Just been to GP for my medication review. Showed him my private bloods to compare against the nhs results
My nhs results are not good either.
The bloods were taken 24hrs apart.
NHS results
Tsh <0.03 range (0.34-5.6) been same since April 2017
FT4 8.10 range (7.5-21.1) going down. Apr 2017 was 11.10. Oct 2017 9.7 and now 8.10
He took one look at the results from both and confirmed I’m not very well and the moment and when I told him I’m exhausted and ache all the time he said he is not suprised
He wasted no time in checking my neck asked if I have every been overactive so gave him a brief update of issues as a child. Having b12 injection always anemic always on build up drinks to try to put weight on.
He is sending a copy of my private bloods to the endo at the hospital and referring me and said the endo can do more tests to find out what is going on.
He agreed with my ft4 being so low I cannot be over medicated.
Don’t know what to expect from endo but it’s a start what sort of test will they do
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amandac46
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You are lucky! A sensible doctor who recognises that the TSH is not the be-all and end-all and that he doesn’t have the expertise to make you well so refers to you to the person who might help.
Still taking t4 100mcg and t3 25mcg. I take b12 tablets and started again on vitamin d spray. I purchased some folate supplements after blood test results. So been on them a week now.
I think I had b12 injections every 3 months when I was younger I was probably between 16 and 20 years old. This was for about a year until my levels were better. Funny how I was never given any medication for the thyroid back then.
It’s weird when you look back at the medical history. Overactive thyroid low b12 anemic. I had issues with ovarian cysts and had one burst at 17 I had to have emergency surgery. I was tested for celiac disease by bloods about 10 years ago when I started having IBS symptoms it was negative. Have has severe bouts of acid reflux over the years and had endoscopic cameras but nothing was found. Also always issues with periods and severe heavy bleeding
The dots are starting to join now so hopefully the ending will be good to me.
Literally thousands with Hashimoto's on here find despite negative coeliac blood test, they are actually extremely gluten intolerant (myself included)
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
If you haven't tried it, suggest you try absolutely strictly gluten free for 3-6 months.
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