Graves’ disease & overactive thyroid as result of immunosuppressive treatment for MS

[Eggymomo]

New to all this . I’ve been over heating, sweaty and disgusting for a good couple of years but I only got the letter saying my thyroid results tested high in Jan (on my 40th 🙄)

Since then started on low dose of Carbimazole and Propranolol. 2 weeks later my results shot up, now on 80mg Propranolol and 40mg Carbimazole. Tested positive for Graves’ disease.

[greygoose]

Which antibodies did they test to diagnose Grave's?

You might get responses if you give the actual results and ranges.

[Eggymomo in reply to greygoose]

Yes I see lots of people have done that. Unfortunately I don’t have them. I’ll try and get them and update my profile.

[greygoose in reply to Eggymomo]

Just ring reception at your surgery and ask the receptionist to print them out, and that you will pick them up in a couple of days. The law does say you're entitled to them.

[Suttie1 in reply to greygoose]

I’m on them as well my liver is now enlarged and docs are saying it’s not caused through the tablets but all my probs started when I went on carbimzole don’t know what to do I have bad tremors to

[greygoose in reply to Suttie1]

Suttie, this thread is 5 years old. And you replied to me and I know nothing about carbi, so I'm not the right person to ask - I have Hashi's. So, why don't you start a new thread, giving all the details - blood test results, etc - and ask your questions there. You'd get much better responses that way, from people who know what they're talking about. I'm afraid I can't help. Sorry.

[SlowDragon Ambassador]

MS treatment and Graves

endocrineweb.com/news/thyro...

ncbi.nlm.nih.gov/pubmed/254...

ncbi.nlm.nih.gov/pmc/articl...

Important to test vitamin D, folate, B12 and ferritin as well as thyroid levels

What vitamin supplements are you currently taking?

Elaine Moore has website specifically for Graves patients

[pennyannie]

Hello Eggymomo and welcome to the forum :-

I am with Graves disease and post RAI thyroid ablation in 2005 and now manage lingering Graves symptoms, thyroid eye disease and hypothyroidism.

It was quite a while ago but I didn't find much information forthcoming from the medical profession and more recently started to sort myself out and with thanks to this website, in the most part, and a couple of books, am much improved and getting on with my life.

You might like to take a look at the Elaine Moore Graves Disease Foundation website.

This lady has the disease and went through RAI thyroid ablation in the late 1990's.

She was and still is a medical researcher and her website is a leading source of everything relating to Graves Disease. It is stateside so there maybe some different medical protocols but there are numerous sections and an open forum, much like this amazing sire where you can ask anything of the members, and Elaine takes an active role in replying to people when she feels it necessary.

[greygoose]

Yes, she could definitely ask. Why don't you suggest it to her?

[greygoose]

That would not be contradicting me, that would be adding to the information. I don't think about on-line results because in France, we're automatically given a print-out of our results by the laboratory. We don't have to ask for them, they are ours.

[greygoose]

Well, I know that! I was just explaining to you why I never think of suggesting people ask for on-line access to their results.

[Rennixon]

Hi there, my son has just tested for high thyroid- Can I ask if your GP asked for the antibodies to be tested for Graves? I’m going to follow this thread too, as it’s all up in the air at the moment.

Thanks L