As I have posted before, my GP is trying to reduce my thyroxine dose from 175mcg to 125 mcg. which I am certain will make me ill. I have analysed my results over a 10 year period and it seems results are crazy, no rationality at all and no reason why I should reduce my dose. Other views will be most welcome, as I am seeing my GP later this week and would like to present these findings.
TSH is completely contrary. NOT a reliable measure,
eg.
date TSH T4 T3
23/2/2016 0.05 18.8 7.3
7/09/2017 0.005 15.7 5.7
(0. 01 on graph)
14/08/18 0.005 19.0 5.7
(0.01 on graph)
These are just examples of just how unresponsive myTSH is to body changes. Or is it the lab?
More recently the lab seems to have only TWO TSH results: either 0.005 or 0.05!! Furthermore, this result is not shown on the graph, but recorded as 0.01
Over a ten year period, while I have consistently taken 175 mcg daily,
My T4 has been recorded as low as 13.30 and as high as 28.00. My T3 has kept within range (except for 23rd February, above.) Therefore, 175 mcg daily is neither too low nor too high and I can see no reason why it should not continue.
Written by
fiftyone
To view profiles and participate in discussions please or .
Hi -can you pop the ranges on your blood test results. They can vary from area to area. Thanks
The TSH is a poor guide for treating hypotyhroidism Your doc should ne tsking greater interest in your actual thyroid levels (ft4 & ft3) in the blood. If you have kept in range and not gone over them you should be fine, the odd going over wont harm, its only if they stay over range. Your doc should also be taking account of how you are feeling, though sadly many dont, becoming overly focused on blood test results alone.
Why is your doc reducing your meds if your thyroid hormones have stayed in range?
they are T4 ranges. This is what the GP seems to attend to most, apart from TSH, mine are always way out of range, always suppressed. My T3 is always within range.
It's the lab range that keeps changing.....One day top of range is 18, next day it's 14. My body's not to going decide it needs less T4 just because the lab changes it's range. I feel fine, have done for over 10 years. Sometimes my T4 is high, sometimes a bit lower but I feel fine.
My T4 is sometimes over range, but my T3 is nearly always within range. He says he is worried about atrial fibrillation because I had an episode endof March. However, this followed a perscription for pseudoephedrine which is known to interact with thyroxine. I have no heart problems and my heart is very normal. I feel as though I am being punished for the doctors mistake in prescribing me pseudoephedrine.
Then say that to the doctor. AF can come out of the blue for a number of different reasons. I know because I have it like that. They have absolutely no idea what causes it. The cardiologist I saw admitted that. It runs in my family. My Dad has it bad all the time, his sister and one brother had it and my cousin has it like mine, out of the blue. One minute fine, next minute heart is all over the place and leaping around like a box of angry frogs. It can last up to around 36hrs for me or less. It is terrifying and exhausting too. But they don't know why I get that. Before I was put onto thyroid medication, I was put on so many ECG's when I had the AF episodes. Thyroid was never an issue.
The hypothyroidism in your family could point to a genetic condition - thyroid hormone resistance, also known as impaired sensitivity to thyroid hormone. With it you need high T3 levels to feel will.
It could also explain need a high dose of thyroid hormones to feel well and also your unusual thyroid blood test results.
What the medical field doesn't understand is that TSH does not immediately (if at all) respond to dose changes if you have been on a particular level of treatment for a long time. The phenomenon goes under the name of hysteresis. In the same way if you had high TSH, it would not immediately respond to treatment - it might take several months to do so and reach a moderately stable level..
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Accord levothyroxine 100 mcgm 
My T3 is too high and need to reduce cytomel
Blood results - what's next?
Blood test results in advance of endo appointment + what are the MHRA guidelines for NDT?
