Oh just had an NHS blood test at Gp surgery, they are aware I take T3 self sourced and therefore agreed to get both T3 and T4 results, I've just checked online and saw, as expected a recall to see GP letter, and know they will fret over such low TSH, however look at my T3 & T4 below half range! I had my test at 10:30am and had taken no meds that morning. I'm on 100mc Levo and take half a Cytomel so 12.25 T3 and have only got my health back on track this way, I returned to running and my mental health and memory have improved. I'm guessing my TSH may react slower than expected to falling hormones levels? I should probably do a self test after taking the meds again, I had before and TSH was very low, but T4 and T3 were only just above half way in range yet doctors try saying I'm over medicated, surely the hormone ranges prove not??? I did have a genetic marker for faulty TSH signalling, I think there's more than we know going on sometimes, but how on earth will I convince my GP not to reduce my Levo? I had tried going down to 75mc Levo but felt much better on full amount prescribed, but plus T3. I have a sports watch which has noted my resting pulse at 45-50 beats, again indicating I am hypo and certainly not over medicated.
TSH 0.01 ml . 0.35 - 4.94 abnormal
FT4 12.20 . 9.01 - 19.05 normal
FT3 3.60 . 2.63 . - 5.70 normal
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RoadTrippin
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TSH isn’t very helpful when taking T3 and shouldn’t be used to inform a dose change. However your increased well being is evidence that you’re not overtreated as that would make you feel poorly.
If GP insists on focussing on TSH, perhaps suggest they retest in three months, as with low fT3 and fT4 it looks like ‘the lab messed up’.
They obsess over TSH. Mine is always unmeasurable, but they’ve been measuring it every few months for 25 years. What a waste of NHS money!
Your question has brought up an interesting point. I would love to have taken Levo + T3
but have decided to stay on NDT.
The reason being that my TSH is suppressed and as GP's freak out about this I know that if I bothered to go down this route and become well I would have to face my GP lowering my Levo to make me ill again. What a tragic situation.
That's my worry! I need to ensure they don't reduce my Levo based on the low TSH, I'll take a private test from afternoon bloods to see how the FT3 and FT4 levels compare, the above was morning after no meds.
I've got a letter asking me to make an appointment with the GP! I'll need some "TSH is irrelevant when on T3 meds" as ammunition!! Has anyone got some links please?
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