Plz help me..: hi guys.. I on gluten free diet... - Thyroid UK

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Plz help me..

Dils profile image
Dils
74 Replies

hi guys..

I on gluten free diet and dairy free diet..

Its my 3 rd week my face swelling and hands swelling increases day by day... And im feeling sleepy every time my brain fog is increasing day by day... Andb fatiqueness and laziness alot... What should.i ↓ plzzx

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Dils profile image
Dils
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TSH110 profile image
TSH110

I think you must still be undermedicated Dils as those sound like hypothyroid symptoms. The gluten free diet should help but you need enough thyroxine to feel properly better. I hope you have a blood test soon. I used to be shattered all the time even walking a few steps felt exhausting and my face stayed puffy until I got the right dose of medication. Your symptoms may wax and wane as your thyroid is attacked by antibodies and has a knock on effect. The gluten free should help reduce the antibodies and the severity of symptoms. I am sorry you are still having problems it can be a long hard road to recovery but you are really trying hard to help yourself - being so proactive when you do not feel properly well is very admirable it takes some doing! You have an impressive inner strength 👍🏽

Dils profile image
Dils in reply to TSH110

Thanku for motivating me.

Actuly iam.fadeup.of my swelling and pains.. U know every one here says me.i luk like pregnant it kills.me.. I used to b thin and smart.. But now iam.so lazy and fatiqueness and swelling and axious.. Iam feeling scared i will dye so thats y im trying to save my self..

U know gluten free and dairy free is very very hard for me. My husband suports me to get me gluten free flour.. He s trying to make me happy.. My heartburn kills me..

TSH110 profile image
TSH110 in reply to Dils

As long as you are on the Levothyroxine and your TSH is not massive like 100 or something dreadful like that you are not likely to die of the hypothyroidism, but you can still feel very unwell. I put on nearly 5 stone in the last stages of my undiagnosed hypothyroidism and in first two years of Levothyroxine and felt like I was living in a fat suit with a massive tummy wallowing about it was not a good feeling. Once I went gluten free the weight came off. It is a shame you cannot get T3 to add to the Levothyroxine to see if this helps. I switched to NDT and felt rapidly better it has T3 but because it comes from pigs thyroid you cannot have it. If you can get the TSH down to between 0.2 and 0.5 this might help damped the symptoms. It can be quite sudden for the symptoms to be controlled so keep hope that you will get improvements. Did you have any more blood tests?

Dils profile image
Dils in reply to TSH110

No my.blood has to done after two months.. Its still one month.left to get teseted... And my tsh is 4. 67 and my.tpo are too much 286..

After symptoms appeared i was dagnosed early after c section...

I hoping for improvment

Listen my dr didnt prescribed me any vitmani iam takibg my own vit b neurobion and fettycure for iron idk its safe for.me or.not but im taking it temporarly too se the improvments..

Neurobion and fetty cure are safe?

For vit b and iron?

TSH110 profile image
TSH110 in reply to Dils

That is too high for TSH I remember feeling very unwell indeed when mine was around 5 brain fog pains and aches all over falling sleep all the time and having no energy. My legs used to feel like lead - such an effort to walk. It suddenly started to drop with the next 25mcg increase in levo and I did get many improvements. I had a good Endo because he aimed to get mine down to around 0.25 and I was under his care until this was achieved. It was probably a couple of months to get there once TSH was 5 (mine was 110 when first diagnosed) the antibodies should also reduce once the TSH goes below 1 which should help. What mcg of Levo are you on now?

I am not very good on vitamins . I had severe Vit D deficiency and took about 1000-3000ui vitaminD3 daily which helped. I probably had other deficiencies such as B vitamins because I git a lot of tingling, pins and needles and numbness in my arms especially in the night when I would wake up with my arms paralysed it could be 5 minutes before I could move them. I think I was lacking I. magnesium because I got electric shock semsations in my knees and thighs and had terrible heart pains. Once I was properly medicated everything seemed to correct itself. If I take vit D3 now I get leg cramps so I have stopped the supplements. SeasideSusie is very expert on vitamins mineral and nutrition and always generous in her advice and support.

Dils profile image
Dils in reply to TSH110

Iam on 150 mcg now..

Here drz dont prescribe me vits.. Is neurobion and fettycure good for vit b and iron??

Iam taking my own here vits supplemnts are not availbl..so i take these

Dils profile image
Dils in reply to TSH110

but she wll not perscribe me without tests.. So just disappointed

humanbean profile image
humanbean

When you went gluten free and dairy free you must have cut a lot of calories out of your diet. How have you replaced the missing calories? Starving yourself isn't going to help you feel well.

Perhaps you could give us an idea of a typical days food intake and what it consists of.

Dils profile image
Dils in reply to humanbean

Taking in morning

Prebreakfst ginger lemon honey tea

Breakfst1 boiled egg or 1 apple with juice or 2 banana

Probiotic

Snack cucmber

lunch i took black eye pea flour loaf or sorghum flor loaf with vegtabls or meat

After 1 hour neurobion for vit b

Evening tea turmeric fenugreek seeds fennel seeds cinnamon tea

Snack sum time 5 almonds

Night rice

Then night probuotics

Then fattycure for iron supplement

Than at bed time husk in water

Iam trying to quit rice but i cant cox i dont have any other alternative to eat gluten free flour only two avalbk which i dint like i feel sick when i have it...

TSH110 profile image
TSH110 in reply to Dils

I think rice is ok Dils - I eat it. 150mcg is quite a good dose I only needed 125 but my sister who is tiny compared to me needs 175 - each person varies outward appearances are clearly not a good guide. Hopefully 150 mcg will help - have you been on it long yet? It takes 6 weeks to build up to full strength in your body. You may need a further increase to 175 or even a bit more if the TSH remains above 0.5/1. Sorry I cannot comment with any knowledge about the vitamins

Dils profile image
Dils in reply to TSH110

After 150 dose im also on gluten free diet and after that dairy free and strted taking probiotics.its same months..

And detox tea and started walk..

Swelling is still here lil only.minor difference in tummy and hippain is gone Thank God but

heartburn is alotttt

It doesntt go away.. I fadeup of this horrible.pain feeling like heartache..

But neck pain is stratrd it sum time come and go by own..

TSH110 profile image
TSH110 in reply to Dils

I wonder if it could be your spleen. I used to get a pain in my chest on left under the ribs felt like a horrible fullness like a dull ache as if things were too cramped in there. I think I had a swollen spleen which I believe can happen with hypothyroidism. It disappeared one my medication was correct. It was not really a burning more a hideous fullness and pressure. I did get neck pain and horrible cracking and clicking in my joints I used to crackle as I walked! That has all stopped now. Good that your hip pain has gone. 👍🏽

You have changed a lot in your diet I still cannot give up dairy just too hard for me you have fantastic resolve!

Dils profile image
Dils in reply to TSH110

It was verryyy veerryy hard for me .. I cried cried alot.. So fianly thought to give up dairy.too cox.i want my life back.

. s say after healng leaky gut we can get back to dairy...

Yes its not burning jst pressure and dull pain.. It.comes and goes.. Any thing.i eat.it.comes and.go hardlyy...

Hopi g for.improvment just.pray for.me..

TSH110 profile image
TSH110 in reply to Dils

It sounds similar to what I had - it should eventually go. I used to cry a lot but even that has stopped now. You are in my thoughts for a speedy recovery 😉

Dils profile image
Dils in reply to TSH110

i wish it comes true..

greygoose profile image
greygoose in reply to Dils

I agree with humanbean , your diet sounds deficient, as she said, in calories, protein and fat. The body needs protein and fat, and you won't find it in bread and vegetables. And you won't be getting much in the way of vitamins and minerals, either. Plus it sounds as if you have low stomach acid, so not surprising you are tired and swollen and crying.

You have a serious illness and your body needs nourishing to be able to find it. I understand you want your life back, but cutting out whole food groups and starving yourself is not the way to do it. Do you feel any better for cutting out gluten and dairy? If not, start eating them again. Get some more calories into you. Low-calorie diets are very bad for hypos because low-calorie stops you converting. Therefore you are making yourself more hypo. I honestly think you need to start eating more. :)

Dils profile image
Dils in reply to greygoose

only lil bit difference in hip bone and face swelling only only minor difference after gluten free but after dairy free nothing effects.. Yes my heartburning increases after gluten free bfr it was but not much.. Now it is dailyy...

Can u guide me.diet.ppan plzz...

greygoose profile image
greygoose in reply to Dils

I can't write you a diet plan, but I think you should try eating dairy again. See if it makes you feel worse. If it doesn't make you feel worse then carry on eating it.

And, in general, you should eat more. I don't think you're getting enough calories.

Dils profile image
Dils in reply to greygoose

i have bags around my.eye.plz guide what i.taking wrong i fadeupmof this swollen face..

greygoose profile image
greygoose in reply to Dils

That sounds as if you are under-medicated. Bags around the eyes are a hypo symptom.

Dils profile image
Dils in reply to greygoose

Ok iam waiting for another months.. Cox its been 4 week on dose change... If i will increase my.dose my reports will b of no use... Iam.waiting for time.. Cox.dr will chek my test after two months.....

greygoose profile image
greygoose in reply to Dils

OK, that normal. I wasn't saying you should change your dose now, I was just saying that it was a hypo symptom. :)

TSH110 profile image
TSH110 in reply to Dils

I was checking out pea flour and found this:

rebeccawood.com/food-as-med...

Perhaps you should stop taking it and see if you feel any better as it could be upsetting your digestion. Might be better to take it as a whole pea cooked as dahl instead?

Dils profile image
Dils in reply to TSH110

Her only.3 gf flours are avalbl..

Sorghum ehich sum say its goitorn

Blackeye pea flor

And.mixture of rice flour.corn flour split pea flour..

So what should.i take..

I will.b.left with no options

TSH110 profile image
TSH110 in reply to Dils

If you feel unwell after eating one type I would avoid it. I just thought the black eye pea flour might not be easy to digest but if you eat it and feel good then it is ok for you. I don’t eat much flour to be honest. Hopefully at least one of those 3 types will suit you ok.

Dils profile image
Dils in reply to TSH110

I like taste of only.one mixture of rice corn anf.split pea flour but suffering from comstipation...

With black eye pea flour diarhea

And chestpain is alot...

Is polysachride complex contain lactose??

Idk much about in detail so thats y iam asking iam taking iron complex so its.polysachride complex.i wana.make.sure either it is dairy free.or not...

Is.corn contain soy??

greygoose profile image
greygoose in reply to Dils

Who said that Sorghum is goitrogenic? I really don't think it is. And even if it is, that doesn't mean it's going to have any effect on your. Have you tried eating it? If you have and it didn't have any bad effects on you then there's no reason why you shouldn't continue to eat it. :)

greygoose profile image
greygoose in reply to greygoose

Is polysachride complex contain lactose??

No.

Is.corn contain soy??

No, they're two completely different plants.

Apart from soy, the only reason not to eat something is because it makes your feel bad. If it doesn't make you feel bad, eat it. But, limit sugars. :)

Dils profile image
Dils in reply to greygoose

Ohoo realy it means i can have it mixture of rice corn and split pea flour i thought its soy.thats i stopped.. It means i can have it..

Thanku so much i dont have much knowldge about plant...

Neither my english is so strong to google in detail... Thats y i come here for hlp.. U ppl r so great.

I will try ensure milk let me see how it effect me..

What about neurobion it vitamin b i hav read label cant see any thng related to dairy gluten so can i take it?

These are pills of vit b

greygoose profile image
greygoose in reply to Dils

I'm really not sure what neurobion is. Is it injectable B12? Is it a B complex?

Try the rice, corn and pea flour, see if you feel good eating it, or if it causes any problems. No-one can tell you in advance how you're going to react to it. Same with milk and other dairy products. You have to try them. :)

Dils profile image
Dils in reply to greygoose

neurobion is b complex..

And every thing i eat it cause chest pain.. So what should i do?

Either fruits bread egg every thing.m

greygoose profile image
greygoose in reply to Dils

What sort of chest pain? Is it indigestion? It could be that you have low stomach acid and are not digesting your food properly.

greygoose profile image
greygoose in reply to Dils

From what I can see, Neurobion B complex contains folic acid instead of methylfolate; and cyanocobalamin instead of methylcobalamin. So, no, it is not good. Can you find anything with methylcobalamin and methylfolate?

Dils profile image
Dils in reply to greygoose

I have an methycobalmin dr gace me for headache as painkiller.. But dont know about methylfolate...

greygoose profile image
greygoose in reply to Dils

Methylcobalamin is not a painkiller. It is vit B12.

Dils profile image
Dils in reply to greygoose

Yes i know its vit b12 its written on it...so can i take this?

greygoose profile image
greygoose in reply to Dils

Yes, but you also need a B complex. All the Bs work together, so need to be kept balanced. How is your folate?

Dils profile image
Dils in reply to greygoose

i never tested i take on my.own risk..

Here drz dont prescribe me tests..

Im trying to be well

Means neurobion and methycobal together...??

My legs become swollen so thats y i strted to iron complex...

For temporary to see the improvments..

Dils profile image
Dils in reply to greygoose

Can i take husk in water for constipation??

greygoose profile image
greygoose in reply to Dils

What is husk? These are all things that we don't have in France, so I really don't know. Does it work? Does it cause you any problems?

Dils profile image
Dils in reply to greygoose

Psyllium fiber no i dont creat any problem.. It is good for.constipation..

greygoose profile image
greygoose in reply to Dils

Then take it. :)

Dils profile image
Dils in reply to greygoose

In my.first post sum 1 said its goitorn thats y i dont eat so iam.confused..

What about chickpea is it soy?

Aawwww so cobfused...

Allah give us healthy.life where we can eat anythng what we.want...

Every thng i like contain gluten and dairy means cheese..

greygoose profile image
greygoose in reply to Dils

Why are you confused? As far as I know sorghum is not a goitrogen. Who said it was?

Chickpeas and soy beans come from two completely different plants. So, no, chickpeas aren't soy.

You said above that giving up gluten didn't make you feel any better. How long have you been gluten free?

Why don't you eat cheese?

Dils profile image
Dils in reply to greygoose

i dont knoww. I thought it contain...

Acutly i followed gluten free dairy not.on the basis of testes on every group and internet every one say for higher antibodies quit gluten and dairy...

Its been a month now...

After gluten free my chest pain nver goes off

Only hip pain os gone..

But face swelling is here .

And whenevr i standup from toilet position i cant standup...

greygoose profile image
greygoose in reply to Dils

Yes, I know people say that, but I don't believe it's always true. Certainly, it doesn't appear to be doing you any good.

Even if you reduce your antibodies, you will still have Hashi's. Reducing antibodies does not reduce the disease. The only reason I know for giving up a type of food, or food group, is because it doesn't agree with you. You've tried gluten-free and it didn't make you better. Now, try eating it again, and see if it makes you feel any worse. It's an experiment you have to do for yourself. No-one can tell you how you are going to react. If eating gluten makes you feel worse, then stop eating it again. If it doesn't make you feel worse, then continue eating it.

Same for dairy. But, don't experiment with both at the same time. First one, then the other. :)

Dils profile image
Dils in reply to greygoose

Ok i will try it... My dr didnt told me about hashimotos.. I assume due higher antibodies i have ab hashimotos...

greygoose profile image
greygoose in reply to Dils

Yes, most people who have Hashi's, have high antibodies. But, not everybody. Some people have Hashi's without high antibodies.

Dils profile image
Dils in reply to greygoose

ppl say on internet its gluten molecules has same shape as thyroid so thyroid antibodies strt to attack on thyroid.. Etc

So thats y i quit.

If i feel btr on gluten so can i take this?

greygoose profile image
greygoose in reply to Dils

Yes, I know what people say in internet. But, it doesn't work for everybody. If being gluten-free doesn't make you feel better, then there's no point in staying gluten-free.

The immune system will probably continue to attack your thyroid whether you eat gluten or not.

Dils profile image
Dils in reply to greygoose

Haeeenn???

Will continue to attack..

Now i will i do expriment.. On gluten then will se the difference..

But first will try dairy..

But after few days..

Is turmeric and fennel tea good?

And ginger lemon honey tea with acv in the.morning?

greygoose profile image
greygoose in reply to Dils

Yes, because it's not the TPO/Tg antibodies that do the attacking. The immune system will attack whether there are TPO/Tg antibodies or not.

Turmeric and ginger are good for inflammation. Honey and lemon are natural antiseptics. But, don't take too much fennel, because it can have an oestrogen-like effect. And, high estrogen isn't good for hypos.

TSH110 profile image
TSH110 in reply to greygoose

I have read that sorghum is not good if you have hypothyroidism but can’t find any facts as to why it is not good. It is brim full of vitamins etc.

greygoose profile image
greygoose in reply to TSH110

I can't find any information, either. And I've no idea what it is. But, if it's just because it's a goitrogen, then it's not really something to worry about, unless you have a bad reaction to it. :)

Badsideeffects profile image
Badsideeffects in reply to Dils

I am praying for your complete healing restoration and good compassionate Dr.

Dils profile image
Dils in reply to Badsideeffects

thankku so much

humanbean profile image
humanbean in reply to Dils

Taking in morning

Prebreakfst ginger lemon honey tea

Breakfst1 boiled egg or 1 apple with juice or 2 banana

Probiotic

Snack cucmber

lunch i took black eye pea flour loaf or sorghum flor loaf with vegtabls or meat

After 1 hour neurobion for vit b

Evening tea turmeric fenugreek seeds fennel seeds cinnamon tea

Snack sum time 5 almonds

Night rice

Then night probuotics

Then fattycure for iron supplement

Than at bed time husk in water

I think your diet is lacking in just about everything - calories, protein, and fat.

A normal woman, depending on how much physical activity she engages in, and how big she is, will need between 1400 and 2000 calories per day.

You would also need about 45g - 50g protein, (a single egg has 6g).

And depending on what you read, about 40% - 70% of your calories should come from healthy fats.

The swelling sounds like it could be caused by edema which is an effect of protein malnutrition. Brain fog will occur in anyone who doesn't eat enough, with or without a thyroid problem on top of it. Drinking tea and taking probiotics isn't a healthy substitute for real food.

Dils profile image
Dils in reply to humanbean

Idk much abt calories.. Iam afraid.of gaining weight..

So tel me.where i increase should i increase fruits in breakfast... Which fruits..

I used to drink orange juice in morning i though it makes me flue. So thats y i quit to drink juice.. Yes its edema.. 1 day i was suffering from diarreha.. Which reduced my edema.. Now iam again swollen it comes and go.m idk which tuing make my hand and face swollen

TSH110 profile image
TSH110 in reply to Dils

If you do not have enough thyroxine the food you eat is not fully converted to energy but is then stored as fat. Dieting is unlikely to make much difference. Gluten free seems to help some people loose excess weight but having the right dose of thyroid hormones is the most important factor to get the body back in balance and the metabolism working properly again. I think the latest trend is to reduce carbohydrates and eat more protein and fats. It is so hard to know what foods or diet is best I think it is a case of trying something and seeing if it helps and generally eating fresh fruit veg etc. I don’t eat meat, but nowadays I eat some fish. I find eggs are good but they upset some people. I grow a lot of my own food so I know it is ok to eat. I’m a real cheese fiend, but I don’t eat masses of calories generally and would probably be told I don’t eat enough; but I feel well, can do my work, cycle 40 miles each day there and back and my weight is stable. I must have reached some sort of balance that suits me. I think that is your quest now but while your medication is not correct, diet alone cannot solve the hormone deficiency you have. I would try to stop worrying about the weight gain, that is not your fault it is a common problem for people with hypothyroidism that is not being properly controlled. If a food does not agree with you I’d give up on it - anything that makes you feel sick clearly is not wanted by your body. Sometimes it is not an easy journey I’m afraid....

Dils profile image
Dils in reply to TSH110

What about ensure milk ??

Is it.good.for.me?

I think its.soy.milk so its also not permitted..

TSH110 profile image
TSH110 in reply to Dils

I would not advise any soy milk, it is not supposed to be good for people with hypothyroidism. It made me feel really poorly. I drink cows milk, it is not supposed to be very good for us as it is unnatural to drink another animals milk meant for its young.

Dils profile image
Dils in reply to TSH110

Hmmmm... Confusedd

TSH110 profile image
TSH110 in reply to Dils

Yes it is all very confusing as no one agrees not even the experts. I meant to give up milk but I have not been able to get the resolve to stop having it. I tried different milks and soya really upset me. Coconut milk seems about the best but it is very expensive so I just stick with cows milk it does have lots of vitamins so is not all bad!

Dils profile image
Dils in reply to TSH110

Iam feeing like balls in my legs.. Like sum thing is msolid moving in my.legs whats that?

Is it recovery r swelling? Or blackage of veins?

TSH110 profile image
TSH110 in reply to Dils

Not had that one! Hypothyroidism can give all sorts of strange sensations/aches/pains. You get build ups of fluid hence puffiness, pains in wrists or ankles and bloated feelings as nothing has proper room to function effectively. That should go once the medication is correct. You get sharp pains I think for blood clots in legs but I don’t think it is a common hypo symptom. Are the balls actual lumps or just strange feelings?

Dils profile image
Dils in reply to TSH110

Like blood clots my leg s not in proper shape is swollen near vein like lymph i dk i feel like blood clots moves in my legs i take iron syplemnts but still.. Wil it go away?

TSH110 profile image
TSH110 in reply to Dils

I don’t know what that can be Dils you may need to ask your doctor to look into it.

Badsideeffects profile image
Badsideeffects in reply to TSH110

I'd kill to be able to drink milk again. I had to quit 10 years ago and my health went down the crapper! I drank a gallon a week. One day I just became lactose intolerant. And my health is awful without any dairy. I don't care what anybody says dairy is good for you. life is not worth living without cheese lol. Food is boring without cheese. I dream of macaroni and cheese and pizza. And a tall glass of milk. Just my thoughts

Badsideeffects profile image
Badsideeffects in reply to TSH110

Tsh110 see my other reply re milk. Cows milk is meant for people. It's the antibiotics and all the other fillers that they Give the cow to increase milk production. Milk is full of vitamins especially vitamin D and calcium. I am serious ever since I had to quit drinking milk my healtu has declined. if you come from a rural community there such a thing called dairy farmers! The coe would explode without being milked because of baby calf grows up very quickly and doesn't need milk very long. Hope that info helps put some wrong info to sleep

humanbean profile image
humanbean in reply to Dils

Can I suggest you browse this website for inspiration :

dietdoctor.com/

It has loads of information available for free, including loads of recipes. It isn't necessary to join to get a benefit from it.

Dils profile image
Dils in reply to humanbean

Thanku..

Acutly i cant follow any particular diet plan cox.i grocries many thing are not availbe so thats y iam.manging wth limited things..

Dils profile image
Dils

Why dnt my.swollen go away.. Eye bags are now.prominant than before... At first probiotcis disolving.in water i feel like my tummy.is flat now it is out again... Same as was on gluten...

Legs strted to pain alot..

When wil i get rid of these face swelling and tummy..

Is.pomgranat good for me?

And ginger lmeon honey tea with acv dangerous?

Turmeric abd fenugreek seed tea good for me?

And split pea are soy?

Dils profile image
Dils

No actuly in thw morning i feel.bowl movments.. Then after than what i eat i feel bloated... Like air filled in my.body...

I take lemon ginger honey and acv in warm water....

Thanku for encouraging me..

Dils profile image
Dils

Thankuu.. 😊😊

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