Dutch Liothyronine queries : Hello All, I’m off... - Thyroid UK

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Dutch Liothyronine queries

EbonyEvans profile image
13 Replies

Hello All,

I’m off to Amsterdam tomorrow and maybe Rotterdam. Any questions about Dutch T3 that I can ask for you? I will be in town for two hours waiting on a friend who’s flight lands two hours after mine so I have nine chemists on my ‘alone time’ map that I’m going to visit. Any thoughts on what else to ask. My list so far:

Do they accept U.K. prescriptions

Brand

Price

Manufacturer

Do they do the same service as the German company we scan and email our prescriptions to.

If I have time and find one friendly enough, I’m thinking to ask - how the healthcare system works eg: can I pay a certain one-off amount and see a gp to get a prescription.

Feel free to reply or inbox me.

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EbonyEvans profile image
EbonyEvans
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13 Replies
Kipsy profile image
Kipsy

We’d all love to hear anything you find out! Sourcing T3 is a constant worry. Thank you for your post & have a good trip x

EbonyEvans profile image
EbonyEvans in reply toKipsy

Thank you Kipsy, I’ll update on Wednesday when I’m back. Fingers crossed 🤞🏾 with some good news for us all.

helvella profile image
helvellaAdministrator

From memory there is a product in the Netherlands called Cytomel - which is NOT the USA product from Pfizer (King). And a bit of delving has found:

ace-pharm.nl/en/product/cyt...

ace-pharm.nl/en/product/cyt...

ace-pharm.nl/en/product/cyt...

It isn't going to be readily available as you can see because they say (on those links):

Legal status

Cytomel 5 microgram is an unlicensed medicine in the Netherlands. The Dutch Health Care Inspectorate (IGZ) has given permission for the supply.

Cytomel 5 microgram is supplied “from-pharmacy-to-pharmacy” on named patient basis. An order signed by the pharmacist and a physician’s statement from the prescribing physician are required with every order.

I would be interested in whether the pharmacists have any knowledge or experience of Thyreoïdum (Danish sourced desiccated thyroid)?

(See this earlier thread: healthunlocked.com/thyroidu... )

Also, availability and cost of Tirosint.

helvella profile image
helvellaAdministrator in reply tohelvella

When I first saw this post on my phone, I thought it said Dutch Liquorice. Had me thinking about Zout and Dubbel Zout, Salmiak, mmmmm.

When I read the post, I wanted to suggest Liverpool or Rome:

youtube.com/watch?v=-u5Fu_A...

EbonyEvans profile image
EbonyEvans in reply tohelvella

Lol! My best friend loves the salty liquorice from there. Thank you for the link Helvella. 💜

helvella profile image
helvellaAdministrator in reply toEbonyEvans

Have a good trip.

BootsOn profile image
BootsOn in reply tohelvella

Oh yes please, 100g of Zout carefully weighed out and poured into a paper bag. Yum!

silverfox7 profile image
silverfox7

Have a good trip and thank you for asking.

heathermr profile image
heathermr

I am prescribed Cytomel by my GP on a named patient basis because the british versions of T3 are so weak and hopeless and it arrives within a couple of days to my local independant phamacy. I am aware that it is not licenced here and have had to accept that but it's still about a third the price of British T3. I am currently fighting to retain my T3 as I am a T3 only person but without it I would be dead. At present it is working well for me and seems to be the same as Grossman Cytomel.

Heather

Coppernob profile image
Coppernob in reply toheathermr

Do you include Teva brand T3 in your description of "weak and hopeless"? Because that's what I'm getting from my GP (whilst still fighting about it!) and I strongly dislike it, including the rubbish powdery consistency. Very difficult to split. (Of course did doesn't understand need to split!)

TiggerMe profile image
TiggerMeAmbassador in reply toCoppernob

Not tried Teva but I find Roma less poky than Tiromel... better if taken in one dose

heathermr profile image
heathermr in reply toCoppernob

I've not had any British T3 for a number of years now. I spent several years trying various T3s and at the time I was sending in yellow cards with poor quality and weak reports. I am now taking ACE Cytomel which seems to suit me but takes nearly 6 weeks to arrive. After several rounds with the local Endo he is at least now prescribing it for me. I wouldn't go back to any British T3. Strangely it's actually cheaper than British T3!

Trulyradical profile image
Trulyradical

Let me know how you get on. Many thanks Ebony. Enjoy your trip xx

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