid. Things were looking up for the first time in years for me fatigue-wise. I feel as though my health is slipping from my grasp again. Totally disheartened. I can’t become ill again. I just cannot go back to being in hypo hell again. It feels like some cruel, sick joke. A glimpse of health for a couple of months and then it’s snatched away again.

Pls, any advice on what to swap to and where to obtain. Has anyone else hit this problem with Naturethroid? I loved the old stuff! What on earth did they do to it?!? I will self source if necessary. I self source my T3. Or, if anyone uses Metavive, advice on replacing 1.5 grains of NDT with the 60mg porcine tablets?!

Just for reference, I’ll post my labs of Dec 18. I’d begun to feel human again when these labs were done.

Thank you.

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60 Replies
cazlooks profile image
cazlooks

you may find that during winter you have to increase NDT intake, I went from 3 to 4 grains, my 2 daughters increased by 1/2, that was all it took. We are back to our pre-winter happiness now. Plus my blood pressure fell back to normal and daughters acne and migraine rates fell. My Consultant says perhaps reduce it in the Spring - but we'll judge. We bought morePro's and we'll monitor ourselves.

Ihave3kids profile image
Ihave3kids in reply tocazlooks

I agree about a raise in winter. I’d just raised by 0.5 grains and felt much better. I have heard reports that the new Naturethroid differs from the old, although the lab who makes it, denies this. I think I’ll try a different brand. Thank you for your reply. I’m glad you and your daughters are able to maintain good health on NDT. Which brand do you take, may I ask?

Venicefan profile image
Venicefan

Hi. There have been quite a lot of reports about the new Naurethroid not working so well, both on here and on the Stop the Thyroid Madness website.

I take Thyroid S and am delighted with it. I feel so much better now. I would definitely recommend you trying one of the Thai brands as an alternative.

Ihave3kids profile image
Ihave3kids in reply toVenicefan

Thank you. I have heard good things about Thyroid S. Are you in the U.K.? I would need to know where to source it you see.

Venicefan profile image
Venicefan in reply toIhave3kids

Ye, I’m in the Uk. I’ll pm you. 😉

Jodypody profile image
Jodypody in reply toVenicefan

Can you pm me too?

Beverleyb profile image
Beverleyb

Hi , I've had a horrible year with Nature Thyroid, like you said (went back to thyroid hell)..I went back on thyroxine and t3....I still have a few symptoms but not too bad ..I'm going to have a blood test next week, results will be interesting..

Ihave3kids profile image
Ihave3kids in reply toBeverleyb

I’m so sorry. It’s devastating to return to being hypo after doing well, isn’t it? I could try levo/T3 if desperate. I’ve done both individually (did not like either alone) before but not together. I think my first choice would still be an NDT though.

Micky7 profile image
Micky7

Same here, going back to hipo simptoms, for about 1 week.It is terrible;

Iam on nature-throid for about 4 years(I felt so good in those years, like I forgotten about Hashimoto).

I started the new batch of ndt last month and now I feel really bad(is the new nature-throid for sure).

I just have ordered Thyroid and TR Man , I will se how I will feel on it.But it will take time until I will receive it.

In winter time I didn't raise (iam on 3 grains on since 2014); but for 2 days I have started to raise with 1/4 grain.I will keep it like that for 2 weeks.

Ihave3kids profile image
Ihave3kids in reply toMicky7

Yes, same here. I thought I was imagining it at first but by Christmas Eve/Christmas Day, I knew for sure I was becoming hypo. I was hosting both days too - typical! I ended up asleep immediately after our guests had gone on Christmas Day and was also in bed yesterday afternoon. This is absolutely not like me. I feel as though I’m not taking any thyroid hormone at all! The fatigue is phenomenal.

I think I’ll do the same as you and source a different brand. Are you in the U.K.? Do you source yourself? I hope you improve again quickly, I really do. I wouldn’t wish this on anyone.

Framboise profile image
Framboise in reply toIhave3kids

This is so crazy! I was also hosting on Christmas Day and ended up in tears and shaking in the kitchen, I've never done that before, I love the day and the preparations and the meal!

Ihave3kids profile image
Ihave3kids in reply toFramboise

Yes, not an ideal time to have a hypothyroid crisis. I’m so sorry you were like that on Christmas Day too. I hardly remember anything of the day. I just scraped through it.

Micky7 profile image
Micky7 in reply toIhave3kids

Hi again,

I was on Levo in 2011 , switch to Armour in 2012 and 2014 i went on nature throid.I never tried ndt from Thailand, but has so many good rewiews so i will try it.

Iam in Romania and boght from Thailand..iam waiting to arrive..could take up to 1 month to receive it-((

Ihave3kids profile image
Ihave3kids in reply toMicky7

Good luck! I’ve heard good things about the Thai stuff too. I’ve taken Metavive yesterday and today. I feel a bit better. Metavive can be bought online from the U.K. It appears to have lifted me from the dreadful slump but I’ll need a few more days to assess it. It might be worth you googling it. It’s sold as a glandular but many take it instead of NDT. Micky7, I hope you return to feeling better soon, I really do. No one deserves to suddenly become ill on a medication that previously suited them. It’s so unfair.

Framboise profile image
Framboise in reply toMicky7

Micky7 do you have the lot number of your latest Nature-Throid that made you feel so bad? I got my lats lot in November and is Lot 098038-18J01 Expiry 09/2021. If yours is in its original jar it will be on the far right of the label, above the barcode. It may be under the pharmacist's label which will peel back easily to reveal it. If it's been dispensed into brown jars it should be on the printed pharmacy label or on the invoice. I'm thinking that if enough of us have a really bad lot we can do something especially if we all got it from the same place! I've actually contacted the pharmacy who dispensed mine to ask if anyone else has complained about it but was told no-one had.

Ihave3kids profile image
Ihave3kids in reply toFramboise

I think the company who make it are aware of complaints. I read there were problems with supply again (a rumour that maybe they were halting production, perhaps to rectify the problems) but who knows what is true? What I do know is that, I won’t be buying any more Naturethroid for the foreseeable!

Margo profile image
Margo in reply toFramboise

Framboise I have just checked my barcodes on Nature-throid, they are not the same as yours, however I have ALL the symptoms described here with the new batches. I haven't gone back to my suppliers as I knew it would be a waste of time. There appeared to be a shortage, I bulk bought, and have now spent hundreds of pounds on pretty much worthless medication which will take me up to August to use up. I really do despair. Why change something that works, why do these people mess about with vulnerable people who need their medicine.

Framboise profile image
Framboise in reply toMargo

I'm sorry to hear you've also bought a large amount of Nature-Throid and are having problems with it Margo. It's such a waste of money and so awful feeling ill on it! I agree about not changing something that works and wish that RLC would comment on what happening or answer my emails.

Margo profile image
Margo in reply toFramboise

I have been experimenting Framboise , every other day I add Metavive II to my 2 grams daily Naturethroid. So..... 2 grams Naturethroid one day, then 2 grams Naturethroid +1 x Metavive II the next. What can I say, it seems to be getting me through. If it gets me to August I will then reconsider changing to another product, but in the meantime I am keen not to waste my money. Time will tell if it works.

Framboise profile image
Framboise in reply toMargo

Thank you very much for mentioning this Margo, you're the second person to tell me that Metavive seems to be working. I'm interested in trying it because it would be so much easier to buy if it worked! I'm seeing my nutritionist tomorrow (honestly doesn't that sound precious! I so wish I didn't need to see so many people just to attempt to feel normal!) and am going to mention it to her in case she's heard of it, and if she hasn't it could help her other clients. I've decided that this year things have to change, I need to try other things like the T3 I've got and Metavive, because I'm too fed up with all the NDTs changing and increasing their prices, and always having to wonder if the next batch will be ok or not. Please let me know how it continues to go with the Metavive!

Margo profile image
Margo in reply toFramboise

I have also been the Nutritionist path many many time Framboise , as I have no doubt many others have too on this site. I too have T3 and have been tempted to use it, but just wanted to see how I do with Metavive. I certainly feel a bit better, but my face doesn't seem to agree, I have enormous bags under my eyes, which immediately makes me feel ill when I catch myself in the mirror!! Hoping in time that it will get better. I am also a bit concerned that Adrenavive prices have gone up considerably, and hoping that Metavive doesn't follow on. You are welcome to p.m. any time, as I too would be interested in how you are getting on .

Happy New Year!

Framboise profile image
Framboise in reply toMargo

Thank you Margo and a Happy New Year to you too and I will send a pm! My nutritionist hadn't heard of Metavive or Adrenavive and couldn't believe they would be equal in strength to NDT, kept telling me glandulars didn't work like that. But she was very interested in them, so I'm going to phone the manufacturer tomorrow and just have a chat with them!

At the moment I'm taking 1.5 grains of the Nature-Throid I got in the summer which wasn't as bad as the Autumn lot, and 1.5 grains of some Thyroid-S I bought last year. I already feel better! Not quite sure how I'll broach this with my endocrinologist yet. I'm going to experiment a bit first I think.

Margo profile image
Margo in reply toFramboise

Good luck Framboise look forward to hearing how you get on. Please keep us posted.

Maya_83 profile image
Maya_83

Sorry I have no advice to share as I not so clued up with NDT.

But I wanted to ask how the CT3M method was going to raise morning cortisol? How long have you been doing it for & and when did you notice any improvements? Also what dose did you start on?

I started as of last week but no change yet.

Thank you

Ihave3kids profile image
Ihave3kids in reply toMaya_83

I’ve been using T3 to raise morning cortisol for more than 2 years now. I started on 5mcg and now take 12.5mcg. I experimented with times too, settling on 3.30am. So it’s about 3/3.5 hrs before I get up.

It made a big difference to me. Not only did it raise my morning cortisol but it strengthened my adrenals enough to tolerate thyroid hormone.

I set my phone alarm for a very gentle harp sound. Swallow the T3, without actually waking up as such and go straight back to sleep. It becomes automatic in the end. It’s no big deal to have to wake up at 3.30am because I literally don’t wake up as such.

So I’d advise going up in increments of 5mcg and also adjusting the time by 30mins forward or backwards. Once you hit a decent dose and the right time, you’ll be able to tell immediately. The difference is noticeable. More energy, more charity, less sluggishness etc.

Good luck!

Ihave3kids profile image
Ihave3kids in reply toIhave3kids

Clarity not charity!

Maya_83 profile image
Maya_83 in reply toIhave3kids

Thank you for sharing.

I started on 6.25mcg t3 , basically I was taking that anyway but at lunch time , now moved it to 6am as i get up at 8am.

I've been on it for a week now.. how long should I wait to make an increase?

Did you use and adrenal support?

FancyPants54 profile image
FancyPants54 in reply toMaya_83

Hi

You probably aren't taking your night dose at the right time. Your adrenals will start their night work preparing the body for the next day around 3am and that's when they need the T3 to help them.

If you are going to do this you would be well advised to buy a copy of Paul Robinson's book the CT3M Handbook from Amazon and read it cover to cover. It's very helpful if you are going to do this.

Meanwhile, start moving that timing back half an hour at at time and hold for at least a week each. Monitor your waking and write it down how you feel.

I experienced the best sleep in years after taking the night dose around 3.30am when I tried the method. Like Ihave3kids above, I didn't really wake up. I had the tablet ready with water on the bedside table, the alarm on my phone set. I'd wake, sit up, swallow the tablet and water and back down on the pillow to sleep. Never turned the light on.

Maya_83 profile image
Maya_83 in reply toFancyPants54

Oh thanks.

But if I remember clearly , the CT3M method said to take it two hours before waking? I could be wrong. That's why I was taking it at 6am as i get up at 8am.

I will take it at half 3 tonight. See how I get on.

Will this also work if cortisol is low during much time Too? Or only help with morning ?

Thank you

FancyPants54 profile image
FancyPants54 in reply toMaya_83

This is why you need to read that book. Lots of answers to questions you didn't even realise you had.

It doesn't say to take it 2 hours before you get up. It's very individual. But you don't want to go leaping back from 6am to 3.30am in one go. Try 5.30am for a couple of weeks. See how you feel. Write notes. Then, if you think nothing much has changed, go back to 5am and hold for a couple of weeks and keep notes. And repeat. Half hour steps at a time. When you get near your sweet spot you might need to adjust by 15 minute slots.

It helps to raise morning cortisol, which will then have a knock on effect (over time) to the cortisol results during the rest of the day. So it can help to raise all day levels, but it won't be instant.

FancyPants54 profile image
FancyPants54 in reply toFancyPants54

Also, keep at the 6.25mcg level of T3. Don't be tempted to increase the dose until you have found your sweet spot and lived with it for a while.

Maya_83 profile image
Maya_83 in reply toFancyPants54

That's great advice, thank you.

I will get a copy of the book.

Will it make a difference the fact that I'm 7weeks + pregnant?

Ihave3kids profile image
Ihave3kids in reply toMaya_83

I honestly don’t know about taking T3 in the early stages of pregnancy. I do know that having well-controlled hypothyroidism is important in pregnancy. Are you able to ask your doctor or endocrinologist about this or are you self-treating? Of course, it is natural to be more tired in the early stages of pregnancy and that happens in women who are not hypothyroid, so it would be wise to not attribute any new fatigue to adrenal or thyroid problems. It could well be just pregnancy tiredness, which is common and very normal.

Maya_83 profile image
Maya_83 in reply toIhave3kids

Thank you.

I've been feeling like this for the past 2years now so it's been a long on-going battle.

I'm self medicating for the past year now, I've not told my doc about t3 yet. Not sure how he'll take it☹.

I was advised from here to do the cortisol test after all my vit and minerals are optimal.

Just wanted to say sorry for jumping on your post, but I really appreciate all the advice and knowledge shared by everyone. Truly greatful x😊

Ihave3kids profile image
Ihave3kids in reply toMaya_83

Please don’t apologise for asking about the Circadian T3 method. I’d definitely recommend reading Paul Robinson’s book, as others have suggested. You will then see why taking T3 in the early hours (to support Circadian rhythm) is helpful to many. Even if you wake at 8am, taking it at around 3.30/4 am perhaps, would still be a good option for you to try. Our circadian cycles are much the same, despite us all getting up at slightly different times. Most people find that early time slot works well for them. Good luck with your pregnancy.

Ihave3kids profile image
Ihave3kids in reply toMaya_83

I agree with FancyPants54 You need to move your T3 dose to about 3/3.30am. That is when T3 is needed to make cortisol. You should not use additional adrenal support when doing the T3 circadian method. Definitely buy Paul Robinson’s Circadian T3 Method book. It explains everything. Most people end up on 10-15mcg of T3, taken any time between 2-3.30am. It meant avoiding going on hydrocortisone for me. That was my other option for increasing my cortisol but I didn’t want to really take a steroid. I’d def read the book and give it a try!

jgelliss profile image
jgelliss in reply toIhave3kids

Have you tried a small dose of T3 prior to going to sleep and see if that works for you too ? I found that dosing with a small dose NDT helped me with my sleep and Cortisol in the AM instead having to wake up 3AM to dose with T3/NDT .

Maya_83 profile image
Maya_83 in reply tojgelliss

What time do you take each night? Or will it depend on what time you're going to bed that night?

I really really struggle in the morning, it takes me all day to feel a little alert around 5/6 pm and then bed time I'm wide awake!!

Cortisol saliva test revealed I was low in the morning, lunch, okish evening then high at night 🙄. I'm also 7weeks+pregnant so didn't want to take any adrenal support except for doubling my vit c.

jgelliss profile image
jgelliss in reply toMaya_83

Congratulations upon your great news . Enjoy every minute of it . I take a low dose of 1/8 NDT with my Levo about 11PM prior going to sleep it helps me very much with my morning Cortisol . I found that when I took 1/4 dose NDT it woke me up 3AM and I had a hard time falling back to sleep .

Best Wishes .

FancyPants54 profile image
FancyPants54

Hi

Last Christmas Eve, with great hope, I switched from Levo. to Nature Throid. I had used some NDT in the past, but then ended up on inadequate Levo and felt dreadful. My HRT doctor got me the Nature Throid prescription.

Day one, first T3 past my lips in a few years, felt lovely. Calm and happy.

Christmas Day, felt less happy and a bit anxious. From there on in it was downhill faster than a skiing competition. The anxiety was through the roof. I couldn't sit still for the anxiety and the fear and the awful way I felt. I felt it for the morning and afternoon and it would ease off in the evening (the furthest away from the tablet).

I thought I just had to get used to it so I stuck with it for 1 month. The worst month I've had I think. I could barely get to work and pack the orders and get home again. I couldn't think, I drove my car into my gatepost and dented and scratched the rear wheel arch badly (lived there for 22 years and never touched the gate posts before. I nearly crashed at a junction because I saw it coming but didn't stop fast enough. I was scared. I cried all the time. My brain didn't work. I was exhausted. My hair fell out in a massive way.

Eventually I thought I had to do something else so I got up and just took 25mcg of Levo and that day felt better. And from then on, on just 25 Levo I started to recover. It was way too little, but the difference was shocking. I felt very exhausted physically but could function better in my head and didn't feel dangerous driving. I then took over my own dosing and titrated up to 125 Levo in the autumn. Felt better in myself but physically wreaked still. I started adding in just 6.25 of T3 to my Levo in November I think. The difference was quite noticeable. I am now taking 6.25 T3 when I get up and again at 4pm and have reduced my Levo to 100mgc. I am feeling a lot better. It's not enough, but I will hold this for 6 weeks and retest to see if I need to reduce the Levo further and increase the T3. This is how I expected the Nature Throid to make me feel. It didn't. I won't touch the rest of the bottle.

Ihave3kids profile image
Ihave3kids in reply toFancyPants54

Well I think you maybe got the new Naturethroid batch, as the older product was quite life-changing for me. The new batch has made me incredibly ill. Dreadful how such inconsistencies exist between batches. What was a reliable and effective medication, has become a nightmare for me now. I totally understand about scraping your car etc. It’s the brain fog. The lack of clarity of thinking. I hope you are able to stabilise yourself with the levo/T3 combination. At least you have access to T3. It can make do much difference, even in small amounts. Good luck!!

FancyPants54 profile image
FancyPants54 in reply toIhave3kids

I'm doing a lot better than I was on Levo alone I think. A long way to go. But I feel promise. For the first time in a very long time I've been slowly able to clean the house better and make a stab at getting rid of some clutter. I've been incapable of housework for a long time. I am having to source my T3 myself (actually I had a stash from a few years ago, that I never got around to using). My GP doesn't know and I'm not about to tell her either.

Ihave3kids profile image
Ihave3kids in reply toFancyPants54

My GP knows nothing about my thyroid medication. When I try to tell them, they just mutter that they don’t understand or know what NDT is. I try to tell them the equivalent dose of levo, so they can record it on my medical records but they just switch off and won’t talk about it. There’s no way I’d tell them I take T3 on top of NDT. I don’t care. They told me I didn’t need thyroid hormone. Here I am on nearly the equivalent of 200mcg of levothyroxine and my blood work shows I’m not overmedicated. According to my GP’s reasoning, I should be hyper (if as he said, I didn’t need any thyroid hormone). He’d have been happy to call it M.E. and leave me bedbound. I will never listen to thyroid advice from anyone at my GP’s surgery again. They are all woefully inadequate. I’m glad you are feeling better. As you say, you gradually begin to tackle things that you were unable to before. A bit more cleaning, a social visit here and there, having the energy to take care of appearance better etc etc. That’s what I noticed as I improved. Of course, that progress is threatened now by the Naturethroid problem. I’m going to do my best to fight back though and get back to where I was!!

I hope you continue to improve xx

Howard39 profile image
Howard39

Hi

I know of many people who have had issues with the new nature throid. Most have swapped to metavive and are doing really well on it. It also has the bonus of being sold in the U.K.

One grain is roughly the same as 60 mgs of metavive. Everyone is different so what suits you may not suit me. It’s trial and error sadly time consuming and costly.

Personally I found nature throid quite weak so I am sticking with a different brand and need less of it.

Either way you need to increase your medication and monitor your temps.

At least you have an excellent specialist.

Good luck

Ihave3kids profile image
Ihave3kids in reply toHoward39

Thank you. My doctor gave me Metavive Pro and I can’t find that actual product on the supplier’s website but I guessed that 60mg was probably equivalent to 1 grain and 30mg to 1/2 grain and 15mg to a 1/4, as that would make sense falling in line with NDT amounts.

It’s a relief to know that people are using Metavive and that it’s working for them. I took one 60mg yesterday and another 60mg this morning and have had 30mg this afternoon. I’ll see how I go with that for a few days. See if that does the job of my 1.5 grains of Naturethroid.

I don’t know what they changed with Naturethroid but I feel as though I’ve taken no thyroid hormone for over about 10 days now. Literally gone from feeling pretty good to the hypo pit of despair. Quite frightening that the manufacturer can deny any changes to the formula.

Please may I ask what NDT you now take? I find recommendations very helpful.

Thank you.

I had started on Nature-Tyroid for the first time last month I was only on it for a couple of weeks but became ill and had balance problems. I am now back on my Thyroids s, what a complete waste of money and effort sourcing Nature-Tyroid, feeling ill and being ripped off too.

Framboise profile image
Framboise in reply to

Bunnyjean, I'm jumping on here, I'm sorry to hear you've had problems too. When you say "balance problems" do you mean you feel slightly dizzy and off-balance, or do you mean you fall or stumble when walking? I'm trying to make sense of what's happening to me at the moment, I'm feeling dizzy and off-balance and slightly nauseous.

Ihave3kids profile image
Ihave3kids in reply to

Yes, dizziness and feeling spaced out is what happened to me too. I think you maybe got a batch of the new Naturethroid. The old one was wonderful. The new one (for me personally) is dreadful. It used to be a fantastic medication. It was giving me my life back. I feel as though I’m having to start all over again now. I think I’ll try Thyroid S. I hear good things about it and it’s cheaper too!

Framboise profile image
Framboise

I've also had problems with the new Nature-Throid. I had private prescriptions for it in January, March, April, August and November of this year. After the first three lots I had to increase my dose as my levels had gone down. The August lot was ok at the new dose, then in November I got another new lot (500 :( ) and have been feeling very odd since then. Shaking, anxious, off-balance, nauseous etc. The last two nights I've got cramp again in my feet just sitting down. On the other hand my brain is working well and some of my usual hypo symptoms haven't returned, so I'm at a loss.

The latest November ones are Lot Number 098038-18J01 Expiry 09/2021. Please can you tell me what the lot number is of the latest ones you have? If you have the original jars it will be on the far right of the label, just above the barcode, and may be hidden under the label attached by your pharmacy, but that will peel back to reveal it. If it was dispensed into a brown jar then it should either be printed on the pharmacy label or on their invoice. If you have any of the lot numbers of the previous batches you've been taking they would also help. The reason I ask is because if enough people think one particular lot number is worse than others we may be able to complain. I also want to satisfy myself that my current symptoms are from the Nature-Throid and not something different.

I was thankful to finally have found an endo who agreed I needed thyroid hormones having had to self-treat since Dr Skinner died, but his preference for Nature-Throid has defeated me! I have some Thyroid-S which I used to take, and also some Greek T3 and I'm going over to those.

Ihave3kids profile image
Ihave3kids in reply toFramboise

Framboise, I used to see Dr Skinner, as well as Dr Myhill (I still see her). Dr Skinner made me realise that my M.E. was heavily thyroid related. He was ahead of his time in his thoughts on thyroid treatment and its relationship to chronic fatigue states.

I’ve looked on my pots of Naturethroid but unfortunately my doctor and the pharmacist have stuck their own labels on top of the codes. I think the code on the most recent pot of my 0.5 grains of Naturethroid (that isn’t working well for me) is something like: 098178.18K05. Expiry 10/2021. Is that of any help to you?

I’m now taking Metavive (as of 2 days ago!) I came away from Dr Myhill’s with a pot once. She wants her patients to use it and wanted me to change from Naturethroid to Metavive but Naturethroid was working well for me and so I took a pot of Metavive but never used it (until now!)

It seems to have brought me back from the brink today. I gather quite a few people now use it instead of NDT. It’s not marketed as NDT but as a glandular supplement, so it can be sold over the counter and without prescription, in the U.K. Many claim it works as well as NDT. Just google Metavive to read about it.

I’ll let you know how I get on with it. If it’s ok, I’ll order more. If not, I’m ordering Thyroid S too.

Framboise profile image
Framboise in reply toIhave3kids

Dr Skinner was a wonderful man wasn't he! I thought I was slowly dying by the time I got to see him. If only he were still here. However I'd also love to see Dr Myhill, if only she were taking new patients! She writes a page in What Doctors Don't Tell You and I love reading her words of wisdom.

Thanks for telling me your lot number, it's been made a month later than mine and mine are 1 grain tablets, but I'm quite sure mine are different from the previous batch I got in August. Have you told the pharmacist you got them from what you think of them? I've told the one I bought from, but he says no-one else has commented on that particular batch, although he knows there's an overall problem.

Thank you for telling me about Metavive, I've seen it mentioned here a couple of times and was wondering what it was. I'm amazed that Dr Myhill is recommending that, if it works it would be wonderful! I think I've read that someone else was told about it by Dr Peatfield. Please let me know how you get on with it, and how much you need to take compared with what you took of Nature-Throid. Gosh fingers crossed! I'm also ordering more Thyroid-S if I can find it again.

Jodypody profile image
Jodypody in reply toIhave3kids

I’ve just had a look as I’m getting nice and fat with no fingernails on my latest batch of naturethroid. I’m on 3 and a 1/4 grains of nature what should I go for metative dose wise do you think?

Ihave3kids profile image
Ihave3kids in reply toJodypody

Yes! My fingers are fluid filled and fat this morning. My eyelids too. People are recommending Metavive and Thyroid S it seems. I took Metavive yesterday and the day before. Yesterday I felt ok but today I feel a bit on and off. However, that may not be the Metavive. I think it’s because in the 10 days I was taking the new pot of Naturethroid, I dipped in to quite a hypothyroid state and now I’m having to come back out of it. As you know, it’s not easy once the boat has been rocked! My body is in a bit of a state of shock I think. We were doing so well before. I’ll DM you about Metavive x

Jodypody profile image
Jodypody in reply toIhave3kids

Also did she recommend the bovine or porcine?

Rapunzel profile image
Rapunzel

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Just so you know. This has been discussed before :)

Ihave3kids profile image
Ihave3kids in reply toRapunzel

Thank you. I’ll have a look at those discussions. I’m finding it hard to keep up with the comments here, as I’m very tired today.

wellness1 profile image
wellness1

Hi, Ihave3kids . You are in good company. You'll find several discussions here and elsewhere about people's travails on the reformulated Nature-throid. I am one of those affected and like you, felt "totally disheartened" by the set-back. I felt I was really beginning to improve through a combination of Nature-throid and other interventions and am still trying to recover to where I was. I identify with your comment about the "glimpse of health" being snatched away. I had thrown so much at attempting to feel well and thought I was genuinely beginning to reclaim my health. I was shocked at how large a role the thyroid hormone replacement piece is and how vulnerable it all was to a pharmaceutical company's decision to change its formula.

I have trialled Erfa Thyroid and NP Thyroid by Acella. I don't love Erfa and all its excipients, but I do ok with it. I didn't get on well with NP, so I went back to Erfa and am currently trying to get the dose right. I may look into other options going forward, but am feeling worn down by the process at the moment. I am so sorry you and Framboise have had this struggle over the holidays and I hope you are able to relax and recover now. I was in a stupor yesterday. :)

Interested conversation about taking T3 to elevate morning cortisol.

Ihave3kids profile image
Ihave3kids in reply towellness1

I’m sorry you’ve had the same problem too. I wanted to ask about Erfa and NP. I see NP was an alternative that people who were no longer doing well on Naturethroid , were swapping to.

Do you source Erfa and NP yourself or is it through private prescription? I do have the option of private prescription.

I’m on Metavive now. Purely because I had a pot of it in my cupboard from my M.E. doctor. I have a diagnosis of M.E. but think my thyroid is a big player in all of it. That is why I was so pleased to be making good progress on the old Naturethroid. For the past couple of months, my fatigue had reduced considerably to the point where I was envisaging a relatively normal life again and now, it has all disappeared out of my grasp. As you say, it seems unbelievable that a thyroid tablet can hold our health in the balance like that but for me, those tablets did! I know exactly what you mean about the power of those little pills. The difference between being extremely ill and relatively well.

I don’t feel well again today. Like you, this is going to be a tricky road back. I can just tell. It’s not going to be as simple as swapping out another pill. My body (adrenals) are very sensitive to changes in medication. It took me 3 years to reach a decent dose of Naturethroid and T3. 3 years of setbacks, experimenting, patience and I was really getting there. I’d give anything to get back on track.

Lots are recommending Metavive. So I’ll persevere with that. I can share what I know about it with you via DM if you like bd maybe you could let me know where you source your Erfa and NP?

I really hope you recover to where you once were. I think all of us work so hard to recover our health. We don’t deserve to be beholden to a drug company who switch things around and then deny it!

Framboise profile image
Framboise

I felt brilliant on Armour until 2009, then ERFA until 2014, and then Thyroid-S, so no, you're not supposed to feel awful on NDT Londinium. I'd say Nature-Throid is currently a waste of money!

mrmoo profile image
mrmoo

Where did you get the Metavive Pro from? Have you tried it at all yet?

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