A petition about T3 for you all to sign - Thyroid UK

Thyroid UK

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A petition about T3 for you all to sign

greygoose profile image
77 Replies

change.org/p/american-thyro...

Seems things are getting difficult in the US, too!

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greygoose profile image
greygoose
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77 Replies
humanbean profile image
humanbean

I wish petitions would give the date that they were created in the blurb. If that date was there I couldn't find it.

greygoose profile image
greygoose in reply tohumanbean

No, there doesn't seem to be a date.

jgelliss profile image
jgelliss

Signed and Delivered . Thank You greygoose .

greygoose profile image
greygoose in reply tojgelliss

Thank you, jg. :)

jgelliss profile image
jgelliss in reply togreygoose

My Pleasure . It's for our own GOOD and BENEFIT . I Thank You . We need to bring more attention to T3 so that Dr's will readily dispense it for patients .

greygoose profile image
greygoose in reply tojgelliss

That's absolutely right! Ask all your friends and family to sign, too! :)

Petalrugbaba profile image
Petalrugbaba

Signed

greygoose profile image
greygoose in reply toPetalrugbaba

Thank you. :)

G2G2 profile image
G2G2

Thank you for posting. Signed & donated to the cause.

greygoose profile image
greygoose in reply toG2G2

Thank you. :)

ZippyAppletush profile image
ZippyAppletush

Signed! 🤞🏻

Kipsy profile image
Kipsy

Signed

Neverending63 profile image
Neverending63

Signed x

mourneadventurer profile image
mourneadventurer

Signed. Thanks for posting.

greygoose profile image
greygoose in reply tomourneadventurer

You're welcome. :)

Gcart profile image
Gcart

Signed

LindaC profile image
LindaC

Signed. Sadly, there is that growing undercurrent of 'Pet Theory' arrogance being pushed by specific endos in certain places, not simply Pharma interests.

Like lawyers, 'they all P in the same pot' and are pushing this 'T4 is all that's needed' internationally... even up to 2014, GP's were free to make choices on preferred treatment on a named patient basis.

Hang on to those hats... :-(

greygoose profile image
greygoose in reply toLindaC

Yes, makes you wonder what's behind it all... :(

LindaC profile image
LindaC in reply togreygoose

It may well seem trite, but anyone listening to Prof. Weetman... his followers are within my local Teaching Hospital [where I believe he spent some time], will very quickly grasp what has been going on for some time... 'Pet Theories Rule OK'.

greygoose profile image
greygoose in reply toLindaC

Yes, but the question is, where did Prof. Weetman get his ideas? And, more to the point, why the hell did he become an endo? He hates hypos!

LindaC profile image
LindaC in reply togreygoose

Imagine the distress of those of us - who remain suffering - whilst within my home town, my own university - which has such a rich history within the field of endocrinology - yet the treatment of myself and several others is...

Imagine my concern when I read:

Celebrating 125 years of thyroid hormone treatment: Published 13 May 2016

"Doctors and clinical researchers from around the world came together in Newcastle to mark 125 years since the discovery of thyroid hormone replacement."

THYROXINE discovered by Newcastle medic

: “In 1891, a young Newcastle doctor, Dr George Murray, injected an extract from a sheep’s thyroid gland into a patient with symptoms of thyroid under-activity. Over a period of months, the patient got much better. 125 years later around 3% of the population takes thyroxine or thyroid medicines." Added to this was, "Considering that the idea of a ‘hormone’ hadn't even been invented at this time, Dr Murray made a remarkable medical advance; one that millions of people continue to benefit from."

Indeed the above is factual re the remarkable use of sheep thyroid extract BUT that was use of the WHOLE thyroid extract, not the isolation of thyroxine. It was even intimated that in 2016 Dr Murray discovered thyroxine... which was, of course, not discovered until:

"Thyroxine was first isolated in pure form in 1914 at the Mayo Clinic by Edward Calvin Kendall from extracts of hog thyroid glands. The hormone was synthesized in 1927 by British chemists Charles Robert Harington and George Barger.". No one is seeking to detract from the excellent work of George Murray, but I suspect that thyroid glands had been in the USA in the 1880's.

Now, one might reasonably assume that my 'Home Town' would be... hmm... it may well be for some but not of the several people that I've met with. My own story is in process of being written because it defies any sense of reason, from any quarter: it is quite shocking, as I continue to worsen.

As for Weetman: "In the early 1970s, Newcastle University was renowned across the globe for ground-breaking research in the field of Endocrinology. Here, the legendary Professor Reg Hall was dissecting out the mechanisms of thyroid gland disease at the Royal Victoria Infirmary. Reg was an exceptional mentor, and he had a knack for finding and nurturing the most exceptional clinical scientists. His protégés included Tony Weetman, current? Dean of Medicine in Sheffield, and Alan McGregor, Professor of Medicine at King’s College London. And in 1971, there was a new member of the team, Dr Terry Davies, an enthusiastic recent graduate of the Newcastle undergraduate medical programme, MBBS." And on it goes...

greygoose profile image
greygoose in reply toLindaC

Yes, but we all know that things are going backwards, not forwards, since Big Pharma came to power.

LindaC profile image
LindaC in reply togreygoose

You asked where Prof Weetman got his ideas... THAT is where - my home town.

'Big Pharma' is, for me, less of the problem - 'The Boy's Club of Pet Theories' seems to reign supreme.

greygoose profile image
greygoose in reply toLindaC

Well, maybe...

mfinn profile image
mfinn in reply togreygoose

Prof Weetman hates hypos, especially women hypos!

greygoose profile image
greygoose in reply tomfinn

Yes, I know. That comes across loud and clear!

Music1 profile image
Music1

Signed. Thank you for sharing greygoose.

greygoose profile image
greygoose in reply toMusic1

You're welcome. :)

I have written, signed and paid up I hope this helps. Perhaps, we should take arms, not against a sea of troubles but against the way all thyroid patients are being mistreated.

greygoose profile image
greygoose in reply to

Plenty of people are 'taking arms', but so far we haven't seen any results. Things just seem to be getting worse rather than better.

LindaC profile image
LindaC in reply togreygoose

Once the establishment helped 'see off' Gordon Skinner... with his World Health Register and the idea that a fund for legal action be set up... that was the turning point of loss of hope.

greygoose profile image
greygoose in reply toLindaC

:'(

Just out of interest are there any figures for the number of people affected by thyroid problems? Percentage wise.

greygoose profile image
greygoose in reply to

I expect there are, but I don't know them.

Tiredmum75 profile image
Tiredmum75

Signed greygoose and shared too other thank you for sharing

greygoose profile image
greygoose in reply toTiredmum75

Thank you, and you're welcome. :)

I can't see us all marching for better treatment most of us are feeling too poorly.

greygoose profile image
greygoose in reply to

That's absolutely true. You need energy to riot. That's probably why they think they can get away with murder, in our case - sometimes literally!

in reply togreygoose

Exactly right, shame on the health professionals, in fact they are the exactly opposite of professional these people are amateurs playing with our lives.

greygoose profile image
greygoose in reply to

Well, they do think they're god. And they really aren't interested in our lives.

DeeD123 profile image
DeeD123

Signed but I so wish these petitions weren’t needed. The evidence is in plain sight so I honestly cannot understand why thyroid patients have to continually fight for the right treatment. 😢

greygoose profile image
greygoose in reply toDeeD123

I'm sure the reasons are long and complicated. But, basically, it comes down to ignorance, arrogance and money. :(

DeeD123 profile image
DeeD123 in reply togreygoose

And I think money more than the others. 😡

greygoose profile image
greygoose in reply toDeeD123

Absolutely.

LindaC profile image
LindaC in reply toDeeD123

Long before hard cash became an issue, arrogance and ignorance reigned supreme... the latter concern over money has only served to aid and abet the arrogant and the ignorant in their quest... this is akin to the Middle Ages but with no Renaissance in sight :-(

greygoose profile image
greygoose in reply toLindaC

That is all very true. But, as patients become more informed, and start demanding their rights to good health, the arrogant and ignorant will eventually be tumbled from their perch. But, until the supremacy of Big Pharma is destroyed, we don't really stand a chance!

DippyDame profile image
DippyDame in reply togreygoose

To borrow a quote from the Thyroid Petition Scotland FB page/Lorraine Cleaver

"Remember that all through history, there have been tyrants and murderers, and for a time, they seem invincible. But in the end, they always fall. Always.”

Mahatma Gandhi

greygoose profile image
greygoose in reply toDippyDame

That's very true. :)

LindaC profile image
LindaC in reply togreygoose

Indeed, but many that I've met are too scared to 'take them on'... wouldn't say 'boo to a goose' [sorry, couldn't resist! ;-) ] I've challenged them sentence by sentence... but if John Lowe couldn't make any indentation, what chance do we have? That doesn't mean that I'll stop but we all need to 'stand up and be counted'. In 2019, I will 'publish and be damned' :-) xox

greygoose profile image
greygoose in reply toLindaC

Good for you!

Beverleyb profile image
Beverleyb

Signed..

Raventhorpe profile image
Raventhorpe

Signed, thanks for posting.

greygoose profile image
greygoose in reply toRaventhorpe

Thank you and you're welcome. :)

Jamrod profile image
Jamrod

Singed and donation made. Thank you for information on this Grey goose.

greygoose profile image
greygoose in reply toJamrod

Thank you, and you're welcome. :)

DippyDame profile image
DippyDame

Done...an international revolt required me thinks. Wish I had the strength,

Hormone-hell profile image
Hormone-hell in reply toDippyDame

I'm in for that!

OrangeGirl profile image
OrangeGirl

Signed and shared on Facebook.

greygoose profile image
greygoose in reply toOrangeGirl

Thank you. :)

judithclaire profile image
judithclaire

Signed

lucylocks profile image
lucylocks

It won't let me sign, I wonder if I have signed it before, could this be the reason?

greygoose profile image
greygoose in reply tolucylocks

It very well could, yes. It won't let you sign twice. :)

Barb1949 profile image
Barb1949 in reply tolucylocks

It wont let me sign either. I was also wondering if I might have signed previously.

I am one of the lucky few who gets T3 on the NHS. I only take T3 at 60mcg per day. I now feel closer to normal than at any time in the past 37 years. Over half my life fighting!

lucylocks profile image
lucylocks in reply toBarb1949

Yes maybe you have signed before.

It is so good to hear you are doing well on 60mcg. T3.

My daughter takes 75mcg. and feels much better than she did, but still feels there is room for improvement. She has to purchase them herself, well I do. I get them as her main birthday and Christmas presents, then just add a few small presents. This way its saves her paying out for them all the time.

Shame we have to do it this way, but all she has been offered from NHS is levothyroxine and she felt awful on it.

thyr01d profile image
thyr01d

Signed thanks Greygoose and no need to thank me!

nightingale-56 profile image
nightingale-56

Signed.

Credo profile image
Credo

Signed.

Alanna012 profile image
Alanna012

Signed😊

Flecmac profile image
Flecmac

Signed, thanks x

greygoose profile image
greygoose in reply toFlecmac

Thank you. :)

Spotydave profile image
Spotydave

Signed

Sazzle14 profile image
Sazzle14

HI signed. I have Hasimotos. I struggled for years and the NHS endocrinology just kept upping my dosage. I felt so crap all the time. Eventually I went to a private GP just to try and figure out what could be going on. As the NHS doctors were not even willing to engage in a conversation as to why I still might be feeling so bad despite the figures on paper being within tolerance. The results showed that I was created RT3 (Reverse T3) which I came to understand was being counterproductive. So despite the amount of T4 being created my T3 levels were still not great.

It took some convincing but I took this information back to the NHS to fight the logic 0 eventually 1 doctor agreed and put me on a combo of T4 and T3 and I have felt normal - great infant. That was nearly 10 years ago. However, my GP is telling me that all of a sudden they are thinking of taking it away... I have been TOLD, not asked, TOLD, to go back to the endocrinology unit and I know its just because of the cost. I just know that going back they are going to just say 'new guidance' blah blah and take it away. To be honest I cried when I finally won the battle to get T3 and now I know I will be devastated when they take it away. I just don't know what to do.

greygoose profile image
greygoose in reply toSazzle14

Yes, this has happened to so many people, and it's a scandal! And so many people end up having to buy there own T3. But, even that is getting difficult, these days.

However, I do feel that if you're going to tell you story you should at least get the facts right.

The results showed that I was created RT3 (Reverse T3) which I came to understand was being counterproductive. So despite the amount of T4 being created my T3 levels were still not great.

Everybody 'creates' rT3, it's a natural process. But, it wasn't the rT3 causing your T3 to be low. In fact, it was the other way round. It was because you could not convert T4 to T3 that the T4 was converting to excess rT3. If the FT4 gets too high - because it's not converting to T3 - it starts converting to more rT3. Therefore, adding more and more T4 is not the right approach. What is needed is a reduction in levo and T3 added to it, as was finally done for you. But, very, very few doctors anywhere know anything about that. They just don't learn about it in med school. :)

Sazzle14 profile image
Sazzle14

Thank you for the clarification x

greygoose profile image
greygoose

You're welcome. :)

Whiterose profile image
Whiterose

Greygoose what happened about the T3 petition?

greygoose profile image
greygoose in reply toWhiterose

I'm sorry, I have no idea. It wasn't my petition, I just signed it and shared it. :)

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