Blood is retested after 6-8 weeks and then dose is increased slowly in 25mcg steps, retesting each time. Most patients eventually need somewhere between 100mcg and 200mcg.
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels can affect Thyroid hormone working too
Essential to test vitamin D, folate, ferritin and B12. Ask GP to do so
Always get actual results and ranges. Post vitamin results when you have them, members can advise. Likely to need supplementing to improve. GP will prescribe if these are deficient
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
But don't be surprised that GP never mentions gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood
Always take Levo on empty stomach and then nothing apart from water for at least an hour after. Many take on waking, but it may be more convenient and possibly more effective taken at bedtime
Many people find Levothyroxine brands are not interchangeable. Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased
Avoid starting on Teva brand of Levothyroxine unless lactose intolerant. Many people don't get on with Teva
Thank you, I have vitamins checked because of frequent deficiencies appearing and then going away and returning, but I don't think what I take makes a huge difference to levels.
Thank you, the endoscopy hasn't yet been booked, thr doctor doesn't know I'm doing the gluten challenge. I will insist on the coeliac screen and endoscopy when I see him or her next week.
Really impressed you knew to have Private Testing done As you have only just joined - perhaps you have been reading posts and learning ! Who did the tests ? Always good for members to have a feedback if you had the idea from someone here !
Thank you, I have been feeling unwell for so many years and was fobbed off by doctor after bloods for thyroid came back normal 3 times despite symptoms. I knew something wasn't right because my thyroid swelled up and the scan just showed an enlarged thyroid.
Went back to doctor and was told the thyroid was fine so I did private testing after looking them up and these results came back.
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