This is from a past post by diogenes which will be encouraging to those for whom it was withdrawn or refused:-
"diogenes
a month ago
I, Peter Warmingham and Jonathan Leahy will be going to meet Leeds CCG next week. Among other things we want to try to rationalise with the CCG what their attitude is to T3 treatment either in combination or alone. Also we want to bring up the ongoing cost of T3 in the UK, and why cheaper, equally well controlled sources are not available. It is absurd that say at Dover, a tablet costs £9, whereas 30 miles away in Calais, it costs pence. Also I'd like to challenge the basic ethical morality of permitting those who use T4 only to do this free of charge, yet patients who require T3 and are refused it must consequently pay large sums to maintain health. The lack of thyroid is a chronic problem lifelong, and any treatment should morally be available on an equal basis. Finally I want to bring up the gross deficiency in prescribing T3 to those who need it. From UK NHS figures of T3 spend and the average cost per tablet, I estimate 58000 men and women in the UK will require T3 in some form, whereas less than 7000 actually get it. Also of course there is the ehtical problem whereby path labs have taken it upon themselves to decide what tests to do and what not. This is again ethically indefensible, because decisions are made without any knowledge of the patient whatsoever. All the labs should do is a) do the tests requested by the GP, and b) ONLY flag up without further comment if any results are out of range. They have no further right to interpret - that is NOT their responsibility.
I’m fairly new to all this after 20 awful & ill years on Levothyroxine- ( so by T3 - what do you mean ?) I now take Natural Dessicated Thyroid - Nature Throid - which costs a lot here in Uk I buy from a specialist pharmacy & get a private prescription from a private Endocrinologist- sorry if I sound dense - but here’s an awful lot to learn & we seem to need to self treat & diagnose ! Ive been trying to buy it direct from USA with my prescription- but have never had an answer from the manufacturer to
My email about where I can get it when there .
T3 is the Active Thyroid Hormone which is supposed to be converted from levothyroxine, which is IF the patients can do so.
Many do but the majority on this forum don't feel well at all and it is assumed they have difficulties but the medical profession does not accept this. I can state this as levothyroxine doesn't suit my body at all. In fact, many feel far worse upon it than before they were diagnosed and the 'experts' disbelieve us and probably think we are untruthful as they do not know any clinical symptoms and cannot look beyond a TSH.
NDT is Natural Dessicated Thyroid Hormones - the very original thyroid replacement first introduced in different form in 1892 and that's when lives were saved from then on and gradually spread throughout the world. Before that we died of a myxedema coma. NDT was, I assume, a sensation and made from pigs thyroid glands. It still is successful in the present day except through misinformation and untruths the Associations due, I think, to Big Pharma, the NHS has withdrawn this from being prescribed - despite it being more natural to the human body (being made from animals glands) in favour of synthetic levothyroxine which is T4 alone. Doesn't make sense - does it?
NDT contains all the hormones a health gland would produce.
One of our deceased Advisers, before his untimely death, wrote to the Associations about their untruthful statement about NDT and requested for three years for a response and they never did. This is what Dr Lowe wrote:-
thyroidscience.com/Criticis...
They couldn't respond because he was a scientist/researcher and they aren't but they made the regulations that we, the patient, cannot have options if levo doesn't help us recover and remove symptoms. They know no symptoms anyway in these modern times. We are human beings so our bodies need replenishing of essential hormones and options of synthetic or 'natural'. Besides would we prefer to have 'all the thyroid hormones' or just one which may or may not suit. Some also cannot recover on NDT because their body is different in some way and can only recover on T3 (liothyronine) the Active hormone required in our millions of T3 receptor cells. This has now been withdrawn and there is an investigation underway at present and a Debate in the Lords a couple of weeks ago about the withdrawal of it. The debate lasted from 3 p.m. to after 8 p.m. The cost of T3 went up by 6,000%.
To find a source for your NDT, with prescription, put up a fresh post asking for information to be sent to you by Private Message as no information is permitted on the Open Forum of where to source prescription medication. Your post will then be closed and you will receive private messages/
As usual huge thanks for all the care you guys put into this forum - I am learning g from it every day - I currently get a private prescription from a UK Endocrinologist- ( he doesn’t charge me for the prescription just my appointments ) he also asks my GP to do blood tests ( saying to her that I’m self funding ). I buy my Nature Throid Uk at a specialist pharmacy - what I was wondering is : is the T3 you talk about with the government bodies Nature Throid ( that USED to be prescribed by NHS ? ) Or another type of T3 ? What a minefield & all we want is to be well & work & live a normal healthy life . I’ve had to work for myself - as there’s no way I could work 9-5 Over those 20 bleak years on Levothyroxine- thanks once again - it means a lot to have your support 🤗