Private prescription : Hi all I went today and... - Thyroid UK

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Private prescription

Lost_Girl
Lost_Girl

Hi all

I went today and saw a retired NHS endocrinologist who is now practising privately. Despite him saying that my sleep problems were probably not due to being hypothyroid and at just over 10 stone, I wasn’t fat (I used to be 8 stone at my heaviest l), he was willing to allow me to try Liothyronine for 6 weeks- 2 doses per day of 5mcg and wrote me a script. He is contacting my GP with what was agreed - I have to reduce my Levothyroxene from 100mcg to 75mcg. I’m hoping someone I know in Germany can get me the tablets. Just awaiting her response. Fingers crossed.

Last results

TSH: 0.03 range 0.27 - 4.2

FT4: 21.8 range 11 -22

FT3: 5 range 3.1 - 6.8

Any advice on obtaining T3 would be appreciated. Many many thanks for support to date and for giving me the strength and knowledge to keep on moving forward.

13 Replies
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helvella
helvellaAdministrator

You don't have to rely on someone you know! So long as the prescription is written for "Liothyronine 20 microgram" tablets - and specifies 100 tablets, you can order them yourself. Link below gives some options:

thyroiduk.org.uk/tuk/treatm...

Lost_Girl
Lost_Girl
in reply to helvella

Thank you for speedy reply - mine is for 5mcg x2 ... I’ve only seen 20mcg on the links ... not sure how to get around that

helvella
helvellaAdministrator
in reply to Lost_Girl

You will not get 5 microgram tablets easily.

Most 5 microgram tablets are USA products. (There is a Netherlands product but that is subject to lots of restrictions.)

Theoretically you could take your prescription to a UK pharmacy and they could order 5 microgram tablets from the USA. Sit down before you ask the price!

Lost_Girl
Lost_Girl
in reply to helvella

Thank you. My friend in Germany is a retired pharmacist and I think he hoped she would be more able to find ... I live in hope ... if not I’ll have to get the prescription redone 🤔

SeasideSusie
SeasideSusieAdministrator

Information about sending your private prescription to Germany here

thyroiduk.org.uk/tuk/treatm...

Hopefully it has been written correctly, ie

Liothyronine 20mcg

100 tablets

(or 200 tablets)

Liothyronine 5ug

Milte - 100

Sij - 5ug twice daily

SeasideSusie
SeasideSusieAdministrator
in reply to Lost_Girl

I hope you manage to get your 5mcg ones, pity your endo didn't give you a source though.

Thanks Seaside Susie - time will tell .. I’ve just said to helvella if need be I’ll try get it changed if I have to ... not giving up just yet ! You lot have given me some spark back - 😀

I am just waiting for a private scrip from my GP and have asked for 100 x 20microgram tablets. I will be splitting the tablets so that I can take 10 mcg per day! Currently on Uni Pharma which I obtained on internet about 2 years ago! 25mcg tablets which I have been splitting into 4 (6.25mcg) and had come to conclusion I needed to slightly increase my dose, so hopefully swapping to German tablets will help! Best of luck

Lost_Girl
Lost_Girl
in reply to crimple

Thank you crimple. They don’t make it easy for us to get meds !

You can purchase these directly from the US without a prescription. The price is £72. for 90 tablets as 5mcg.

You will have to pay import duty of around £20.

Lost_Girl
Lost_Girl
in reply to Bunnyjean

I got my tablets today from USA - SigmaPharm brand

Great news

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