Pins and needles, burning from hashimoto - Thyroid UK

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Pins and needles, burning from hashimoto

Cecelina profile image
5 Replies

Hello, everyone

I have a hashimoto diagnose for 4 years.

The only problem I have is with pins and needles and burning.

My TSH was a couple of times over 5, but usually is in limits. My feritin, ionic calcium and vitamin D is at low limits. B12 is around 350-400.

Does anyone experience pins and needles with hashimoto?

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Cecelina profile image
Cecelina
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5 Replies
greygoose profile image
greygoose

No, but did experience it with low B12. Try taking a B complex with methylcobalamin, and see if it helps. :)

SlowDragon profile image
SlowDragonAdministrator

Low vitamins are common with Hashimoto's

They suggest you are not adequately treated

Can you add actual results and ranges for vitamin D, folate, B12 and ferritin

They usually/often need regular supplementing to bring to optimal

What supplements do you take, if any?

Burning and pins and needles is likely peripheral neuropathy, usually low B vitamins and low vitamin D

drgominak.com/sleep/vitamin...

How much Levothyroxine are you currently taking?

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Always take Levo on empty stomach and then nothing apart from water for at least an hour after. Many take early morning, on waking, but it may be more convenient and possibly more effective taken at bedtime.

verywell.com/should-i-take-...

Other medication at least 2 hours away, some like HRT, iron, calcium, vitamin D or magnesium at least four hours away from Levothyroxine

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients

Marymary7 profile image
Marymary7

Check your symptoms by going onto sister site, HealthUnlocked Pernicious Anemia.....don't take vit b complex or any b12 if you intend going to the doctor with PA as it will skew your results and they will not treat you. It could be that you need b12 injections.

Underactive thyroid and b12 deficiency often go hand in hand.

Cecelina profile image
Cecelina

Hello, thanks all for reply.

The results and ranges are.

Feritin 18 (5-204)

Vitamin B12 355 (187-883)

TSH 3.9 (0.35- 4.2)

Free T3 2.47 (1.71 - 3.71)

Free T4 1.09 (0.7 - 1.48)

D3 25 (20-30...insuficient)

Ionic calcium 3.81 (3.8-4.8)

Magnezium 1.9 (1.6 - 2.6)

I have a diagnose of EU thyroid Hashimoto from 2014 and i am not taking any medication.

I am taking supplements of vitamin D 3 - 2200 and I took calcium, Magneziu and selenium for a 2 months.

I don't have usual symptoms of Hashimoto like : weight gain, fatigue, constipation, inability to get warm, I only get the pains and needles and burning.

Hypo321 profile image
Hypo321

Hi Cecelina I too have Hashimotos recently diagnosed previous had hypothyroidism for 15 plus years. I too am experiencing burning sensations from within all over body horrid! do you get it all over or just certain parts?

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