A month ago I persuaded my GP to increase my thyroxine from 75mg to 100 - I had my blood retested yesterday and have just phoned for the results and been told that a GP will be phoning and that my thyroxine is being reduced to 50mg!
As they have no idea what they are doing the only tests I've had are
TSH 0.05 (0.2)
FT4 15.6 (11-22.6)
Before my dose was increased from 75 mg my results were:
FT4 13.2 (as above)
TSH 0.14 (as above)
My GP reluctantly gave me 4 weeks of an increased does (75 up to 100) whilst waiting for me to be seen by an endo - she re-referred me as she said she can't tweak my dose etc.
The endo has bounced me back to GP As she thinks my thyroid is fine and that I need assessing for ME! The GP can only look at T4 & TSH and knows as much about the thyroid as the lollipop lady! No disrespect to lollipop ladies intended 😀 (I've followed the good advice on here and have just about purchased the supplements that I need and have been taking them for a couple of weeks now) When he phones today
he is going to tell me that my TSH is suppressed - what do I reply to this?
They are keeping me sick and making me worse- I have no control over this decision making. I think this is going to help me to finally decide that my only option is going to be to self treat with a combination of t3 & t4 - and will have to pay for blood tests that actually tell me where I'm at going forward. This is so wrong 😂
How do I argue to keep my dose of t4? He wants to half it!
I'm at work feeling like I could cry with yet another backwards step and lack of clinical knowledge from these bloomin gatekeepers!
Any advice on how to counter his argument please? X