My husband (who has been taking NDT for a few years) had a blood test prior to an operation. They said his bloods were out of synch and have postponed the operation. Free T3 13 + Free T4 @31.6 (no ranges given) TSH below measurement limit.Doc has been following his bloods and after the last test last Friday, now says they have improved but not significantly. He stopped taking the NDT about 4 weeks ago, so she wants to send him to an Endo... Having been a member of this site for several years this is not a positive indication. I have now insisted that he picks up his 2 latest test results on Friday - he couldn't have them before then - and I will peruse them with a magnifying glass and put them on here. Someone tell me to calm down...
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sheenah
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I’m doing pretty well on Thyroid-S thanks Sheenah and have managed to get back to part time work. Sorry to hear this has happened to your husband how very frustrating. How are you keeping?
I was actually lucky enough to have my Consultant take my thyroid tests at hospital and I thought “oh no - here we go!”. When I saw him again he asked me what medication I was taking as my TSH was extremely suppressed. When I explained he was quite happy and said that as long as I had annual blood tests and made sure my FT4 and FT3 were within range suppressed TSH would do no harm!! How very refreshing to hear & how relieved was I xx
Has your husband had his antibodies tested? Because those results look like a Hashi's 'hyper' swing. Rather than over-medication. If he hasn't had them do, he should ask for them, because that changes the interpretation of blood test results - to anyone that knows anything about Hashi's, anyway. Of course, I say that without being certain, because there are no ranges, but even so...
Thanks for that GG, although I don't know as much about it as you do, I felt that he had "swung". There was another thing - he stopped drinking wine - we have drunk wine every evening for years, but he suddenly went off it and said he couldn't stand the taste - he has eaten 2 eggs on toast more or less every day for breakfast for a long time, but suddenly went off that - I have got him on selenium as I just realised that he had been having a whack of selenium in the eggs and now that is been removed, not a good thing with thyroid issues. He is nearly 70 and I just need to look after him - the trouble is that whatever the Endo says he will do it!
Well, it's very important to get his antibodies tested. The endo will surely want to do his own tests, so that's the opportunity to ask for antibodies to be done.
I very much doubt if stopping the wine and eggs has had anything to do with it.
Ha Ha - No! I didn't mean that! It was just that these sudden changes coincided with the "swing" - also less patient, more bad tempered, throwing T towels etc. I will post the results tomorrow and look forward to your opinion!
He could have gallstones, I found that I suddenly went off foods that I had previously enjoyed and that was the reason why. I had a gallstone colic and passed 12 of these lovely little stones. After that I felt better.
Stand your ground and state that NDT has been in use, safely, since 1892 and everyone in the world took it until Big Pharma wanted a share of the proceeds and introduced Levothyroxine (T4 alone) along with blood tests and made themselves fortunes at the cost of many thousands/if not millions of patients who didn't recover or improve on T4 alone.
You can also tell them that despite the False Statements made by the British Thyroid Association etc, your husband as well as others who source their own are now fit and well and sympt9om-free.
Levothyroxine is a synthetic T4 and should convert to T3 but NDT contains all of the hormons a healthy gland would produce and has been used safely since 1892.
Thanks Shaws !! I am fairly good at standing my ground thanks to everyone on this site. Quite shockingly, one of the GPs in our practice, who is not young, said to my husband "Oh! Your'e on that weird stuff" Good job I wasn't there. I will put his results on the site tomorrow or Saturday as I have now remembered that he will be picking them up on his way home from work. Keep doing what you are doing - you are one of the mainstays of this site!!!
Maybe print this out for your GP. I think they are all too caught up in numbers - it is just like us looking at the temp guage on the cooker and seeing 250 and think oh.. that's alright but when we take burned cake out we are surprised. It's like that with doctors all made on 'assumptions' that the dose is fine as TSH is somewhere in the range instead of 1 or lower.
They also cannot interpret results when a patient is on NDT or adding T3 to T4 as the tests were made for levo alone. So they should ignore blood tests altogether and rely upon the patient's wellbeing alone, i.e. is she or he fit, well and energetic. They're on sufficient dose if they are all of these.
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Ranges redacted by my (redacted) GP !
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