Teva liothyronine : I read that many people do... - Thyroid UK

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Teva liothyronine

Patriciawoodward profile image

I read that many people do not get on with TEVA liothyronine. Since it is the only NHS approved T3 without acacia which I react to I have been limited to this one.

I have developed severe chronic insomnia which is causing debilitating effects on my life. I also had this when on levothyroxine only, but it resolved with Thybon Henning.(Yes, I’m going back to that as soon as I can)

Can I ask those of you who didn’t get on with TEVA liothyronine what symptoms you had on it?

Thank you for your help

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19 Replies
Aurealis profile image
Aurealis

are you sure it isn’t a dose adjustment that is needed - chronic sleep difficulties can occur with over and under-treatment

Patriciawoodward profile image
Patriciawoodward in reply toAurealis

If I up the dose I am wide awake and don’t sleep AT ALL.

Aurealis profile image
Aurealis in reply toPatriciawoodward

have you tried re-arranging the dose within the day, or taking a lower dose?

Patriciawoodward profile image
Patriciawoodward

Yes. If I take it near bedtime I might as well get on with a days work as it stops me sleeping and I’m totally wired.

I have tried splitting dose 7am and 2pm. No difference

Aurealis profile image
Aurealis in reply toPatriciawoodward

have you tried a lower dose? /what are your test results like?

Patriciawoodward profile image
Patriciawoodward in reply toAurealis

what I did to improve matters was take double the T3 dose….. split into three during the day…and slept for 8 hours. I was hypo after a viral illness followed by Covid and flu jabs which I reacted to and put me out of balance. I also have to change my dose from summer to winter or I become hypo/ hyper depending on which way the season is going.

The Teva is impossible to cut in quarters, so I shall be going back to thybon henning which easily cuts into quarters for exact dosing. I shall of course be on my raised winter dose

Aurealis profile image
Aurealis in reply toPatriciawoodward

We all have to find our own way through this. I also sometimes need an increased winter dose. I’ve never doubled my dose though. I had used to take extra following illness, but over a long period of time I’ve eventually reached the conclusion that it’s better (for me) to stick rigidly to my usual dose through illness and through the recovery period. It isn’t a quick fix, but it’s a quicker route back to wellness than dose adjustment which leads to instability. I just accept that I take a bit longer to recover than someone without a thyroid condition.

Patriciawoodward profile image
Patriciawoodward in reply toAurealis

I agree with what you say. I did it for one day to get a boost, luckily it worked. I am on my winter normal dose now and hope I don’t take long to adjust. Thanks for your help

Aurealis profile image
Aurealis in reply toPatriciawoodward

Good luck

helvella profile image
helvellaAdministrator

It is not the only approved liothyronine without acacia - there are also Roma capsules. (Though capsules cannot satisfactorily be divided for multiple doses.)

In case you wish to avoid swallowing capsules:

If you have difficulty swallowing a whole Capsule, empty the contents of a capsule into a minimum of 20 ml of water. Stir and drink the whole liquid to ensure you take the full dose. It is possible to do this with Liothyronine because this substance is soluble in water.

Also, Accord and SigmaPharm, though availability of these may be an issue.

helvella - Thyroid Hormone Medicines

I have created, and try to maintain, a document containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world. It is sectioned by UK - rest of the world, and by T4, T3, desiccated thyroid, etc.

And do keep up to date. I edit it frequently - sometimes trivially, sometimes extensively. If your copy is more than a few weeks old, please download it again. (You must download - not just view in a browser - for the Table of Contents to work.)

From Dropbox:

dropbox.com/s/wfhrlmb5983co...

From Google Drive:

drive.google.com/file/d/11z...

UK Liothyronine matrix
Patriciawoodward profile image
Patriciawoodward in reply tohelvella

Thank you for that.

And I see that they supply it in smaller doses. Part of the problem with TEVA is cutting a tiny tablet into 4.

is ROMA available on NHS or private script only?

Is it usual to try so many brands to get one that suits?

Lalatoot profile image
Lalatoot in reply toPatriciawoodward

Roma is available on the nhs because it is the cheapest.

helvella profile image
helvellaAdministrator in reply toPatriciawoodward

All are theoretically available on the NHS. Indeed, many posts here saying members have been pushed, even forced, to Roma, as bits of the NHS look at costs.

The problem, as so often, is cost and availability.

Roma are readily available. And they are the lowest cost liothyronine. (£55 for 28 capsules in 5 and 20 micrograms, £65 for 10 micrograms.) But switching from, say 20, to 5 quadruples the cost for the same total active ingredient.

Lalatoot profile image
Lalatoot

It is Teva levothyroxine that people don't get on with due to the mannitol in it. There have been many posts about that.

Patriciawoodward profile image
Patriciawoodward in reply toLalatoot

Yes , I'm aware of the mannitol problem. But I also read that many people have problems with TEVA liothyronine formula. Thanks for your reply.

SlowDragon profile image
SlowDragonAdministrator

Many people don’t get on with Teva LEVOTHYROXINE

Teva T3 is well tolerated

How much levothyroxine are you currently taking

How much T3

What are your most recent thyroid results and ranges

Testing early morning and last dose levothyroxine 24 hours before test. Day before test split T3 and take last 1/2 or 1/3rd approx 8-12 hours before test

Do you always get same brand levothyroxine at each prescription?

Do you split your T3 as 2 or 3 smaller doses spread through the day

And have you tried splitting levothyroxine too?

When were vitamin D, folate, ferritin and B12 levels last tested

On levothyroxine and T3 we MUST have optimal vitamin levels

Are you on strictly gluten free diet and/or dairy free diet?

suggest you consider getting cortisol and DHEA tested

might have high cortisol at night

regeneruslabs.com/products/...

cdn.shopify.com/s/files/1/0...

Approx how old are you

Pre or post menopause

On HRT?

Patriciawoodward profile image
Patriciawoodward in reply toSlowDragon

yes. I’ve been down all of these roads, thanks

crimple profile image
crimple

Patriciawoodward I used to take Thybon Henning T3 when I had a private prescription and was fine with them. I also cannot tolerate acacia powder and take Almus/Accord T4 When I was able to have an NHS prescription for T3 I was able to get Sigma Pharma, 5mcgm tablets and have been fine with them. Initially the SP was from USA but I believe it is now made in UK, same ingredients.

Patriciawoodward profile image
Patriciawoodward in reply tocrimple

thank you.

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