Graves and low end T3 and jitters: Hello I am on... - Thyroid UK

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Graves and low end T3 and jitters

cgauthie profile image
12 Replies

Hello I am on 1.25 mg Methimozole

Graves’ disease

My recent results are

TSh 1.62 (.32-4) mlu/l)

Free t4 13 (9-19)pmol/l

Free T3 2.9 (3.1-6.2)pmol/l

Thyroid stimulating antibodies 3 (<1)

I need to get my free t3 and t4 up. I don’t feel great.

Muscle issues in neck and shoulders and some constipation anxious jitters

Am I over medicated on tapazole?

Any suggestions?

One dr wants me off tapazole the other says stay on

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cgauthie
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12 Replies
greygoose profile image
greygoose

I would listen to the doctor that wants you off it, if I were you. Your FT3 is under-range! Not surprising you feel bad. You can always go back on it if necessary. :)

cgauthie profile image
cgauthie in reply to greygoose

Thanks. The antibodies are close to normal and wondering if going off tapazole will increase the antibodies?

greygoose profile image
greygoose in reply to cgauthie

I'm afraid I don't know that. Sorry.

HIFL profile image
HIFL

One thing you could do is stay on the tapazole while adding in levothyroxine to bring your thyroid levels up. Your antibodies are still above the reference range and tapazole does help lower them, which is why you don't want to stop it just yet. This page talks more about that protocol: tiredthyroid.com/graves.html

cgauthie profile image
cgauthie in reply to HIFL

Hi and Thanks

That is what my Endo just prescribed a day ago.

Do you try this method?

HIFL profile image
HIFL in reply to cgauthie

No, I had RAI, but I know people who have been on it for years.

Valarian profile image
Valarian

How long have you been on the Tapazole, how long have you been within range, and has Graves’ been confirmed with antibody tests or by some other means ?

(Edit - sorry, just realised, you gave TSAb)

By the way, why two doctors?

cgauthie profile image
cgauthie in reply to Valarian

Hi there been in range for a year graves confirmed with TSI test

Valarian profile image
Valarian in reply to cgauthie

So you should be ok to stop, but an alternative would be to try halving the dose (or taking it every other day), and see if that makes the difference. If one of your docs is a specialist endo, would be worth asking how long you need to stick with the medication.

cgauthie profile image
cgauthie in reply to Valarian

Thanks. I am on 1 mg of tapazole. Not sure if I can cut it smaller!!!!

Valarian profile image
Valarian in reply to cgauthie

No, that’s why maybe every other day.

There are people here taking 2.5mg Carbimazole every other day, which I think amounts to a broadly similar dose - and half of a tiny tablet !

cgauthie profile image
cgauthie in reply to Valarian

I have been weighing the recommendations of 2 dr. One says get off all meds and the other says use

Block and replace because antibodies are still present

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