Good GP visit today hasimotos blood results

[amandac46]

Just been to GP for my medication review. Showed him my private bloods to compare against the nhs results

My nhs results are not good either.

The bloods were taken 24hrs apart.

NHS results

Tsh <0.03 range (0.34-5.6) been same since April 2017

FT4 8.10 range (7.5-21.1) going down. Apr 2017 was 11.10. Oct 2017 9.7 and now 8.10

He took one look at the results from both and confirmed I’m not very well and the moment and when I told him I’m exhausted and ache all the time he said he is not suprised

He wasted no time in checking my neck asked if I have every been overactive so gave him a brief update of issues as a child. Having b12 injection always anemic always on build up drinks to try to put weight on.

He is sending a copy of my private bloods to the endo at the hospital and referring me and said the endo can do more tests to find out what is going on.

He agreed with my ft4 being so low I cannot be over medicated.

Don’t know what to expect from endo but it’s a start what sort of test will they do

[MissGrace]

You are lucky! A sensible doctor who recognises that the TSH is not the be-all and end-all and that he doesn’t have the expertise to make you well so refers to you to the person who might help.

[SlowDragon Administrator]

Looking at previous posts, a year ago you were taking T3 as well

Are you now only on Levothyroxine?

You need dose increase in Levothyroxine. Total T4 shows your dose is too low

Did GP prescribe folic acid supplements ? If not, why not.

How often do you get B12 injections, your level is not very high

Vitamin D too low are you supplementing?

Have you had coeliac blood test yet?

If not see GP again and request

If result was negative have you changed to strictly gluten free diet?

[amandac46 in reply to SlowDragon]

Still taking t4 100mcg and t3 25mcg. I take b12 tablets and started again on vitamin d spray. I purchased some folate supplements after blood test results. So been on them a week now.

I think I had b12 injections every 3 months when I was younger I was probably between 16 and 20 years old. This was for about a year until my levels were better. Funny how I was never given any medication for the thyroid back then.

It’s weird when you look back at the medical history. Overactive thyroid low b12 anemic. I had issues with ovarian cysts and had one burst at 17 I had to have emergency surgery. I was tested for celiac disease by bloods about 10 years ago when I started having IBS symptoms it was negative. Have has severe bouts of acid reflux over the years and had endoscopic cameras but nothing was found. Also always issues with periods and severe heavy bleeding

The dots are starting to join now so hopefully the ending will be good to me.

[SlowDragon Administrator in reply to amandac46]

Very few endo's consider gut or vitamins at all.

Literally thousands with Hashimoto's on here find despite negative coeliac blood test, they are actually extremely gluten intolerant (myself included)

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

If you haven't tried it, suggest you try absolutely strictly gluten free for 3-6 months.

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Low stomach acid is often an issue with Hashimoto's

thyroidpharmacist.com/artic...

drmyhill.co.uk/wiki/hypochl...

scdlifestyle.com/2012/03/3-...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Most endocrinologist are Diabetes specialists, not Thyroid. Very few understand importance of T3. So you need to pick the endo with very great care

Email Thyroid UK for list of recommended thyroid specialists, some are T3 friendly

please email Dionne


[e-mail]

[SlowDragon Administrator]

Would recommend you get DIO2 gene test too from Regenerus

Or Blue Horizon do Thyroid DNA testing

[SlowDragon Administrator]

If you have DIO2 gene this is becoming more recognised by NHS as reason to be prescribed T3

thyroiduk.org.uk/tuk/testin...

bluehorizonmedicals.co.uk/t...