In reply to SlowDragon: Please find attached... - Thyroid UK

Thyroid UK

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In reply to SlowDragon

mill44 profile image
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Please find attached latest bloods. Hope you can read them. I was tested for coeliac two years ago and it was negative. I take folic acid 5mg, levo 100mg, Adcal-D3 (twice daily) and now atorvastatin 20mg. I take the folic acid, D3 and statin at bedtime. I take my levo to bed and usually take sometime between 3am and 5am when I wake for a drink. I then take my other D3 about 7.30am before going to work. I also have 3 monthly B12 injections.

I have to admit that I have not tried gluten free yet

Your thoughts will be much appreciated.

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mill44
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Sorry I cannot read these!

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fibrolinda

If you type @ then Slowdragon, no gap, as you start typing a list will appear of users with same letters in name, when SlowDragon appears, click on it then Slowdragon will be notified 🙂

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SlowDragonAdministrator

Your first post

healthunlocked.com/thyroidu...

Shows you have extremely high thyroid antibodies so You definitely have autoimmune thyroid disease also called Hashimoto's

Trying strictly gluten free diet is very likely to help. As detailed in previous replies.

You won't know if you don't try it for 3-6 months minimum

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Is this how you did the test?

Results here

TSH 2.73

This is too high for someone on Levothyroxine. It should be around or just under one

Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine

(Many of us need TSH nearer 0.2 than 2.0 to feel well)

See box

Thyroxine replacement in primary hypothyroidism

pathology.leedsth.nhs.uk/pa...

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal.

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

tukadmin@thyroiduk.org

Ask GP for 25mcg dose increase in Levothyroxine and retesting in 6-8 weeks

B12 - 2000 (190-910). Obviously this is high due to injection

Folate good

No vitamin D test or ferritin tested either

NHS postal kit for vitamin D £29

vitamindtest.org.uk

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients

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