I'm struggling to deal with this so I'm happy to have found this forum.
Briefly - I've just moved to a different area in London so have changed gp practice. During my initial appt with the practice nurse I asked for a prescription for my T3 as was running out. She looked worried and said I needed to see GP. Gp said she wouldn't give it to me as the ccg had stopped prescribing it. When I asked what I was supposed to do when it ran out she just shrugged (implying lots of things - 'not my problem', 'I don't really care', etc)
Saw another gp in the practice, after me doing some research and finding that the guidelines seem to say that if patient has been prescribed it by endo and is doing well then they should be allowed to continue. Also that endo's are recommending that gp's shouldn't keep sending patients for unnecessary reviews in these very situations as they are inundated. She refused to give me a prescription. She refused to discuss the guidelines. The only motivation for this was cost - which she said quite openly and unashamedly. In the end, after me being very insistent that as she had admitted she didn't know much about hypothyroidism, (said T3 and T4 are the same thing) she wasn't in a position to stop my meds suddenly, she referred me to endo and said she would prescribe only until I was seen by them and after that they could prescribe themselves in they wanted.
Obviously the endo is an unknown and may also be working under the same interpretation of the guidelines.
GP, in same appointment, also refused to keep prescribing Hylo Tears for eye condition which is related to hypothyroidism.
I was prescribed T3/T4 combination - 100 T4, and 10 T4 for 5 days a week 16 years ago by Endocrinologist at Kings, because on T4 I still had symptoms of Hypothyroidism. I was reviewed yearly for a few years then referred back to my then primary care provider for follow up. They have been prescribing without question since then.
At a loss really. I know all the stuff about cost in EU and can't believe am so let down by NHS. Sorry - not so brief!