Newly diagnosed with hyperthyroidism. At the start of the journey to understanding and enlightenment.
Just wanted to say hey!
Newly diagnosed with hyperthyroidism. At the start of the journey to understanding and enlightenment.
Just wanted to say hey!
Hi there raymart, its a very long journey indeed and you have joined the right place, you will learn so much here from this forum, I started my long journey a year ago and I'm still not at the end. If you want to write a post with anything you need to know there are lots of us that can help, there are people who have been part of this forum for years, I'm still a baby at one year and have learnt so much.🌟🌟
Welcome to the group. You’ve come to the right place. I discovered this group when I was diagnosed with Graves Disease.
I’d say always get a copy of any blood test results with their lab ranges. Don’t just accept fine or alright or within the range as an opinion on your blood test results.
Read as much as you can about your condition and it’s treatment. Don’t just sit back unquestioningly and have your treatment ‘done to you’.
I kept all that sort of stuff in a notebook along with any questions I wanted to ask.
As well as test results and any changes in my medicines I also jotted down how I felt on a regular basis. That was useful for when I went back to see my endo. It meant the night before I went for my appointment I could look through my notes and when I was asked how I was I didn’t just say ‘fine’.
As well as a complete thyroid panel you’ll want your B12 and vitamin D, ferriten and folates treated. You want them all to be near the top their ranges to help your thyroid.
You’ll find that no matter what your problem. Someone on here will have an answer.
Fantastic advice,
Really appreciate that. That was pretty morning ch my response today. Just nodding my head and saying ok.
I’m aware that my TSH result was 0.15 and that this is under the guideline. As I remember is needs to be closer to 0.40. However, I am not quite sure what this means.
I have rung and registered with Endocrinology. However, I now have to wait one week before I can call back and arrange to start the process of making an appointment. But aware that these things can take time.
I will invest in a notebook for the very reasons you mentioned.
Research today has shown I can order online tests to get a better understanding of my readings and for many other things, such as those you mentioned above. So it may be useful to crack on with that one.
Again, thank you.
You need your T4 and T3 tested to confirm hyperthyroidism. You will also need to have a TSI and/or TRAb antibodies tests to confirm if it’s caused by Graves. If negative you need a scan of your thyroid to check for nodules.
Be aware that sometimes people with hypothyroidism/hashis have “flares” that cause hormone dumps which are mistaken for hyperthyroidism.
Thyroiditis can cause raised thyroid hormones (and therefore low TSH) - there are different types and some are only temporary.
Your TSH isn’t that low, mine was undetectable for ages when my T3 and T4 were only just over range.
Lots more testing needed I think to see what is really going on.
I’m aware that my TSH result was 0.15
That isn't that low actually. I've seen treated hypothyroid people with lower TSH than that. In order to show that you truly are hyperthyroid you would need to know the levels of your Free T4 and Free T3. You would also need to know what your antibodies were doing, and which ones you had.
You can't declare someone to be hyperthyroid on the basis of a low TSH only.
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