I’m new to the forum and looking for some advice. It was discovered I had hypothyroidism after giving birth two years ago. I had been extremely tired during pregnancy and as a new Mum and eventually after many doc appointments for a huge range of random complaints they did a blood test and I had close to 100 tsh.
Since then I went on levothyroxine which initially didn’t seem to make a difference, tho they said I was fine and in normal range.
I asked for my dose to be increased, and I went up to 175 levo, felt increadible but they said it was now too high and reduced it to 150.
That also felt great, so I was happy.
They said it was still too high and reduced to 150/125 every other day. I felt ok on this dose, tho not quite so full of energy.
Then they said it was still too high, so they reduced to 125. Since then I’ve been so exhausted, out of breath from doing simple tasks like washing up, having to lie down all the time, unable to pick up my kid, struggling to engage or speak with people, tearful, carpel tunnel, my joints and muscles ache, been getting dreadful debilitating hives, big ezema flare ups, now I can’t lift my arm above 90 degrees and it all aches and itches so much I can’t sleep.
Just had my last test result and the doctor says it’s still too high. The f4 is normal range at 15 and has been coming down but tsh is still too low tho it has been increasing. It is now 0.11, and was 0.09 at the test before
When I told her I feel really symptomatic she said I had depression and none of these things are related. I felt so miserable as I feel like my symptoms are making my life unmanageable - the insanely itchy and swollen hives especially and not being able to pick up my daughter. And I know that on higher doses I felt so much better, but she says I’m just looking for a simple fix and it’s not the answer but she couldn’t give me one other than it’s in my head. I asked about allergy tests and she said no, couldn’t be done unless you know what you are allergic to. It feels like I’m having an enormous allergic reaction all over my skin, my skalp, my nose, especially whenever my skin is compressed around my bra or my socks. It’s so unbarable I can’t get anything done.
I feel quite hopeless now as she hasn’t given me any options for going forward. She seemed kind of annoyed. She wants me to just keep going like this and come back in three months time for another tsh and t4 test.
I wondered if anyone on here could offer any advice or guidance as I’m at a bit of a loss