Well after 4 months of taking NDT Nature Throid
I’m not unfortunately left with no choice but to go back on Levo
I was on 2 grains and my most recent blood results came back so low and I needed to increase !
TSH 4.4 (0.27-4.20)
T4 9.8 (12-22)
T3 4.44 3.10-6.8
TG Antibodies increased
TPO Antibodies decreased
I felt so weak every time I tried to increase 1/4 grain I got sweaty and weak felt scared incase the levels were building up in my blood ! There was no improvement, infant I felt worse !
When I saw 2 grains NDT equivalent to 150-200mcg of Levo I panicked !!!
I was on 75mcg Levo albeit that I was undermedicated with TSH of 5.75
I got scared took 75mcg Levo today and had a blinding headache all day 😒 just don’t know where to turn now !
Any comments please and Thankyou for all the
Previous support x
Kazbe
It might be time to consider that your adrenals might be struggling... ie: adrenal fatigue or adrenal exhaustion. This can be the result of stress, either physical or mental strain/stress. Also a good idea to get your iron, b12 and d3 levels checked. For some, it can prove to be impossible to regulate dosage of NDT if any of those are out of whack.
Do read this link and maybe do the self-tests shown on the page? You might have to get your own cortisol (adrenals) saliva (not blood tests) 4 - 5 part cortisol test. Then the trick will be finding a endo who knows what they are doing when it comes to adrenals and other hormones.' Most endos are great until you present them with anything other than diabetes...lol..
By the way, many of us who take NDT end up with our 'sweet spot' (dosage) being between 3 and 5 grains. When one reacts badly when trying to increase NDT, you are absolutely correct in trying to find out why your body won't tolerate the increases.
Thankyou very much for your reply and invaluable advice I think I will see someone regarding my Adrenals . I have seen Dr P and he did say I’ve got terrible Adrenal fatigue and I was taking Adrenavive, but then I did Saliva Cortisol tests and my results were sky high suggesting I could have Cushings so I had all the tests my Endo rules that out despite my Cortisol being 598(301-596) so only marginally out of the reference range but still high ! I really can not persuade my Endo to look at my Adrenals or pituitary because of my continuous high TSH .
Il keep you posted and Thankyou
Kazbe
Not to sound flippant but I think I would find another endo.... easier said than done, I know. One other thing to think about or research... adrenals run on salt. Many folks make themselves an adrenal 'cocktail' and consume it once/twice per day. It consists of 1/4 - 1/2 tsp of natural salt (like celtic/Himalayan/Real Salt) in a glass of water and drink it down. Some add lemon juice and stevia (a natural sweetener that does not effect blood sugar levels) and call it a lemonade..lol. easy to do. Do research or google 'adrenal cocktail' for various recipes. For mild cases of adrenal fatigue they can be helpful.
I wish I could be more helpful but I am not too familiar with adrenal fatigue/exhaustion, never having experienced it myself.
After all these years of having Hashi's I did not know about adrenals needing salt. To think that when I was newly diagnosed with hypothyroidism (in fact it was Hashis but it took 30+ years to self diagnose) I was cutting salt out of my diet and my baby son's diet. l continually get shocked by what I keep on learning on here. Thank you.
Wow me too I’ve always avoided salt thinking it was bad for your blood pressure so it does make you wonder I’m a great believer of your body telling you what it needs sometimes ! We live and learn 😀
When I had blood test in 2017 my sodium levels were at the top of the range dies this mean I have too much salt in my body ? Since then I have reduced eek have I done the wrong thing I’m learning more each day !
Thankyou 😀
Kazbe.... do your research/homework on the adrenal cocktail. If your blood pressure is thru the roof and you have hyper tension/heart problems, maybe only do the adrenal cocktail once a day with the 1/4 tsp or not at all? I am not medically qualified to say what you should do without reservation but... most healthy folks do okay with it as long as they drink plenty of fluids/water to keep it all diluted. Some manage to correct adrenal issues with supplements and/or other medications and de-stressing their lives and never use the adrenal cocktail.
There is no substitute for your own good sense and your own 'body sense' to make informed, educated decisions for your health once you have done your own research. No one knows your particular situation better than you do.
Thankyou Pheonix 23002
I have taken on board everything and I will research everything and like you say you know your body what it tolerates !
I’ve got lots of reading to do but I’m optimistic I like to get things right .
I’ve learnt from all the lovely people on here read do your research and start slowly , everything in moderation ( which is new for me I’m a little bit like a bull in a china shop )
Many Thanks and keep well yourself 😀
Kazbe x
Sounds good. Just remember, for most of us, it took awhile to get unwell and it will take awhile to start getting healthy. So.... like you said, easy does it. Keep us posted.