Decent endocronologist.desparate for help!! - Thyroid UK

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Decent endocronologist.desparate for help!!

kafe1 profile image
5 Replies

Hi can anyone pm me with any good consultants. I've had m.e and graves disease. Found a goiter after having an infection ..heart rate high had weighloss and v anxious ..finally got some private health insurancecwant to spend it wisely. Many thanks x

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kafe1
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5 Replies
MissGrace profile image
MissGrace

Can you give us some idea of the area of the country or are you willing to travel any distance? (Understandable, as you can see on here, a good thyroid endo is a rarity!)

kafe1 profile image
kafe1 in reply toMissGrace

Thanks for replying am prepared to travel as I know that I had normal kabvresults for years and years without feeling normal 😂

SlowDragon profile image
SlowDragonAdministrator

Email Thyroid UK for list of recommended thyroid specialists,

please email Dionne


tukadmin@thyroiduk.org

Before seeing any thyroid specialist it's a very good idea to get full Thyroid and vitamin testing

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Private testing for suspected Graves - TSI or TRab antibodies

medichecks.com/thyroid-func...

If TPO or TG antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease). Mildly raised TPO or TG antibodies can be due to Graves

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's and Graves.

Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG, TSI or TRab thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

Also you mention private health insurance, this often doesn't cover pre-existing conditions. Best double check you qualify

kafe1 profile image
kafe1 in reply toSlowDragon

Thanks just had thyroid antibodies done..Will get as much as poss done through the gp re blood work.

SlowDragon profile image
SlowDragonAdministrator in reply tokafe1

You are entitled to copies of your own blood test results

Very important to establish EXACTLY what's been tested

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