Has his and gluten: Had my 1st Endo appt last... - Thyroid UK

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Has his and gluten

Fenioux
Fenioux

Had my 1st Endo appt last week, have high antibodies but normal tsh. Endo said no need to come back just have annual blood test with GP. I commented that the symptoms being experienced were affecting my daily life so could the symptoms be treated . She said they were euthyroid!!!!

Will reducing gluten and dairy help or does they have to be completely eradicated.

8 Replies
SeasideSusie
SeasideSusieAdministrator

Fenioux

Some people have benefitted enormously from a gluten free diet. However, if you're going to do it then it has to be 100% gluten free.

I would do that first, and maybe dairy at a later date if you feel this is necessary.

Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies.

shaws
shawsAdministrator

Can you post your results of your blood tests with the ranges?

Email Dionne at Thyroiduk and ask for a copy of the Pulse Online article that Dr Toft published. Read what Dr T states about antibodies if present.

tukadmin@thyroiduk.org

SlowDragon
SlowDragonAdministrator

Can you add your most recent blood test results and ranges

Did you also have vitamin levels tested?

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common and need testing and often need supplementing to improve

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's.

Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

If you have Hashimoto's and symptoms, newer thinking recommends that treatment is started

However you may be able to make progress by supplementing vitamins and going absolutely strictly gluten free

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood

Fenioux
Fenioux in reply to SlowDragon

The only results I have are

TSH 2.34 (0.35-4.94)

Anti thyroid microsomal 412.6

AntI TPO positive

Vit D 80.7 ( 80-150)

Taking vit d and calcium as have vitiligo.

I have made an appointment with GP with a view to getting all the necessary blood tests for thyroid so will have to see if they will do them all. If not I can go privately ..... will the GP take note of private blood tests results.

SlowDragon
SlowDragonAdministrator in reply to Fenioux

So TSH is too high

Vitamin D could be higher . Recommended on here to be around 100nmol

Not sure why you are taking calcium? Are you tested as having low calcium

Vitamin D naturally improves calcium levels

Vitiligo and gluten intolerance go together

Masses of links about this online

It does need to be absolutely strictly gluten free

SlowDragon
SlowDragonAdministrator in reply to Fenioux

Sorry forgot you are not on Levothyroxine.

They won't agree to starting Levothyroxine until TSH is above range

You need FT4 and FT3 tested plus vitamins

TSH when on Levothyroxine needs to be under 2. Most need it under one

Thank you will let you have blood test results that I have but have also made a docs appt to get all those you suggested so will have to see if doc will sanction. If you have private blood tests will your GP take notice if these? Will come back to you.

SlowDragon
SlowDragonAdministrator in reply to Fenioux

Some GP’s will

Others insist on repeating via NHS

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