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[handbag99]

Hi I’ve been on NDT 4.5 grains for sometime now & feeling well & doing private blood tests. I was on levo 125mcg after RAI for graves. I have done this by myself following excellent advice on here. My GP knows nothing about this. He now wants me to have a blood test & medication review so I took the decision to go back on Levo then go for GP blood test then go & discuss-how long will it take for ndt to b out of system & Levo up to correct level before I have test done? I have been taking Levo only for 2 weeks so far. Any advice much appreciated x

[diogenes Remembering]

The important part of NDT (T3) will be virtually gone in under a week. The T4 part doesn't matter because you are adding to it by taking T4 only. I hope you can tolerate T4 only after a course of NDT, but it might take quite a while of trial and error with T4 dosage to mimic what the NDT was doing. The danger always is that with longterm (years) of NDT your body now has adapted and reversing that adaptation can be either slow or not possible at all.

[handbag99 in reply to diogenes]

Thank you-feeling awful so going to go back on my ndt & just tell gp-can I go straight back on or do I need to build up gradually? I’ve been on levo only for 2 weeks & was on 4.5 grains ndt prior. X

[shaws Administrator]

I wouldn't have bothered changing back to levo. Just be truthful and say you've changed to NDT and feel well and symptoms relieved and that's how you want to continue.

I am sure you were long enough on levothyroxine to know it wasn't doing you any service and not bringing your health back. considering that NDT has had a long and safe journey from 1892 and was the only thyroid hormone replacement. Before that people died an awful death. That's when doctors knew clinical symptoms (no blood test) and we had a trial of NDT and continued until death on it. It used to be prescribed on the NHS - then it was 'successfully' withdrawn (Big Pharma happy) and just recently the T3 (due to cost) but it was a perfect excuse. This left those who are well on T3 without a hormone and many have had to source their own. Thus a debate in The Lords about the withdrawal of T3 leaving patients high and dry and searching of where to provide their own is ongoing at present..

[shaws Administrator]

Doctors nowadays know nothing about NDT which was first introduced in 1892 and was given to all patients who were hypo - who died before this was invented. It contains all of the hormones a healthy gland would produce and was prescribed in the UK up until a few years ago when it was withdrawn due to False Rumours made by the BTA et al:-

thyroidscience.com/Criticis...

Despite Dr Lowe sending the following and requesting a respone over three years, they never did. So that's why many on the forum source their own NDTs. Recently they have also withdrawn T3, leaving no options to those who do not recover their health on levothyroxine.

[handbag99 in reply to shaws]

Thanks for this-interesting! I am going to go back on ndt as feel awful-can I just reinstate 4.5 grains or do I need to build back up slowly? Been off it for 2 weeks. X