Advice: Hi guys I’ve posted a couple of times... - Thyroid UK

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Sweenco profile image
14 Replies

Hi guys

I’ve posted a couple of times recently,quick recap I was diagnosed with hashimotos a couple of weeks back after feeling awful for weeks I had asked for my blood results:

TSH-11.4 (0.35-5.00)

T4-11.5(9.0-21.0)

B12-298(200-883)

Folate-4.5(3.1-20.0)

Ferritin-545(15-300)

I went to the doctor today to question these only to be told my B12 and folate were normal....is this right?

I also was told my stool sample came back stating inflammation in my bowel so I’m now being tested for celiacs. I also found out my thyroid has been high for over 10 year being above 5.5 on every test but I’ve only just been diagnosed 🙄🙄 and my b12 was only 245 back then aswell but he refuses to treat this dispite symptoms.

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Sweenco profile image
Sweenco
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14 Replies
NatChap profile image
NatChap

I would supplement with a good quality b-complex and a sublingual b12 methylcobalamin. Those results really should be higher x

SeasideSusie profile image
SeasideSusieRemembering

Sweenco

Check here to see if you have any signs of B12 deficiency

b12deficiency.info/signs-an...

If you have, list them for your GP and ask to be tested for B12 deficiency/Pernicious Anaemia. If not you could supplement with sublingual methylcobalamin lozenges and I would start with 1 bottle of 5000mcg strength - 1 lozenge daily - then go on to 1000mcg daily. B12 should be at least 500, best at upper end of range.

Also take a good B Complex such as Thorne Basic B or Igennus Super B.

Sweenco profile image
Sweenco in reply to SeasideSusie

I did ask him to test but he insisted there was no point 🙄

SeasideSusie profile image
SeasideSusieRemembering in reply to Sweenco

Do you have any of the signs and symptoms? Did you check the list? If you have, list them and take them to your GP. They are supposed to go by symptoms. There are people who had a B12 level in the 300s that are on B12 injections.

Sweenco profile image
Sweenco in reply to SeasideSusie

I do have the symptoms and have probs had them for a good while,I told him this but he wouldn’t listen he said I was in range and my other bloods were not indicating it!

SeasideSusie profile image
SeasideSusieRemembering in reply to Sweenco

I that case I would see another doctor. If you have symptoms then you should take them seriously. Start watching the first film on this page and you'll see why

b12deficiency.info/films/

shaws profile image
shawsAdministrator in reply to Sweenco

There's no point for HIM but plenty of reason why he should:-

"More than 50 conditions can cause or mimic the symptoms of dementia, and a small percentage of dementias are reversible. Two common examples are dementia caused by vitamin B12 deficiency or an underactive thyroid (hypothyroidism). Getting the right diagnosis is important so that you know what options you have, because symptoms subside when the underlying problem is treated."

No wonder why the NHS is in need of funds when basic deficiencies are ignored - as doctors seem to not take action even when at the bottom of the range.

helpguide.org/harvard/whats...

Tile profile image
Tile in reply to Sweenco

Just wondering if a patient can sue NHS doctors.

10 yrs of B12 at that level and not checking MMA or Active B12 that is medical malpractice. Same with your TSH. And ferritin levels over range. And he just sends you home now with Levo.

shaws profile image
shawsAdministrator

What doctor meant was that your B12 is in the 'normal range' ignoring the fact it is near the bottom. Your B12 is essential as it is a pro-hormone with essential work to do in our body, as is Vit D.

Before supplementing I would pop over to the Pernicious Anaemia forum as you may need a check to make sure you don't have this autoimmune disease for which someone has life-long injections of B12.

Folate seems low to me and someone will respond how to increase. You need a Vitamin D as it is also a pro-hormone with essential work to do.

In other countries we are diagnosed if TSH goes above 3. In the UK for some unfathomable reason we've to wait till it reaches 10. I just don't understand why they ignore clinical symptoms. Well, it's because they know none in the 'modern' era whereas all doctors used to know and treat upon symptoms alone.

Marz profile image
Marz

onlinelibrary.wiley.com/doi...

The above link takes you to the Guidelines for Folate and B12 Deficiency ( cobalamin is B12 ) You can see that CLINICAL signs should be observed and treated in spite of what the blood test says. These are Guidelfines your GP should have read and are probably sitting on his desk. Download them and highlight the relevant bits ....

Observing and understanding B12 deficiency is woeful. it is a neurological condition if left untreated - as I know to my cost.

Sweenco profile image
Sweenco in reply to Marz

Thanks I think I’ll try and see a different doctor and see what’s happens.

In the mean time I’ve ordered 5000mcg b12 and 1000iu vitamin D and selenium ace tablets,are these ok to take with my levothyroxine?

Sweenco profile image
Sweenco in reply to Sweenco

Vitamin D3

Marz profile image
Marz in reply to Sweenco

I would also add in a B Complex to keep all the B's in balance as B9 works with B12 in the body in an important way. I use Thorne Research. I take thyroid meds upon waking and vits and minerals around 4 hours later or lunchtime.

Did you read the Guidelines I posted for you above ?

Tile profile image
Tile

Before you start taking methylfolate you have to get your B12 levels up higher. Your B12 number is ACTIVE plus INACTIVE but at your level I can almost gurantee you are deficient. BUT.you must keep away from cyanoB12 it is added to foods or in supplements but over 50pc of people cannot break it down and it builds up in blood but inactive and does harm.

Your Ferritin is sky high he has to check this out...dont let this doc refuse you tests that you need.

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