Following all the great advice that I have received on here over the past 2 1/2 years I am now in a good place and feeling really well again (touch wood). I have also managed to lose weight and am almost back to a healthy BMI state with my weight. However, while directing a 'newbie' to the useful infomation on the TUK website I noticed that there was information for those having a supressed TSH (less than 0.03) being at greater risk of heart disease, abnormal heartbeat, Osteo', etc
" Dr A Toft writes in the BMA book “Understanding Thyroid Disorders”, “The consensus is that enough should be given to ensure that levels of T4 in the blood are at the upper limit of normal or slightly elevated and those of TSH at the lower limit of normal, or in some patients undetectable.” He also states, “Although, by taking excessive thyroxine, a sense of well-being, increased energy and even weight loss may be achieved in the short term, there are long-term dangers to the heart and a possibility of increasing the rate of bone thinning and therefore encouraging the development of osteoporosis."
There has been lots of mentions of why the TSH is important by one particular member on this forum just lately which quite frankly has scared me and left me doubting what I'm doing or my understanding on how all this works.
I have recently increased my Levo from 125 to 150 (2 weeks ago) in an attempt to raise my FT4 and FT3 but the recent TSH talk has made me regret my decision to request an increase from 125 to 150 and so I want to go back to taking 125 and then try dropping to 100 (or 100 /125 alternate days) and hope that my TSH will return to a non-suppressed state. I know this will probably mess up my FT4 & struggling FT3 levels but to be honest I don't know what's best anymore. I don't know whether to continue with a suppressed TSH and good FT4 / FT3 levels & feel great but put myself at a greater risk of heart failure or eliminate the heart risks, etc and go backwards with my Hypo' journey with lower FT4 & FT3 results. Both options suck.
These are my last 3 test results ...
MAY 2017 (Result on 100 / 125 Levo alternate days)
TSH 0.23 (0.27 - 4.2)
FT4 16.55 (12 - 22)
FT3 4.29 (3.1 - 6.8)
DECEMBER 2017 (Result on 125 Levo)
APRIL 2018 (Result on 125 Levo)
Bearing in mind that these results are taken first thing (as recommended here) for the highest TSH result, my TSH is probably even lower than these figures mentioned, later on in the day, therefore very suppressed.
I always thought that the TSH was a signal to tell the thyroid to produce T4 & T3 and Levo replaced what the thyroid was struggling to churn out T4-wise and then that was converted in different parts of the body into T3 for all the cells. If that's the case, how the heck is the TSH causing the heart issues if T4 & T3 levels are still not particulary brilliant or over range? I am so confused.🤔
My questions are...
1. I have been trying 150 Levo for 2 weeks now (from 125 in an attempt to raise my FT4 & FT3 levels) but all this suppressed TSH talk that has scared me, I have now gone back to 125. How long should I be back on 125 before reducing again to 100 or 100 / 125 alternate days? (On 100 / 125 my TSH wasn't suppressed)
2. If on 100 or 100/125 Levo my FT4 & FT3 drops ,which I imagine they will, how do I raise my FT3 levels without suppressing my TSH again? I assume that adding T3 means the 'signal' isn't needed again so just goes low or suppressed.
If anyone has any suggestions on what I should do then I would be very grateful. With all the help and advice here I have finally made it to a really good place. I dread going back but I fear heart failure more😯
EDITED TO ADD...
TOTAL T4 106 (59 - 154)
TPO 199 (was origianlly 1175)
ACTIVE B12 186 (25.1- 165)
FOLATE 8.98 (2.91 - 50) being addressed with Thorne Basic B Complex
FERRITIN 116 (13-150)
VITAMIN D 141
I've been gluten free for almost 2yrs and it has made a HUGE difference to my wellbeing.
Thank you x