Hi everyone I've just joined as I'm desperately trying to source some NDT, possibly thiroid from Thailand and an not sure which sources are real and which might be dodgy.
I've been sick for almost 25 years and was diagnosed with M.E. my TSH was tested several times over and I was always just told it was normal. I also gained 5 stone in weight the first year I was sick and have been steadily gaining since.
The last 3 years I've been much worse and I've been trying to get answers. Still nothing on the NHS, I was so sick this winter I didn't think I would see another summer. A family member source some T3 and T4 for me to try and I tried a half dose as a precaution for a few days before moving to the full dose. It was like someone flipped a switch in my body, it got me up on my feet and actually able to leave the house, my face completely changed and I was almost able to recognise the person in the mirror without the grossly swollen eyes and cheeks and even the deep bone pain lessened. Near the end of the box I weaned myself back off them, soon as I was on the lower dose the improvements dackered off but I've thankfully been mostly back on my feet since providing I don't do too much but the pain, brain fog and swelling is all back to stage 1.
I went to see my GP and told her about the experiment, she told me off but sent me for tests. Before seeing her to discuss the results I requested a printout of the test results.
My TSH was 6 but all other thyroid tests were in normal range. D status, folate and several other things were very low. Several of the liver enzyme tests were way off (non drinker). The GP was only concerned about the vitamin d and advised me to supplement arch I have been doing for years anyway. She said my TSH wasn't anything to worry about and that I wouldn't be referred to an endo or get any treatment until it rose to 10. She just wants repeat tests every month which is hard for me as there are not enough parking spots near to the hospital.
I really want to try NDT whilst carefully documenting the results and read up about thiroid, I am just worried about getting a legitimate source and also about getting ripped off. Can anyone please help? Thank you, Angela