Hello I have been recently diagnosed with graves disease and have been put on carmizomole. Been on them for 3 weeks and also on the mini pill.
I wasnt really getting any periods (bleeding) for the last 6 months only slight spotting. For the last week I have a really heavy painful period. Does anyone know if this is normal? It's just they were so light before or not getting it at all.
I dont really understand by blood results very well but it looks like my thyroid has gone down asAugust 2021
I saw a private endocrinologist who got my doctor to do tests for me who was quite sure I had graves ( but I hope not). The blood tests were 2 weeks ago but my doctor has not followed this up with me properly. I am meant to have another appointment with the private endocrinologist once I have been on carmizomole for a month.On my blood results from 2 weeks ago I have s thyroid peroxidase AB serum peroxidase 188.0 iu/ml
s thyroid peroxidase AB serum peroxidase 188.0 iu/ml
That is an antibody test for Hashi's, not Grave's. And the main problem is that a lot of doctors don't know the difference.
Hashi's can start out with a 'hyper' phase, but it is transient, and you will, with time, go hypo. Taking anti-thyroid drugs can make you hypo a lot faster.
Hashi's swings between hypo and hyper and back again. But, the end result is hypothyroidism as the immune system slowly destroys the thyroid.
Your private endo should have done the tests for Grave's himself - I don't think GPs can order those tests, and it is down to the endo to do it. So, if I were you, I'd get back to the endo and ask for them to be done.
My doctor has been pretty useless to be honest feel like they dont care. I will go back to the private encringolgist thank you for your help much appreciated
Please ask for a print out of all your tests, as I was initially diagnosed as Graves, but followed advice from greygoose & other members and antibody tests showed Hashimotos. If you are able, you can always test privately (I use Medichecks; often discounted on Thursdays). Very best wishes 😊
This is quite common. I’ve heard from others with similar experiences.
It’s the sudden affect on thyroid levels interfering with other hormones, not a direct side affect of the medication.
When I had hyper levels I had a 35 day total cycle 5 day light period. I had elevated levels for many years.
When I started Carbimazole and my thyroid levels came down my cycle changed, at one point I had a 21 day cycle 7 day much heavier period.
It’s settled a bit now but I really prefer how they were when I had hyper levels!
Is that a Free T4 test? it’s come down from 48 to 30. Is that still above range? Lab ranges vary so would need range to fully interpret.
Do you know the cause of your hyper? Doctors should confirm, but often don’t and treat all low TSH as Graves disease.
Sometimes the hyper can be transient and levels drop soon after, taking carbimazole it will hasten the drop.
If doctors suspect Graves which causes continuous hyper you must have either TSI or Trab tested to confirm.
Your TSH (a pituitary hormone, not a thyroid hormone) is currently suppressed as it’s signalling the thyroid that you have sufficient thyroid levels. Usually Carbimazole doses need to be adjusted, ensure doctors measure FT4 & FT3 for this. Your TSH might remain low so do not allow doctors to adjust dose by the TSH. My TSH has remained below range & I’ve taken Carbimazole 3 years now.
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